Archives for category: Not Cancer-the other part of my life

Yesterday, I attended the Mass of All Souls at the St. James Cathedral Cathedral. My mom is a member of the choir and they sang Mozart’s Requiem, along with a small orchestra. Joanna, a commenter on this blog and good friend of my mom’s, is also in the choir. My friend, Lisa accompanied me. We had a nice dinner before hand and then went off to church. The mass was beautiful and the incense was tolerable. Usually it sends me into a spasm of coughing but this time, I just coughed a little. I also had to admit that the swirling smoke emitted from the incense holder as Father Ryan swung it back and forth was mesmerizing.

Lisa and I both come from musical families. We both played classical flute when we were younger but went on to other pursuits. Lisa stayed in the arts, though. She is an author of books for children and youth. I don’t know how she felt during the mass, but while I was listening to the beautiful and powerful music, I remembered how exciting it was to perform music in an orchestra. I kind of missed it but it was mostly just a very positive feeling of nostalgia.

I had a wonderful evening but it went pretty late, at least for me, even for a Friday night. So I’m a bit brain dead today but there’s still space in my brain for happy memories of a lovely evening.

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You may recall my experience several weeks ago when there was a “code blue” called in the oncology clinic at Swedish Cancer Institute. 20-30 medical personnel swarmed over from the hospital to attend to a man who had lost consciousness during his medical exam. I had a similar experience today except that the “code blue” occurred in my office! I walked out of my office to the waiting room. My friend and office mate, Steve, opened his door and quietly told me, “My patient is having a medical situation. He is really disoriented and I called 911.” I asked him if he needed help, he declined, and since there were people in the waiting room, I decided the best thing I could do would be to go back to my office and calmly carry on until my next patients arrived.

Paramedics arrived a couple of minutes later. It turned out that the patient was diabetic so they thought he probably just had low blood sugar. So Steve came by and asked me if I had any food. I gave him a granola bar and some crackers. Having worked with teens with diabetes as a psychology intern, I knew that people can get really cranky when they have low blood sugar. Sure enough, Steve’s patient was not thrilled with the snack options that I dug out of the bottom of Jennie’s and my desk drawer. Steve went to one of the restaurants nearby and got a soda. Apparently, he was not drinking it very fast so Steve asked me if I had any sugar packets. No luck there so he went off again to one of our neighboring restaurants.

I didn’t see any of this, but Steve told me that in the few minutes it took him to return with sugar packets, his patient had sprung back to life. He’d gotten enough soda into his system. The paramedics left and the patient drove himself home. Crisis averted!

So maybe this isn’t really a “code blue” but again, I am not a physician so how am I to know? I admired Steve’s calm throughout all of this. I’m glad that there are safety nets in life like 911. But people, take care of yourselves! If you have diabetes, breakfast skipping is not allowed! It was a good reminder to me to continue to care for myself and try to remain calm during the bumpy parts of life.

Yes, it was like pulling teeth, but ultimately, I successfully extracted a very complicated report from my brain. Victory!

I was also successful in raising my business account balance from $788 on Sunday to almost $3000 on Wednesday. The insurance checks are finally starting to come in from my return to work over a month ago. So when you think, “Elizabeth shouldn’t work so many hours” remember that 1) I actually am working less hours on average and 2) I collected a total of $600 for the entire month of September. I’ll have another month like that after the TRAM surgery. These are not such easy choices.

There was nothing special about today as far as my health goes but today is Unity Day, a day to wear orange as a symbol of being unified against bullying as part of National Bullying Prevention Month. October is also Breast Cancer Awareness Month. With only twelve months, causes have to share, I guess. As I’ve discussed in my blog, I’ve been affected by both bullying and breast cancer in my life. And bullying prevention has been a professional focus.

Here I am wearing orange, 70’s psychedelic orange to be exact. Striving for a world where orange and pink can live in harmony.

Orange makes me happy when it is on my clothing instead of my hair or skin. Remember that, Oompa Loompas!

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My mom is awesome every day but it is worth special mention today because it is her birthday. She was born on the very same day as another spicy Italian beauty, Sophia Loren. Unlike Sophia Loren, my mom didn’t star in films, some wearing a garter belt and bustier. I do have to say that she absolutely rocked a Puccini-esque print mini skirt and false eyelashes when we were kids. We have a picture of my mom in this outfit (she also wore a fall well before the hair extensions era). In the wrong hands, this ensemble could have been tacky. But she looked downright glamorous all the more impressive since her six children, aged between 3 and 14 years are also in the picture. And we do not look glamorous. We look like we are a lot of work.

My mom has a lot of energy. She often tells me, “I don’t know how you do it” referring to my career and family life. I am convinced that what she did was much more difficult. She went beyond normal mom stuff. My mom sewed some of our clothes, made us stuffed toys and dolls, did crafts with us, kept a huge garden, volunteered at school, sang at church, and much much more. My mom is also so organized! I remember waking up each morning to our lunches and morning vitamins all laid out on the kitchen counter. And she hasn’t stopped organizing. And every time I visit the yard looks fantastic and the house is clean. She’ll say, “Oh, my house is so dirty.” That’s when I feel like I should never have her to my house again. If you think your house is dirty…

But the best things about my mom are that she is loving, fun, generous, and a fabulous grandmother. She keeps track of all of us kids still as well as all of the important event in our life. And she is the only person in my life who thinks I have a beautiful singing voice. (She hears what it could have been like if I’d taken lessons and practiced, which is loads better than it actually sounds.)

Happy Birthday, Mom!

I’ve had an EXTREMELY light schedule since I came back to work. This is in part by design and also due to cancellations for testing. I usually have only about one cancellation a year for my testing services but as fate would have it, I’ve had one per week for the last two weeks, which is extra stinging since I haven’t been making any money due to my medical leave. Nonetheless, I have been trying to treat the extra time as a precious resource rather than a source of disappointment and anxiety. Consequently, I took a walk this morning around the neighborhood.

My walking route was not set but I knew that a visit to the coffee shop, Bird on the Wire would be in the earlier part of the walk. On the way to the coffee shop, I saw two girls, one about 9 and the other about 5,  waiting for the school bus. It was busy at Bird so I was there for awhile. When I left, I saw that the girls had walked to the street corner. I said, “Good morning, girls.” The older girl’s face started falling ever so slightly. “Are you okay?” I asked. Then Ashley (not her real name), the older girl crumbled into full on cry face. “We missed the bus. We need to be at school. We’re trying to walk there. We are lost.”

I tried to calm them down and found out that they were sisters and that they were responsible for getting themselves out the door on time in the morning. This morning they decided to watch a movie and they lost track of the time. I asked Ashley if she knew her parents’ phone number. “No and I don’t have my phone. They took it away and I have to pick up dog poop to get it back!” (I sure hope those parents give that girl her cell back if they are going to put her in charge of getting she and her sister to school every day.) I asked if she knew where she lived. Both girls gave me directions but I couldn’t really follow them. Then Ashley said, “We can’t go home. Our parents told us it is our job to get to school on time.” I explained that their parents would want them to be safe and not trying to walk all of the way to their school (this is what they were trying to do and they didn’t know the way). Ashley also asked, “Do you have a car?” I told her that I did but that although I would never hurt them, their parents would not want them to take a ride with a stranger.

Both girls felt terribly that they would be breaking a rule by being late to school. The kindergartener, Kelsey (not her real name), said “I’m going to be on the lowest part of the teacher’s chart!” Her sister, felt more responsible being the older girl. “My teacher is going to be mad at me for being late. I’m in 4th grade!” (Many kids live in fear of 4th grade. There’s a big emphasis on being responsible.) I tried to reassure them that I thought their teachers would be understanding. Their distress was heartbreaking and charmingly earnest and innocent all at once. At one point, the little one started jumping around a little, playing and her sister said, “You’re not supposed to play. We did something wrong!”

This is when I realized that I had encountered myself at ages 5 and 9. About two minutes after asking the questions about where they lived, etc., I said, “I have a better idea. I’ll call your school.” As I dialed, little Kelsey said to herself, “I hope they answer, I hope they answer.” I talked to the receptionist who put me on the phone with the principal, Christy Collins. Christy and I know each other from work I’ve done professionally with some of the students at the school. She is a relatively new principal to that school and she is terrific. We arranged for me to wait with the kids while she drove to pick them up. Even when I told the kids that Ms. Collins was going to pick them up, they were still a bit unsettled. Ashley kept saying, “I feel so lost.” Kelsey said, “I wish I could fly in the sky so I could see where our school is.” The girls looked happier when Christy picked them up. I explained to her that they were very afraid of getting into “big trouble” and that Ashley was taking her responsibility as the older sister very seriously. Christy thanked me and they went on their way to school.

The girls weren’t literally lost. They’d really only walked about 10 yards from the bus stop. There were people around to help. But they felt lost. It turned out they were new to Seattle and had moved from a rural town, which is quite a bit north of here. Kelsey informed me, “We moved here so I could go to kindergarten.” She had also told me that she’d gone to preschool and when I asked where she told me that she was “home schooled” for preschool. I told her that I had also been “home schooled” for preschool. (I didn’t go to preschool.) I’m wondering whether she thought there were no kindergartens in in her town.

There have been times in my life when I felt lost when I really wasn’t. When the cogs in my brain churn away at anxiety so ceaselessly that it is hard not to feel that something is horribly amiss and that I can’t see away to fix it. These can be risky times as well. Like the girls, who were so afraid of getting in trouble for not getting to school, my brain can get so focused on the subject of my anxiety that I can minimize the risks of other decisions. My guess is that Ashley had been told many times not to get a ride with a stranger but she felt so panicked about the situation and not carrying out her “big sister” responsibilities that she lost sight of the bigger picture. I was glad to have been able to help these girls, to help them problem solve, to stay safe, and to remind them not to ride with strangers! I don’t feel lost now but I may feel that way again sometime in the future and I will try to remember these girls, that I can solve many problems and when I can’t, I can ask for help.

I continued to be grateful for all of the wonderful care I have received from others. Cancer is one of those, “it takes a village” kind of conditions and I have greatly benefited from my treatment by so many villagers. My professional specialty, ADHD, is also one of those “it takes a village” kind of conditions. I am gratified in my work for all of the support that the various villagers, teachers, therapists, parents, physicians, occupational therapists, tutors, etc offer to the kids I see. However, it is unusual for all of the villagers, in the case of kids with ADHD, to be on the same page. People with ADHD often have behavior problems that are irritating, challenging, and sometimes unsafe for others. Even without behavior problems, it is hard for others to understand the inconsistency of their performance, why it is so hard for them to develop good organizational habits and such. To add to the confusion, people with ADHD do not have trouble attending to or persisting on tasks that are enjoyable. It looks like they “can do it when they want to” and for boring or frustrating tasks, they just need to gut through them like the rest of us. But “gutting through” the frustrating, the uninteresting, and the mundane is extremely difficult. Since people are individuals with different strengths and weaknesses and ADHD can vary considerably in terms of symptom presentation and severity from person to person, it can look very different from person to person.

Often kids with ADHD get blamed for their problems even though they are primarily due to their very serious and chronic disability. People with say, “He should be able to do x and y. He shouldn’t still be doing z.” All the “should” tells you is that a child hasn’t reached your expectations. It also often tells you that you are frustrated with the child and perhaps not sure how to help. Unfortunately, this state of affairs sometimes leads to giving up and concluding that the kid is just “bad” or “lazy” or some other harmful label.

I have been treated for breast cancer since May 25th. No one has blamed me for my disease. And I don’t blame myself either but I do know that I put myself at higher risk for the disease by being overweight on and off for so many years. Nonetheless, people have been motivated to help me and to treat me with compassion. People don’t give themselves ADHD. It is largely genetic and the non-genetic factors such as poor prenatal care and early malnutrition are not ones over which kids have control. I’ve seen kids as young as 4 being blamed for their disability. I wish these children could more frequent enjoy the same love and compassion as a 46 year-old lady with breast cancer.

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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