Archives for category: Feelings

I recently came across a scrapbook my husband made for me to commemorate my 40th birthday. In it friends and family, old and new shared memories of their relationship with me. I came across an entry by a friend from graduate school, Beth. She and I were both married to men named “John” who were graduate students in the Computer Science Department. It was a funny coincidence. We socialized a little as married couples and I have always thought very highly of her as a gentle, thoughtful, and intelligent person. We exchange Christmas cards each year and an email every ten years. I had forgotten what she had written in my book or even that she’d taken the time to respond to John’s request. What she said was lovely that she sees me as a kindred spirit with whom she will always have a connection. She described me as “fun, smart, and safe.”

When I was a psychology intern, I trained at a medical center in which our services were integrated with the medical services. We worked with cancer patients, burn patients, spinal cord injury patients, organ transplant patients, etc. We also had a separate outpatient psychology clinic and provided testing services to the department of psychiatry.

In my work, I don’t typically work with people who are in imminent danger. I remember the trepidation I felt prior to this internship that I would have nothing to offer individuals with serious medical illnesses, especially those with terminal disease. And I really really really didn’t want to work with children with cancer and other serious life threatening illnesses. But I did.

I discovered that I had something to offer them. Even as children, they understood the danger of talking about their illness with their parents. They understood the burden. As an outsider, I could lift it. They could talk to me without fearing that they were hurting me in some way. If I empathized with the sadness, anger, and fear, I was just a supportive adult not a parent who is supposed to be the strongest person in a child’s life. And I could listen and avoid the unintentionally non-accepting messages that adults give children when they try to talk kids out of emotions because they are unable to regulate their own. Children, even children who are dying, like to play and laugh. I could do those things. I could be fun, smart, and safe.

I keenly appreciate the fun, smart, and safe people in my life right now. And many of them come from unexpected places. I left for vacation right as Diane from dglassme posted the very excellent Deep Dark Trenches of Virtual Space. Diane writes about her own link to the Internet, especially the cancer blogging community. The post is also accompanied by a photo of sharks. I identified with the post so strongly, especially the following:

When you start to look forward to seeing your doctors more than your friends, you know something has gone dreadfully wrong considering they have some pretty ridiculous personalities, or when you care more about what a complete stranger you met on the internet has to say than a close friend or loved one. Who are these people? They are mothers, psychologist, college students, diplomats, attorneys, historians, writers, nurses, surgeons, oncologist, etc.  – people from all walks of life, from all over the world – who have cancer or are working with people who have it.

During this technicolor stage of my life, especially the part of my cancer recovery during which many people in my life consider cancer to be in my permanent past, I find myself drawn to my cyber buddies. Most of them are cancer patients but others are not. But the thread that binds them is that due to personal circumstances and/or chosen professions, they are accustomed to life changing events. They deal with challenges with intelligence, kindness, and humor.

I have developed a few unique and close friendships with individuals whom I have never met in person or even spoken to on the phone. I have no frame of reference for these particular kinds of relationships. I had never blogged prior to my cancer diagnosis. My Facebook use in the past, basically boiled down to “Look at my kid!” “Look at my kid again!” (I still do plenty of proud mama posts. And by the way, “Look at my kid!”)

Sometimes I feel ill at ease with the uniqueness of the relationships. I feel at a loss as to how to explain to others how I learn so much from “strangers”. Fortunately, my husband gets it and never seems to feel left out or disappointed that I look outside of our marriage for support. Sometimes I have trouble navigating the waters of my cyber friendships, but by and large, I still feel safe. In this community, I feel that there is always someone who can sit beside me and hold my hand during the lowest points. And there will be someone who will laugh at my jokes even if they are dark. And there will be someone who communicates an understanding of what I am going through even if his/her experience is different. And since it is a community, there is always someone who can step in for support when someone else is not available. So the network is consistent and always there.

I am thankful for the times that my technicolor emotional expressions are not only tolerated but accepted because there have been a few times that I am been taken aback by the intensity and intimacy of my outpourings. I boo-hoo-hoo’d with dysregulated empathy over one of my friend’s Facebook posts, when she was having a particularly difficult day. I was embarrassed afterwards and even thought about apologizing. But knowing that apologizing for these kind of behaviors can be a kind of unnecessary flailing dance that I do, I held back. In time, normalcy returned on its own.

I have dear friends and family who help me heal and grow stronger each day. They love me and want the very best for me just like the parents of the children with whom I worked at the hospital.

But as Diane pointed out, the people, even the dearest ones in our day to day lives, don’t constantly live with cancer or some other life changing experience. When I talk to them about my fears or my illness, I know that I may tip them off of their axes and send them spinning in other directions. I have been in their shoes before and I totally get it.

Thank you for being fun. Laughter helps me deal with the ridiculous aspects of my life, it distracts me from my worry, and it gets me breathing again.

Thank you for being smart. I feel understood and connected rather than lonely and weird.

Thank you for being safe. Thank you for sitting with me in my grief and trusting me to work through it. Thank you for forgiving the times I step on toes, don’t pay enough attention, or misplace my tact.

I hope that I provide the same things for you. Cancer is scary enough without scaring each other.

Oh I’ve been on vacation and I am back. I missed you.  Mwah, mwah, mwah!

I had a marvelous time-relaxing, beautiful, restorative, and sunny!

I read two whole books, which is a big deal since cancer treatment induced stressed had made a pass time I used to take for granted, very difficult to do.

And I can listen to music again while driving! That’s a kind of multi-tasking that I have not been able to do for years.

Thank you wonderful San Juan Islands in northern Washington. I am so glad that you are not too terribly far away. We will be back!

 

 

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This post is from 4/6/13. I had been home for nearly a month following my TRAM surgery. I was bored.  I was trying to do a daily post following the Health Activist Writers’ Month Challenge. I decided to do it before I read the writing prompts. I didn’t like them. But I appreciated the purpose of the challenge and tried to give include some kind of health related message in each post.

 

For today’s Health Activist Writers’ challenge post, I have a challenge for YOU.

I challenge you to join the WRF, the World Resting Federation. Yes, you read right, the World Resting Federation. Yeah, we get confused with another world federation. We have a similar name plus we also wear really cool costumes and have cool names. My resting name is Googly Eyes. We also engage in bouts to see who is the hardest rester. I am able to use the mesmerizing power of my cattywampus bosoms to render my opponents wide-eyed while I catch some major zz’s.

Are you ready to rest with the best?

Come see my next match.

It’s on Sunday, Sunday, Sunday!

Limited edition commemorative pj’s will be on sale.

smiley t shirt small

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Two of my surgeries, my mastectomy and TRAM, required Jackson Pratt drains. I had one for the first surgery and two for the second. As many breast cancer bloggers attest, they are an annoying inconvenience. And some people get totally grossed out by them. I am not terribly squeamish about that kind of stuff so I was okay with the idea of and care of the drain. But I was so happy to get rid of them and each time, I wrote a break up letter.

 

August 2012

Dear Surgical Drain,

By now, having sit for a few hours in the exam room waste receptacle at the True Family Women’s Cancer Center, you have realized that I’ve left you and moved on with my life. I imagine this was a shock to you as it was rather sudden on my part. To be honest, I just wasn’t that into you. I mean, I needed you for awhile for your draining function but once you’d finished the job, I was dried out and done with you. I want to wear semi-normal clothes again without having to disguise your lumpy presence with blousy tops in wild prints. Yes, you embarrassed me. Frankly, your contents were kind of gross. Don’t despair, I will need you again in a few months when I have my TRAM surgery. We can catch up on old stories. Just remember this time, that this a TEMPORARY relationship of limited scope. I am a married woman, after all. But I do thank you for coming to my aid when I needed you most.

Sincerely,

Elizabeth

(Note: I meant this post to be funny but now I am feeling ridiculously and irrationally sorry for the surgical drain. After being off work for two weeks, I have this back log of empathy and I’m applying it to plastic! No wonder my high school creative writing teacher taught us not to anthropomorphize objects. It’s not only bad writing, but it is dangerous! Don’t try this at home!)

 

March 2013

Dear Surgical Drain,

I know I broke up with you last summer after our little fling. Against my better judgment, I took you back last week when I got the TRAM surgery. Maybe I was thinking that things would be different this time. After all, there was you AND another drain. What could be spicier than co-mingling with bulbous plastic twins? However, this threesome, instead of being exciting, was just awkward and messy. Although I can’t speak from personal experience, I suspect this is oft true of other ménage à trois type situations.

But again, I do thank you for serving your purpose and keeping me from swelling up like Violet Beauregarde. (My breast cancer experience has contained far too many references to Charlie and the Chocolate Factory and Roald Dahl.)

Keep on keeping it real,

Elizabeth

You should be so glad that I screened out the grosser images of Jackson-Pratt drains, which came up in my Google images search. This one is unused and straight out of the package. You’re welcome.

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This post is from January 2013.

I’ve been struggling with water, the gift of life, aqua, good ol’ H2O.

There was leaky pipe in my office last Saturday, which would have created a deluge had my office mate not been there to see it so a plumber could be called to fix it.

Yesterday, as usual, I went for my three mile long walk. It was rainy, which is not unusual for this time of year. I donned my Gore-Tex armor, which has served me so well-Gore-Tex hat, Gore-Tex hiking boots, Gore-Tex parka, Gore-Tex boots, Gore-Tex pants.

If I lived a considerable distance south of these parts, I might even call myself a Gore-Texan. (Cue music.) The rain at night, lasts a fortnight (clap, clap, clap, clap). Deep in the heart of Gore-Tex!

I came home from my walk, my boots squeaky, my socks soggy, and soaked through my coat, insulated long-underwear shirt, t-shirt, and bra! Only my Gore-Tex pants managed to maintain my faith in the magical rain shedding powers of Gore-Tex.

I took my smartphone out of my ZIPPPED Gore-Tex parka pocket. Uh-oh. It was covered in water. The screen was flickering! I quickly turned it off and opened it up. It was wet on the inside! I dried it off but being fool hardy, I tried to turn it back on even though my brain was telling me, “Leave it off and call AT&T.” It turned on but was frozen on the “Samsung” boot up screen. So I turned it off and broke it down again.

“My precious! My precious phone! My extremely complicated work, medical, family, personal life calendar is on there! The names of all of the new patients I will see between now and March 5th are on there!”

“Golem, I feel your pain,” I thought to myself. “I am a psychologist. I am not addicted to technology. I am an excellent problem-solver. Get a hold of yourself, woman!” I took a deep breath and called AT&T.

A very sweet technical support rep named Shannon answered. “Oh, I just did that. I was so worried. I keep EVERYTHING on my phone. Surround your phone with rice to get it to dry out. Leave it for at least a day. I’ll call you tomorrow and see how you are.”

Shannon has felt Golem’s pain as well. I confirmed with her that if the phone didn’t dry out, it was curtains for the information on my phone. (And yes, Google is supposed to automatically back up my calendar but that stopped working and I’ve been procrastinating about figuring out a fix for that problem.)

“My precious! My precious! God, you can take my breast but not my SMARTPHONE!” I was again, I’m afraid, losing some perspective. So I then imagined the Albert Ellis section of classic 1960’s psychologist training film, “Three Approaches to Psychotherapy“, also known as “The Gloria Films”. Gloria, a real person with real life problems, agrees to be taped seeing three super famous clinical psychologists (Fritz Perls, Carl Rogers, and Albert Ellis), one at a time. Pioneers in fields can be kind of extreme. The Gloria films illustrate this quite nicely. By the time I saw the film in the 90’s, it was for historical purposes. The film served up unintentional hilarity with a side of guilt since Gloria was a real person with real problems. They were not getting addressed.

So what does this have to do with my meltdown about “My precious”, you may ask? Albert Ellis was a brilliant psychologist who developed Rational Emotive Therapy (RET), which is the foundation of modern cognitive therapy. The goal of RET is to use reason to reduce psychopathology. However, Ellis did this in the absence of stuff like, you know, demonstrating empathy and establishing rapport. He also had a rather distinctive nasal northeast accent. Combined with his lawyerly therapy style, it was pretty funny. “I can see that your situation in inconvenient, but it is not terrible and awful.” Or my favorite when Gloria puts her self down and he responds by telling her that if she makes a mistake it does not make her a “no good-nik”. The sight and sound of Dr. Ellis trying to use 60’s-era hip slang was double hilarious. Check it out for yourself here.

“Elizabeth, your anecdotes require too much exposition! What does this have to do with your phone?”

Thank you, patient readers. Basically, I tried to reason with myself as I often do, but this time I remembered Albert Ellis, and it made me laugh.

That pulled me out of my tizzy and I went about recreating my schedule, piecing it together from memory, emails, and other non smartphone dependent methods.

Today, I took my phone out of it’s rice bed and it awoke!

Thank you, Albert Ellis. Yesterday was inconvenient and more than a little stressful but it wasn’t “terrible and awful.” I hope you forgive me for laughing at you and for being able to do a dead-on impersonation of you. You were definitely not a “no good-nik.”

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This post is from 8/7/12, the day before my right-side mastectomy. I have re-posted it previously. I include it here because it is a quite bittersweet reminder of the fears I had at the time about my physical health as well as about my view of my own physical attractiveness. My breast surgeon briefly appears in this post to show what a reassuring rock star that he is. And yes, I think I used my humor well to cope with this. This was my third surgery in six weeks. I had undergone two lumpectomies with a lack of clear (cancer free) margins. The extent of the cancer in my right breast had not yet been discovered. My treatment plan was still up in the air. (And yeah, I know I repeat that a great deal but was so incredibly stressful.)

The dress in the post? I gave it away after it became too big for me. I loved it. I felt pretty, mod, and feminine when I wore it, even during the three months after the surgery, when I wore a foam prosthetic. Plus, it was comfortable, a requirement of a middle-aged fashionista.

 

Tomorrow is the day that I say goodbye to rightie, the ta to my other ta, the oonga to my baz, and the crenshaw to my honeydew. And you don’t have to tell me that it’s sad because I already know. I do need to move forward and the sooner I have this surgery, the sooner I can get over the next round of painful and yucky stuff. My outward appearance with go from Elizabeth 1.0 to Elizabeth 2.0 to Elizabeth 3.0 by the time the holiday season comes upon us. (Just pretend that I was never a baby and I started out life as a 46 year old woman. Be creative.)

Elizabeth 1.0 did have a proper send off today. As I walked into Trader Joe’s, I received not one, but two compliments from the Trader Joe’s employee who was working out front. First he said, “Have a good time shopping” followed by, “I like your dress.” He may have even been younger than me. As an extra bonus, he was not one of the drunk guys at the bus shelter in the Junction, ergo the flirting was not the least bit creepy or boundary violating. The bus guys seem to be my main fan club. (And drunk guys, I haven’t heard a lot from you lately. Middle aged ladies need a little encouragement.) So hey, Elizabeth 1.0, you still got it and with a sober guy, too!

I am not going to be bringing my computer to the hospital tomorrow so I may not post anything until I get home on Thursday. John may have his computer and if I am mentally with-it enough I may be able to get him to post on my behalf. Otherwise, please be patient. I’m not sure what I am going to be up for communication-wise for a couple of days. I am confident that surgery will go well and even though it is likely to hurt for awhile and to be very upsetting, I will be okay. During my meeting with Dr. Beatty last Thursday I said, “I’m going to thank you now because next time I see you I may have lost perspective.” His quick and calm reply was, “No, you won’t.” He’s probably right.

Goodbye, Girl; hello, long and healthy life.

The Trader Joe’s guy has an affinity for prints, apparently. I do think I looked better in this dress for the obvious reason. My whole head showed rather than being semi-headless like this model. To have an entire head is more aesthetically pleasing. I learned that in my art history classes. I do like her earrings, though. Buy your own dress at http://www.sierratradingpost.com/chetta-b-jersey-print-dress-v-neck-short-sleeve-for-women~p~4059u/?filterString=womens-dresses~d~257%2F&colorFamily=02

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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