I recently came across a scrapbook my husband made for me to commemorate my 40th birthday. In it friends and family, old and new shared memories of their relationship with me. I came across an entry by a friend from graduate school, Beth. She and I were both married to men named “John” who were graduate students in the Computer Science Department. It was a funny coincidence. We socialized a little as married couples and I have always thought very highly of her as a gentle, thoughtful, and intelligent person. We exchange Christmas cards each year and an email every ten years. I had forgotten what she had written in my book or even that she’d taken the time to respond to John’s request. What she said was lovely that she sees me as a kindred spirit with whom she will always have a connection. She described me as “fun, smart, and safe.”

When I was a psychology intern, I trained at a medical center in which our services were integrated with the medical services. We worked with cancer patients, burn patients, spinal cord injury patients, organ transplant patients, etc. We also had a separate outpatient psychology clinic and provided testing services to the department of psychiatry.

In my work, I don’t typically work with people who are in imminent danger. I remember the trepidation I felt prior to this internship that I would have nothing to offer individuals with serious medical illnesses, especially those with terminal disease. And I really really really didn’t want to work with children with cancer and other serious life threatening illnesses. But I did.

I discovered that I had something to offer them. Even as children, they understood the danger of talking about their illness with their parents. They understood the burden. As an outsider, I could lift it. They could talk to me without fearing that they were hurting me in some way. If I empathized with the sadness, anger, and fear, I was just a supportive adult not a parent who is supposed to be the strongest person in a child’s life. And I could listen and avoid the unintentionally non-accepting messages that adults give children when they try to talk kids out of emotions because they are unable to regulate their own. Children, even children who are dying, like to play and laugh. I could do those things. I could be fun, smart, and safe.

I keenly appreciate the fun, smart, and safe people in my life right now. And many of them come from unexpected places. I left for vacation right as Diane from dglassme posted the very excellent Deep Dark Trenches of Virtual Space. Diane writes about her own link to the Internet, especially the cancer blogging community. The post is also accompanied by a photo of sharks. I identified with the post so strongly, especially the following:

When you start to look forward to seeing your doctors more than your friends, you know something has gone dreadfully wrong considering they have some pretty ridiculous personalities, or when you care more about what a complete stranger you met on the internet has to say than a close friend or loved one. Who are these people? They are mothers, psychologist, college students, diplomats, attorneys, historians, writers, nurses, surgeons, oncologist, etc.  – people from all walks of life, from all over the world – who have cancer or are working with people who have it.

During this technicolor stage of my life, especially the part of my cancer recovery during which many people in my life consider cancer to be in my permanent past, I find myself drawn to my cyber buddies. Most of them are cancer patients but others are not. But the thread that binds them is that due to personal circumstances and/or chosen professions, they are accustomed to life changing events. They deal with challenges with intelligence, kindness, and humor.

I have developed a few unique and close friendships with individuals whom I have never met in person or even spoken to on the phone. I have no frame of reference for these particular kinds of relationships. I had never blogged prior to my cancer diagnosis. My Facebook use in the past, basically boiled down to “Look at my kid!” “Look at my kid again!” (I still do plenty of proud mama posts. And by the way, “Look at my kid!”)

Sometimes I feel ill at ease with the uniqueness of the relationships. I feel at a loss as to how to explain to others how I learn so much from “strangers”. Fortunately, my husband gets it and never seems to feel left out or disappointed that I look outside of our marriage for support. Sometimes I have trouble navigating the waters of my cyber friendships, but by and large, I still feel safe. In this community, I feel that there is always someone who can sit beside me and hold my hand during the lowest points. And there will be someone who will laugh at my jokes even if they are dark. And there will be someone who communicates an understanding of what I am going through even if his/her experience is different. And since it is a community, there is always someone who can step in for support when someone else is not available. So the network is consistent and always there.

I am thankful for the times that my technicolor emotional expressions are not only tolerated but accepted because there have been a few times that I am been taken aback by the intensity and intimacy of my outpourings. I boo-hoo-hoo’d with dysregulated empathy over one of my friend’s Facebook posts, when she was having a particularly difficult day. I was embarrassed afterwards and even thought about apologizing. But knowing that apologizing for these kind of behaviors can be a kind of unnecessary flailing dance that I do, I held back. In time, normalcy returned on its own.

I have dear friends and family who help me heal and grow stronger each day. They love me and want the very best for me just like the parents of the children with whom I worked at the hospital.

But as Diane pointed out, the people, even the dearest ones in our day to day lives, don’t constantly live with cancer or some other life changing experience. When I talk to them about my fears or my illness, I know that I may tip them off of their axes and send them spinning in other directions. I have been in their shoes before and I totally get it.

Thank you for being fun. Laughter helps me deal with the ridiculous aspects of my life, it distracts me from my worry, and it gets me breathing again.

Thank you for being smart. I feel understood and connected rather than lonely and weird.

Thank you for being safe. Thank you for sitting with me in my grief and trusting me to work through it. Thank you for forgiving the times I step on toes, don’t pay enough attention, or misplace my tact.

I hope that I provide the same things for you. Cancer is scary enough without scaring each other.

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I have visited the San Juan Islands of Washington state many times in my life. Each time, I go to the San Juan Island National Historic Park. Most people don’t know that at one time, both the British and the U.S. laid claims to this area. They actually cohabited there. The National Historic Park preserves buildings and a cemetery from both the American and British military camps.

During our recent vacation, we stayed on Orcas Island. The National Historic Park is on San Juan Island. There is an inter-island ferry that runs a few times per day between the main San Juan Islands. It is an archipelago that has over 120 named islands, four of which are accessible by the Washington State Ferry system, the largest passenger and automobile carrying ferry system in the U.S. We took the ferry to San Juan Island twice, the first time for our sea kayaking adventure and the second time to visit my Seattle friend, Nancy who happened to be vacationing on San Juan Island during the same week we were on Orcas.

The original plan was for us to get to San Juan a few hours earlier than we were expected at Nancy’s place so that we could explore. In particular, I wanted to go on the same hike we did three years ago, when I found lady’s slipper orchids in the WILD. (I had long heard of this native orchid and never seen one.)

Alas, I was unable to convince my people to get up early enough to get to a ferry that would get us to San Juan in time to explore before our dinner plans with Nancy. I even quoted the impressive statistics about our state ferry system and all I heard were snores. So we arrived on San Juan Island with only about 20 minutes of exploration time.

However, we were able to visit the National Historic Park and learn of what I call “The Bay of Pig“, the stand off between the British and American troops during the Civil War Era when my fair state was called the “Oregon Territories”.

I will tell the story in the photographs I took during that solemn 10 minutes we had at the park.

See, I told you that this was Civil War Era. Look at the uniforms!

See, I told you that this was Civil War Era. Look at the uniforms!

 

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Brink of War!!!!
An American shoots a British pig! Threats of strongly worded letters to the British governor to kick out the Americans are issued, “for you Americans are a nuisance on the Island and have no business here and I shall write Mr. Douglas and have you removed.”

Ooh, it's the English military building, now with an AMERICAN flag. Take that pig-lovers!

Ooh, it’s the English military building, now with an AMERICAN flag. Take that pig-lovers!

 

 

Who are we kidding? Do you really think the English and the U.S. would go to war over a pig? With a view like this? Peace prevails!

Who are we kidding? Do you really think the English and the U.S. would go to war over a pig? With a view like this? Peace prevails!

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Oh I’ve been on vacation and I am back. I missed you.  Mwah, mwah, mwah!

I had a marvelous time-relaxing, beautiful, restorative, and sunny!

I read two whole books, which is a big deal since cancer treatment induced stressed had made a pass time I used to take for granted, very difficult to do.

And I can listen to music again while driving! That’s a kind of multi-tasking that I have not been able to do for years.

Thank you wonderful San Juan Islands in northern Washington. I am so glad that you are not too terribly far away. We will be back!

 

 

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This post is from 4/11/13. It’s perhaps one of the silliest things I’ve ever written. But I like silly so that’s okay. Silly has gotten me far in life. A hidden meaning of this post is my great love for my husband. Soylent Green is a film that I would NEVER have seen if I had not married a man who adores cheesy low budget cinema and begged me to watch it with him. (He had already seen it but he wanted me to see it.) Actually, watching a movie was one of our first dates. He asked me if I wanted to join he and his roommate in watching Terror in the Aisles, a compilation of scenes from horror films. I HATE HORROR FILMS. I MEAN I REALLY HATE THEM BECAUSE THEY TERRIFY ME! But I had already fallen in love with John, which was not yet reciprocated. This was my chance to impress. I would gut my way through it. We got to the scene where Cujo’s face exploded and I started screaming, “Turn it off, turn it off, turn it off!!!!!!!!!!” Not our best date but he never tried to get me to watch horror again. But he did get me to see Soylent Green.

 

I finally got around to making the very healthy chia pudding recipe I posted from my dear friend, Mike, who practices Chinese medicine in New York City. Helen of My Lymph Node Transplant had made it a few days earlier and kindly noted that it was a bit on the bland side, so she had added extra dates to it. At that point Helen declared it, “very nice”. So I doubled the dates. I also ended up roasting my raw cashews after my husband reminded me that he is allergic to raw nuts. I also substituted olive oil for coconut oil. I couldn’t find the latter and I suspect my daughter has absconded with it to use as wax for some project she is doing in her room, perhaps making a surf board out of a tree branch or something. (I exaggerate her mad scientist shenanigans only slightly. Only this morning, I found a seafood fork in the shower.)

After I blended the pudding in the my food processor, I gave it a sniff. It had a pleasant, nutty aroma. The appearance is a nutty tan color. I did not think it looked bad. However, my husband, who will eat ANYTHING, wouldn’t even try a bite. I ate a little spoonful and it tasted good and the texture was similar to tapioca pudding, just as Mike had described in his introduction to the recipe. Wait, a minute. I just remembered something. I don’t like tapioca pudding because of the texture. Actually, I find the texture to be somewhat disgusting. Did I think the fact that this pudding has healthy ingredients was going to change this for me? Aaaah! I have become my grandmother. Unlike the stereotypical expectations of a first generation Italian immigrant, my nonna was a pretty lousy cook. I remember how incredulous she was when her soups didn’t turn out tasty. She would say, “But I put a whole stick of good butter in it and a wedge of good cheese.” She thought the quality of the ingredient trumped all. And grandma, why did you put all of that butter in the soup. Yuck! (My mother has read this post and believes I may have confused her mother with Paula Deen, the famous butter loving chef.)

So, I took all of this time and energy, not to mention the expense of the very healthy ingredients and ended up with Soylent Green! You don’t know what soylent green is? It’s the “plankton based” food that people had to eat in the dystopian future sci-fi movie of 1973 starring Charlton Heston. You see the world had ruined the environment and was running out of food. Charlton played a rugged and “sexy” cop whose wardrobe looked like a mash-up of Oliver Twist and Mork of Mork and Mindy. The masses in this society had to eat processed “plankton” crackers. But as Charlton learns by the end of the movie, there’s no plankton. “Soylent Green, it’s people, it’s people!”

Okay, so my initial batch of chia pudding reminded me of a film about cannibal crackers. That is not a good start. But I had put this much time into it and put lots of good ingredients in. So, like Katie Torlai before me, I started combining it with stuff. I added a couple of tablespoons of pudding to 2 tablespoons plain Greek yogurt, 2 tablespoons flax seed meal, and 3/4 of a peeled apple, sliced into small chunks. This concoction was to be my breakfast, which I have adopted as my “medicinal meal”, that is the way I get 2 tablespoons of flax seed meal into my diet each day. Consequently, my expectations for breakfast are low.

As I mixed up my small vat of chunky, seedy, goo, the appearance points for the dish dropped from 1/4 of a star to zero stars. It looked really unappealing. I took a taste, fully expecting to exclaim, “Soylent Green, it’s chia, it’s chunky, yogurty, seedy chia!”

To my surprise, the added ingredients actually improved the dish’s texture score from 0 stars to 1 star. It no longer reminded me of the goo from badly cooked okra. The flavor rating was bumped up to 1 1/2 stars.

Ding, ding, ding! Marginally palatable breakfast is served!

Photo from Wikipedia

I just offered Charlton a spoonful of pudding. Coward!!!!
Photo from Wikipedia

P.S. I almost forgot that it is Health Activist Writers’ Challenge month. Today, my health activist sign reads as follows:

You are what you eat, especially if you live in a dystopian future complete with Soylent Green as the only food option.

This post is from 4/6/13. I had been home for nearly a month following my TRAM surgery. I was bored.  I was trying to do a daily post following the Health Activist Writers’ Month Challenge. I decided to do it before I read the writing prompts. I didn’t like them. But I appreciated the purpose of the challenge and tried to give include some kind of health related message in each post.

 

For today’s Health Activist Writers’ challenge post, I have a challenge for YOU.

I challenge you to join the WRF, the World Resting Federation. Yes, you read right, the World Resting Federation. Yeah, we get confused with another world federation. We have a similar name plus we also wear really cool costumes and have cool names. My resting name is Googly Eyes. We also engage in bouts to see who is the hardest rester. I am able to use the mesmerizing power of my cattywampus bosoms to render my opponents wide-eyed while I catch some major zz’s.

Are you ready to rest with the best?

Come see my next match.

It’s on Sunday, Sunday, Sunday!

Limited edition commemorative pj’s will be on sale.

smiley t shirt small

I have been meaning to write a post about the impact of the whole cancer experience (stress, treatment, side effects, etc) on my cognition. It has not been pretty. This is one of the reasons I have so many errors in my posts. (The other reason is that I still don’t understand proper comma usage.) In reading back through my posts, I realize that I’ve written about this with some frequency.

 

2/25/13: L’eggo my Ergo!

Just as in the commercials for Eggo waffles, someone keeps trying to take something that’s mine. That someone is cancer stress of course. Stress has taken my “ergo”. As I told my husband yesterday, my brain still holds facts (not as many as before) but what is a bigger loss is that I am so infrequently unable to integrate the facts into a conclusion.

Here’s a fictional example to illustrate my point:

“Hmm, I have a patient tomorrow from 1:30 to 2:30 in my office. I have another meeting at 2:30 at Random Elementary School. Since Random Elementary is not my office and I can’t be in two places at the same time, I need to reschedule one of my meetings.”

Here’s how it goes now:

“Hmm, I have a patient tomorrow from 1:30 to 2:30 in my office. I have another meeting at 2:30 at Random Elementary School. I wonder if I have any new email?”

Yes, fortunately, the above was a fictional example. I did not actually schedule myself this way. But I have a jumble of facts in my head at any one time and they are just noise when I can’t make meaning from them. I’ve made lots of other mistakes. With friends and family, I make a lot of comments along the lines of, “Oh yeah” but several minutes to days after I should have made the connection. A couple of weekends ago, my mom mentioned that she was going to go visit her friend at a rehab facility. I understood what she said. I was even aware that the rehab facility is not only in my city but about two miles from my house. I even understood that my parents live in another town. I like my parents. A few days later I told my mom, “Oh yeah, when you were visiting June, I should have invited you over for a visit afterwards.”

Yes, I should have but stupid cancer took my ergo.

L’eggo my ergo!

 

3/28/13: Like ball bearings in the back of an empty moving van

I have so many thoughts, meaningful ones, and I just can’t get them organized into a post. Boo, brain! Oh, I take that back. Brain, you’ve been through a lot and it’s okay for you to take a rest. Remember when this happened after our last major surgery, the mastectomy? Other body parts need a lot more energy now for healing. Frontal lobes, you are low on the priority list right now. I’ve had a very expensive and extensive stabbing by a highly trained surgeon. Parts were rearranged. My spare tire was made into a headlight. It’s only natural that there would be less energy for thoughts other than self-preserving ones, like “Hey, Self, remember no drunken table dancing until six weeks past surgery!”

I have the ingredients for a meaningful, uplifting, and moving post but neither a bowl nor spoon by which I can mix them into blog magic.

This reminds me of something. I remember when I lived in North Carolina, there was column in the local paper that was meant to be a place holder. However, the real article never made it to the published edition of the paper. So there was a column that read something along the lines of, “This article will be of interest to a wide variety of readers, blah, blah, blah.”

So until I can get my ball bearing thoughts organized, here’s a placeholder:

This blog post will be so absorbing, humorous, and meaningful that each reader will be ever happy and ever healthy. And neither the reader, the reader’s children, or the reader’s children’s children, will ever again experience being stuck in traffic. Finally, drunken table dancing will always result in only positive consequences.

You’re welcome.

One of the ball bearings that would have made your life perfect.
One of the ball bearings that would have made your life perfect.

 

This post is from 1/31/13. Now that I’ve complained about my kin’s untidy habits, I’m putting up a repeat of post in which I complain about Hubby’s subclinical hypochrondria. Girly has it, too. Interestingly, it has improved for both of them over the last six months. Hmm…

Yesterday, my hubby complained of being hot and not feeling well. I thought that perhaps he had caught menopause from me and was having hot flashes. Given that I contracted menopause from a hypodermic needle (full of Lupron), it makes sense if you think about it. Today, he feels much better.

As a former university researcher, I conclude that menopause in males is a 24 hour condition. I think I will write a paper on this and submit it to the Journal of Polymorphous Perversity. (See an example of one of their premier articles, Oral Sadism and the Vegetarian Personality.)

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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