Archives for posts with tag: Breast Cancer

April is the Health Activist Writers’ Month Challenge to write 30 health related posts in 30 days. Today’s post reflects my taking on this challenge of not only posting 30 health-related items in 30 days but to incorporate some activism into my blog.

Last spring, like many younger than average breast cancer patients, I had my blood drawn and sent to Myriad Laboratories for genetic testing. The purpose of the test was to determine whether my BRCA 1 or BRCA 2 genes were mutated. As most of you know, BRCA 1 and 2 protect against breast and ovarian cancer, so if one or more of them are mutated, you lose some of that protection. One of them protects men against prostate cancer. My understanding is that although most breast cancer is not due to BRCA mutations and that only an estimated 5% of breast cancers are believed to be genetic, the risk of breast cancer for women with 1 or more of the mutations is 90% and the risk of ovarian cancer is 40%. Furthermore, BRCA 1 and 2 mutations are highly heritable.

Fortunately, I did not have either genetic mutation and further, there is a relatively low incidence of breast cancer in my extended family history. But the stakes for individuals with these mutations is high. Women who test positively for the mutation/s are often advised to 1) get a bilateral mastectomy or get annual MRI’s and diagnostic mammograms and 2) have their ovaries removed. (The reasoning being that ovarian cancer is difficult to detect until it is advanced.) These recommendations are also often given to women who test positive for the genes but who do not have breast cancer.

BRCA testing is very expensive and is not covered by all insurance companies. Further, many people in this country do not have adequate health insurance. My wonderful genetics counselor told me that there is only one lab in the country, Myriad Labs, that does this testing. I thought this was curious but didn’t give it much thought at the time because I was busy freaking out about having just been told that I had breast cancer.

The reason that Myriad is the only laboratory that performs the tests is because the U.S. Patent Office granted them a patent on the BRCA 1 and BRCA 2 genes! So a company has patented human genes! They are the only lab that is allowed to do the test. I’m no patent attorney, but this is more than a little alarming to me. What does it mean to patent a gene? A gene is an actual physical thing. If old college and grad school memories are correct, genes are just particular sequences of amino acids that have a particular location on a chromosome. (Okay, I just looked it up and it is the sequence of nucleotides, not amino acids, and I’m not going to start over because my brain just exploded.) I thought patents deal with intellectual property. What is the intellectual property at stake here? Do they own the right to examine and glean information from these particular genes? I’m confused.

So whose DNA is it, anyway? This question, in respect to the BRCA 1 and 2 tests, is being examined by the U.S. Supreme Court starting on April 15th. I for one, will be following this decision closely.

I first learned about this issue through my involvement with the Empowered Doctor website. Their article can be found here. Another good article can be found on the New York Times Book Review website.

Hey Myriad, if Watson and Crick could share credit for their independent discoveries of DNA, why can't you share with other labs? (Image from Wikipedia)

Hey Myriad, if Watson and Crick could share credit for their independent discoveries of DNA, why can’t you share with other labs? (Image from Wikipedia)

My recovery continues, though at a slower pace. Nonetheless, I’ve passed a few milestones in the last week:

1) I tried on the swim suit I bought awhile back and not only does it fit, but I look normal in the chest area. Woo hoo!

2) The miracle lounger went back to the medical supply company this morning. I still need to spend a lot of time sleeping as well as most of the day off of my feet but sleeping in bed has gotten comfortable again and our couch is again comfy. I miss my tray table, though. My laptop computer is warm and although it is comfortably resting on my legs right now, I expect it will cause some hot flashes later in the day.

3) I averaged 3 miles a day of walking, for seven days straight! Yesterday I was beat so I stayed in. I didn’t make myself feel guilty about it but instead reminded myself that walking every day is above my health goals. I started walking every day instead of 5 times a week because it felt good and I wanted to do it. So yesterday I was mindful that my body was not up to doing a “bonus round” of exercising.

4) On Sunday, I cooked for the first time since the surgery. I wanted to bring something to my brother and sister-in-law’s for Easter dinner. I roasted some asparagus. It took me 15 minutes, including washing, trimming, and cooking. They were delicious.

 

Okay, this post is not really about the versatility of the chia seed, although I can think of five uses for it off of the top of my head. Prior to becoming a cancer patient, I could only think of two, the original “Chia Pet” and the take off from Saturday Night Live, when they had Kevin Nealon plant chia seeds on his head to replace hair loss.

The I suspect not-so-cranky, Cranky of “Grandma Says” has nominated me for the Versatile Blogger Award.

versatileblogger111

Thanks, Not-So-Cranky! Many of you out there are familiar with these nominations. The nomination is the award and the process works likes the kindest chain letter you will ever receive! The rules are to post the graphic of the award, for me to tell some random facts about myself, and to nominate 15 other blogs for the award.

As you may also know, I try to follow the spirit rather than the letter of the law when it comes to these awards, though this time I actually posted the graphic. It’s very easy. I’m not sure why I haven’t done it previously.

As for the random facts, I did that once but at this point, how many more factoids can I really give you and have them be a surprise? I guess I will give it a try but just one fact. I need to save some material for future blog posts.

1) I love autobiographies and read about all kinds of people, from Malcom X, to gardeners, to chefs, to musicians, to world travelers, to actors, to comedians, to the understudy for Elphaba in Wicked, to RuPaul. People, I even read Andre Agassi’s autobiography and I’m not even a tennis fan. And by the way, it’s a pretty absorbing read.

Instead of nominating 15 bloggers, I am going to feature a blog, which is in line with my quest for health and healing. At the risk of appearing to be a creepy stalker, I am again highlighting my friend, Mike. (If you are reading this, Mike, I am not a creepy stalker.)

As you know, I changed my diet to improve my general health as well as to eat things that are linked to a reduced risk of cancer. I have also extended my health practices beyond traditional medicine. I like to use as many sources as I can. I see the usual suspects, onco surgeon, medical oncologist, internist, but I also see a licensed massage therapist, psychologist, and a naturopathic physician who is certified in cancer treatment.

I am about to embark on a journey to Chinese medicine. I am particularly interested in acupuncture. My most immediate concern is doing something about my stupid hot flashes. I also know that there are other potential positive applications of acupuncture to be explored.

Now some of you might be thinking, “Elizabeth, don’t you have a Ph.D.? Aren’t you always talking about how you were an academic researcher for so many years? Why have you been doing all of this alternative stuff?”

First, my own philosophy fits more into the “integrative” model than “alternative” model. Integrative healthcare is inclusive. Even mainstream Western medicine is getting increasingly integrated. At the Swedish Cancer Institute, there are naturopaths and licensed massage therapists. There are classes on mindfulness meditation and diet.

I am also glad that more non-traditional therapies are being researched using western research strategies. I very much respect that there are other ways of supporting the efficacy of a treatment. Practitioners of Chinese medicine, for example, often point to thousands of years of accumulated clinical evidence. However, the investigative tools that I have at my disposal for evaluating potential treatments are western based. In other words, I am in a better position to critically evaluate research articles than to evaluate evidence gleaned through other methods. I don’t think any reputable healthcare provider is going to discourage patients from being careful about how they treat their bodies, especially cancer patients. There are people who prey on cancer patients. There are also good hearted people who do not have the skills or expertise to responsibly provide healthcare advice but they do so, nonetheless. I am very leery of folks who think something is harmless just because it is “natural” or because it is delivered by a non-traditional provider, who must be superior to a traditional provider because the latter group are bad.

I would like to re-introduce you to my friend, Michael Ishii, of Stonewell Acupuncture. He practices Chinese medicine in New York City. He also writes an informative health blog. Some of his posts are recipes, one of which, I’ve cut and pasted below for a nutritious gluten-free chia dessert. See, I told you that the chia seed figured in this post. Chia is also used in some gluten-free bread recipes as an alternative dough binder to xanthum or guar gums. I have not yet tried this out but plan to once I used up my “economy” (“economy” being relative as gluten-free ingredients tend to be pricey) sized bag of xanthum gum.

Try it out!

Vegan Chia Pudding: Delicious Super Healthy Treat!

Vegan Chia Pudding

OK, remember the Chia Pet TV commericals?
Who would have thought that Chia seeds would be a superfood? Or so delicious!

Chia is a plant that is native to Mexico and Central America. It was cultivated by both the Aztecs and the Mayans who highly valued this food, and the word “Chia” actually means “strength” in Mayan.

Chia seeds are a source of complete proteins, they are loaded with omega 3 fatty acids, are rich in calcium, are a terrific source of anti-oxidants and have a low glycemic sugar index.

The seeds, when soaked in a liquid, swell up and become like little miniature pearls of gelatin. They remind me of tapioca.
They are high in both soluble and non-soluble fibers and hence aid digestion.

Since this food contains no gluten, they make a good staple food for those with celiac or who have gluten sensitivity.

My colleague Anca Marinescu, L.Ac., shared with me this delicious recipe for Vegan Chia Pudding.
From a Chinese dietary viewpoint, this pudding is a great Blood builder and will nourish Yin. It contains food that will help you support your circulatory system, strengthen your digestion, regulate your bowels, and support immunity.  The spices warm and support the Spleen and will open and course the meridians while supporting the Kidneys.

Go ahead, try this delicious and healthy dessert!

 Ingredients for Vegan Chia Pudding

Vegan Chia Pudding

3 Tbsp of Chia seeds
2 cups of almond milk (or soy or rice, cashew, hemp etc)
1 cup raw cashews soaked in water for 2 hours and liquid discarded
5 dates roughly chopped
2 tbsp virgin coconut oil
1 tbsp vanilla extract
2 tbsp dried coconut flakes (optional)
1 pinch of pumpkin pie spice
1 pinch of freshly grated nutmeg

Soak the Chia seeds in the almond milk for 2 hours or overnight.
Soak the raw cashews in water for 2 hours and discard liquid.
Combine all ingredients in a food processor and puree until smooth and creamy.
Chill.
Serve garnished with more coconut flakes and a sprinkle of pumpkin spice or try a garnish of fresh fruits or nuts..

makes 6 servings.

John and I went for a beautiful walk this morning. I am back to walking 3 miles a day, just a lot more slowly than usual. It’s my favorite part of the day, which more than makes up for the fact that I end up spending the rest of the day sitting because I wore out my feet. Actually, it’s my abdomen that is bothered by standing. There’s a lot of muscle work that goes into supporting my gut even though there’s a lot less of it than there was before surgery.

For those of you who celebrate it, I wish you a very Happy Easter. For those of you who don’t, I wish you a very Happy Sunday. For my blog buddies in Australia and New Zealand, I wish you a Happy Monday!

A scene from our walk, the Olympic Mountains, Puget Sound, and islands.

A scene from our walk, the Olympic Mountains, Puget Sound, the Olympic Peninsula, and assorted islands. The mountains are not this blurry in real life. This is why a smart phone is not the camera of choice for a professional photographer.

I have so many thoughts, meaningful ones, and I just can’t get them organized into a post. Boo, brain! Oh, I take that back. Brain, you’ve been through a lot and it’s okay for you to take a rest. Remember when this happened after our last major surgery, the mastectomy? Other body parts need a lot more energy now for healing. Frontal lobes, you are low on the priority list right now. I’ve had a very expensive and extensive stabbing by a highly trained surgeon. Parts were rearranged. My spare tire was made into a headlight. It’s only natural that there would be less energy for thoughts other than self-preserving ones, like “Hey, Self, remember no drunken table dancing until six weeks past surgery!”

I have the ingredients for a meaningful, uplifting, and moving post but neither a bowl nor spoon by which I can mix them into blog magic.

This reminds me of something. I remember when I lived in North Carolina, there was column in the local paper that was meant to be a place holder. However, the real article never made it to the published edition of the paper. So there was a column that read something along the lines of, “This article will be of interest to a wide variety of readers, blah, blah, blah.”

So until I can get my ball bearing thoughts organized, here’s a placeholder:

This blog post will be so absorbing, humorous, and meaningful that each reader will be ever happy and ever healthy. And neither the reader, the reader’s children, or the reader’s children’s children, will ever again experience being stuck in traffic. Finally, drunken table dancing will always result in only positive consequences.

You’re welcome.

One of the ball bearings that would have made your life perfect.

One of the ball bearings that would have made your life perfect.

After two weeks of single parenting and taking care of me, my husband is worn out. He is taking his second sick day this week. Poor guy.

And don’t worry, I’m not going to try to be a dynamo and take over the way I did after my mastectomy. I need rest. After going to Zoey’s concert and walking two miles a couple of days later, I needed to sit on my butt and/or nap for the next day and a half.

I feel pretty good today so I’m going to get out of the miracle lounger for awhile. The forecast for this afternoon is 60 degrees! I think I will take a walk.

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I can’t figure out what to wear to my daughter’s concert! What will I do?

Also, I’ve given myself a series of hot flashes from trying on so many dresses!

And with all of these hot flashes, how will I do my hair tonight? I was planning to straighten it with a flat iron it for the first time in months. (Remember, I’ve been avoiding being around hot things.) And I ran out of my curly hair styling product. I’m not driving yet and it doesn’t quite seem justified to ask my husband to interrupt his deck building project to go get it when the only one who would notice a difference is me.

I think I will take a little nap. In the mean time, let’s have a little vote on the dresses. Here are pictures of the contenders.

Dress A-my go-go boots dress that was involved in wax-removal-gate(From 6pm.com)

Dress A-my go-go boots dress that was involved in wax-removal-gate
(From 6pm.com)

Dress B. This one was involved in "Gee honey, that dress makes your stomach-look big-gate." I think it's cute and "he who should not be named" made that remark before surgery. (From 6pm.com)

Dress B. This one was involved in “Gee honey, that dress makes your stomach-look big-gate.” I think it’s cute and “he who should not be named” made that remark before surgery. (From 6pm.com)

Dress C has inspired no controversy.

Dress C has inspired no controversy. (Used dress purchased from Ebay)

Dress D was a big hit at another recent soiree.

Dress D was a big hit at another recent soiree. (Another re-used dress acquired from Ebay)

Dress E has also inspired no controversy probably because it arrived in the mail today and "you know who" has not seen it.

Dress E has also inspired no controversy probably because it arrived in the mail today and “you know who” has not seen it. (From Ebay.com)

Dress F: This was the dress I was wearing when I was super pumped (literally) about having cleavage again, not noticing that I had so much as to indicate a medical problem! The version of the dress that I have is in blues and greens.

Dress F: This was the dress I was wearing when I was super pumped (literally) about having cleavage again, not noticing that I had so much as to indicate a medical problem! The version of the dress that I have is in blues and greens. (From Sierratradingpost.com)

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I had a check-up with Dr. Welk yesterday to get my stitches taken out of my belly button. (Oh yeah, I neglected to mention that a consequence of removing a lot of abdominal tissue when creating the TRAM flap, means that the belly button needs to be attached to new skin and fat. So, my belly button is in the same place, but it’s been stitched to a whole new abdominal environment.)

Everything continues to look excellent and Dr. Welk told me that he doesn’t need to see me for another month. John and I had a number of questions, which basically boiled down to “What would Elizabeth have to do to completely wreck the TRAM surgery and need an even bigger surgery to fix it?” And no, we are not paranoid, Dr. Welk had told us of this possibility.

So here’s the “don’t” list:

1) No bathing or walking of really large dogs, who may run away unexpectedly, while you are still holding on to them.

2) No drunken table dancing.

My weekend plans are ruined.

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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