Archives for the month of: July, 2014

Chances are

July 5, 2014 //

I was driving a rental car with my daughter in the back seat; she did not yet weigh enough to sit in the front. She was 12 years old and on spring break from middle school. We had just been hiking at Kasha-Katuwe Tent Rocks National Monument in New Mexico. It was just the two of us; one of the mother-daughter trips we used to do together.

I entered in our next destination into the GPS and started following the directions. I got an instruction to turn onto a gravel road. I thought to myself, “Hmm, this doesn’t seem right.” I re-checked the GPS and then took the turn onto a well maintained but gravel road.

I still felt nervous. Gravel roads are not main thoroughfares. I was out in the wilderness. But I also thought, “Wilderness. I am from the Great Northwest. I have lots of wilderness experience.”

I kept driving, even though I knew that it was a one lane road. That was the total number of lanes. One. There were no turn around spots. At first I was concerned that we would encounter another car traveling the opposite direction. What would we do then? And then upon driving a number of miles and not seeing a single other vehicle or person, I started having different concerns.

The road led up gradually but persistently in elevation. I was driving through high elevation pine woods. The street was so narrow, it was like walking on a path in the forest. There were rock formations in the distance. It was breathtakingly beautiful.

As we got higher, the quality of the road started to decline. It was rutted and bumpy. It all happened really gradually. Then I saw it. It was a place to turn around. Now, if I had started driving at this spot, I would have immediately turned around and driven back to where we came from. I would have seen the situation for what it was. It was a dangerous place to drive. It was a place that required a four wheel drive and even then would have been difficult.

But I am a person of momentum and I was anxious. Usually I am quite risk adverse when it comes to physical safety. But I was not only anxious about the drive. I was anxious about my relationship with my daughter. She was shifting to preferring my husband to me. Dad was cool. Mom was not.

So a reason I kept driving was because I didn’t want to be an overly uptight mom anymore. I decided to take a chance. We got stuck when I drove over a boulder in the “road”.

It was noon. I had water and a first aid kit, which I put into a bag along with my GPS (from which I had recorded the GPS coordinates for the rental car) and my cell phone, the latter of which was low on battery power.

I was externally calm. I was doing the best acting job that I could. I told my daughter that we would walk back to the gas station we had passed prior to going up the gravel road. I had located the name and address of the gas station on my GPS. It was hot. I knew it was a long walk. I was wearing hiking shoes but my daughter was wearing Converse low tops. I was on the edge mentally and emotionally. I was barely keeping it together. I kept having fears that we would be attacked or raped and no one would be able to help us. I knew that I had made a horrible error in parenting. I didn’t know how we were going to get the rental car back.

Knowing if I also had to contend with a cranky tween, I would totally lose my composure, I told my daughter, “We need to walk about 10 miles. I’m sorry I got us into this situation. If you do the walk without complaining, I’ll give you $50.”

Suffice to say it was the best money I’ve ever spent. Along the walk, I intermittently checked for cell phone reception. When I found it, I called 911. However, the reception was spotty and the calls were lost when I shifted my weight. Further, dispatchers from different jurisdictions answered each time, because we were lost in an area close to border between two counties as well as close to tribal lands. After many attempts, I gave multiple dispatchers the GPS coordinates for the car, the address for our destination, the name of the road I was on (you know it’s bad when the 911 people can’t find the road on their maps), and our current location. I also knew that texts would be sent as soon as I walked into areas with cell coverage. I texted my husband our location and instructions to call 911.

We finally found our way to the beginning of the gravel road. I recorded the GPS coordinates and took a photo of some distinguishing features at the entrance to the road since there were no street signs. Just as we were starting to walk on asphalt, a car filled with a family of sight see-ers stops to ASK US DIRECTIONS about the gravel road. I explained our situation and they kindly offered us a ride to the gas station. We got to the gas station and I asked to use their phone since I was still out of cell phone reception. I informed 911 of our location. Then I dug enough change out of my purse to get my daughter and I something cold to drink.

About 10 minutes later, I saw two police cars pull into the parking lot, one from the county sheriff’s office and the other from the city of Santa Fe. I walked out and the sheriff looked annoyed. And he was. None of the information that I’d communicated to the 911 dispatcher had been communicated to him. Stealing my mom’s catchphrase for embarrassing situations I said, “Whatever you are thinking, it is probably true.”

He said, “We’ve been looking all over for you along with the Santa Fe and the tribal police. We were just going to send out a search helicopter.”

I communicated a great self-awareness of my major judgement error along with my multiple attempts to communicate my location to the 911 dispatchers. (Meanwhile, my stomach was lurching as I was thinking about how much money a helicopter search would have cost the fine tax payers of New Mexico.)

He settled down and turned out to be super nice. He actually even pulled the rental car and got it facing the right direction. It took a lot of skillful maneuvering. Then he followed us until he was sure that we made it out of the wilderness okay.

I called my husband that night when my daughter was out of earshot. He had not received my texts. I told him what I had done. Then I started bawling. “I’m so sorry. I made a horrible and dangerous parenting decision. I am so sorry.” At times like these, my husband knows exactly what to say.

Was it true that I was an uptight mom?

Yes.

Was it true that I needed to take more chances in my life?

Yes.

Was trying to be a cool mom a good reason to keep driving?

No, absolutely not.

The problem was, and I was mindful of this as I reflected on the incident, was that being so careful in my life, I did not know when to heed my own anxious feelings and when to move past them. And this was a situation that sneaked up on me gradually.

Some fears are rational, some are not. When I’m afraid of everything, I don’t know the difference.

I’ve come a long way since that drive and so has my daughter. I accepted the fact that I was not cool to her about one second after we got stuck; I have never turned back. Mom’s are not supposed to be cool. I have learned to face many fears, both rational and irrational. I will face many more.

In the meantime, I am staying clear of gravel roads.

Kasha-Katuwe Tent Rocks National Monument

This is the nice part of the road.

The scenery for the long walk. The sheriff informed me that we walked through cougar habitat. Yikes! I am more afraid of cougars than any other wild animal I’ve encountered, including alligators and bear.

Tags coping with anxiety, Decision-making, irrational and rational fears, making dumb parenting decisions, New Mexico, Parenting, risk-taking

Categories Family, Flora and Fauna, Parenting

Just an in-between

July 4, 2014 //

I was quite an awkward 11 and 12 year-old, as many girls are during those ages. I was and I still am very close to my mom and I remember talking to her about that stage of not being a young child but not quite being a teenager. Mom had suitable song lyrics for this and sometimes responded by singing, “Too young for boys, too old for toys, I’m just an in-between.”

“In between” is a phrase that has been popping into my mind frequently. I feel like an “in-between” as a cancer patient.

Actually, when I really think about it, I’ve felt like an “in-between” during this whole process and I see my friends going through the same thing. I remember in the early days of breast cancer I was shuttled back and forth between assessment and treatment. And even some of the treatment, that is surgery, was also used for assessment. There are blurry lines. It is a systematic process but there are many data gathering and decision points.

Other than my tamoxifen and Lupron shots, I am not in active cancer treatment. My oncology appointments are more spread out. I don’t even see my surgeon any more, I just see the nurse practitioner in the surgery office who works with “survivors”, the ultimate “in-between” status. Actually, there’s another in-between because if I am to need to have a breast cancer surgeon again, I need to see someone else. Dr. Wonderful not only “broke up” with me for being too healthy, he also retired from clinical practice, just last week. He is remaining at my cancer center doing research and in a leadership position regarding improving patient care. At least I can still send him a Christmas card later this year. He will not have moved back home yet. (He is Canadian, from Toronto, and I’ve always figured that he and his wife will move back to be with their sons and grandchildren.)

My current “in-between” balancing act is juggling my responsibilities. Okay, this is not a new balancing act as I have done it throughout my entire experience with cancer. However, as my energy is increasing, I have been able to work more. During 2013 my income, after deducting my expenses, was 50% of what it was pre-cancer. 2014 will not be a year like 2011 but it will be a much better year. I can see myself getting out of debt. My husband and I celebrate our 25th wedding anniversaries along with our 50th birthdays in 2015. We would like to take a trip to Turkey along with our daughter, to celebrate. We have a lot of saving to do if we are going to be able to take that trip. I certainly can’t contribute to that kind of expense without getting out of debt.

I am feeling the tug of responsibility to my friends, especially my friends in the breast cancer community. I know that I am not as available for communications as I once was. Some of my friends I know only through online conversations. I don’t like to distinguish them from IRL (in real life) friends because all of my friends are real life friends. Great distances as well as time differences can make communication difficult, though. And further, I confess that I am less likely to ask, “how are you” to friends who are having emotionally and physically difficult times. I don’t like to ask that question unless I am prepared to respond with the kind of time someone needs if the answer is not, “I’m fine, thank you. And you?” I am frequently pulled away to other responsibilities at home and at work. I don’t want to do a half-assed job of supporting my friends. I’ve had too many times in my life when a friend has asked “How are you?” during a hard spot in my life and my eyes tear up with the anticipation that I will be able to share my burdon with someone only to find out that the friend really does not have the time or mental energy just right then to tend to me.

I am also worried about losing my connection with the breast cancer community. I write frequently, but when I am really busy, I have fewer ideas. I don’t want my ideas to dry up and then the social connections to dry up as well.

Most of all, I am worried about losing my connection to the opportunity (not “gift”, mind you) breast cancer and my emotional recovery have given me to truly cherish life. I want to be connected to and mindful of the full richness of life.

I suspect I will work my way through this. I also suspect that I will not run out of things to communicate, even if not through blogging. And as far as blogging goes, I think I still have much to write here on this page. But I also want to respect and take note of the anxiety and fatigue I’ve been feeling lately. The anxiety is of the “lurking in the shadows” variety and not the spinning top anxiety I get when I go into overdrive.

Maybe the “new normal” that is talked about is actually a radical acceptance that life is always in-between.

Tags Breast Cancer, breast cancer survivorship, Family, Friends, life transition, Marriage, mindfulness, work/life balance

Categories Breast cancer, Marriage, Mindfulness, Parenting

Let me do the work

July 3, 2014 //

I was a young mother of a toddler and it was my birthday. My husband handed me an envelope. It was a gift certificate for Fauntleroy Massage.

I had never gotten a full body massage before. I didn’t even know what the types of massage were. I talked to some friends at work. I remember that Wendy ran down the modalities for me, Swedish, deep tissue, Shiatsu, and the last, Lomi Lomi, which she described as “good but kind of woo woo because it’s spiritual rather than just therapeutic.”

I was not very “woo woo” at the time. I was a scientist.

I called Fauntleroy Massage and was greeted, “Aloha, this is Jann.” I spoke with Jann, who was and still is a practitioner of Lomi Lomi. Yes, I was a scientist but I was also feeling the need to get my life more in balance and expose myself to different beliefs. So I made an appointment.

“You lie there and let me do all of the work. I will take care of you,” said Jann at the beginning of that first massage and many that were to come, at least a couple of hundred of them with Jann over the past 13 years.

I remember having to concentrate on not doing work.

Not doing work is a lot of work. I wanted to bend my leg instead of letting her bend it for me, for example. It took some time to get used to but once I did, it opened up opportunities for different kinds of work, the work of timing my breathing with the tense and release of massage strokes to help unclench muscles. In this way, massage is both meditative and mechanical.

Massage can also be like a dance. Jann is extremely intuitive and strong. She massages with her eyes closed. It is a meditative practice for her, as well. She massages with her whole body. She is conscious of the way she stands, uses her legs, and when her hands aren’t strong enough, she uses her elbows to massage. And I only know this because she’s told me. Jann coordinates her breathing with her exertion and when I am really in tune with her, I do, too. It is a very special experience, which also contributes to a better massage.

All of my messages have been relaxing and they knocked out the chronic pain issues I had for 12 years prior to having my first massage. But not all of my massages are great. The great ones are when I surrender to the massage.

As I mentioned, I have had an increase in energy and stamina. I am extremely happy about this. I have also done a lot of entertaining and taking care of other people. I have not let go of my self care and I have also let my husband take care of me. But I felt guilty about it. His work has been particularly stressful and further, during the summer, he drives Zoe everywhere.

Today I woke up in a fog. I have been tired for a number of days. I took today off for the holidays. I didn’t have to do anything. So I did nothing.

Sometimes doing nothing is nice. But sometimes doing nothing doesn’t do anything to fill me up. Because the nothing is really mindless stuff rather than mindful stillness.

This afternoon, I drug my tired butt to a massage. I was thinking, “I am too tired to go to a massage.” Really. That’s how brain dead I was feeling. I was having to summon the motivation to drive a half mile to Jann’s office and get a MASSAGE.

It happened about half way through the massage. I surrendered. And it filled me up.

Tags letting go, mindfulness, self care

Categories Mindfulness