Archives for posts with tag: Coping with cancer

This post is from 7/4/12, right after the pathology report came back from my first lumpectomy and I learned that the margins weren’t clear and I needed another surgery. Until the surgical part of treatment was done the rest of the treatment plan could not be solidified. So even though I’d been a cancer patient for over a month, I still didn’t know whether I would need to have chemotherapy or radiation treatment. As it turned out, I had two more surgeries to go and my treatment plan would not be formalized until August.

 

Yesterday, I saw a young woman waiting for the elevator at the Swedish Cancer Institute. She was probably in her late 30’s. She wore well-fitting jeans (not tight, just right), a top, and a cute little hat on top of her nearly bald head. I thought, “She’s rockin’ that look.”

I smiled at her, said “hi”, and we both got on the elevator. She saw my Swedish tote bag, which identified my membership in the cancer club. She remarked that she had carried hers around for months but it made her feel like a nerd.  I joked that I called it “my big ole’ bag o’ cancer.” It ended up that we were both headed to the surgery clinic. We chatted a bit more as we waited to check in. She seemed smart and friendly. After we checked in, I joined John who was already in the waiting room and she sat in a different section of the room.

After several minutes, she walked over and said, “I hate waiting. Would you like to chat?” We introduced ourselves and talked for a few minutes. Jen had also just gotten surgery but this was her second surgery. She had also just completed a round of chemotherapy and it was likely that she would complete another one. I wish I’d gotten a chance to talk with her more but I was called in for my appointment soon after she joined us.

Jen looks really young and she’s had a lot of treatment in the last 7 months (she was diagnosed in December). Despite these sobering facts, I was reassured by her. Two of my biggest concerns about cancer treatment are having energy and if I should ever need chemotherapy, changing the way I interact with the world because I would be an obviously ill person. But Jen had enough energy yesterday morning to take care in putting together an outfit, which she rocked. (I know that she had just finished chemotherapy so she probably felt worse earlier but still.) She also engaged with me, a stranger in an upbeat way. I’m sure she gets lots of looks and has the frequent dichotomy of experiences where people either avert their gaze and ignore you or approach you and talk about your illness even though they are a stranger. But still, her presence was reassuring.

If I don’t see you again, Jen keep rocking the hat and I wish you a speedy recovery from this point on.

I started walking daily last fall. I started tracking my walks on a phone application on December 2nd.

Since that time, I’ve walked over 200 miles and during the coldest and rainiest time of the year.

So that’s over 200 miles on my journey of health. Hooray!

In case you missed this picture of my glamorous walking outfit from an earlier post. Today I am wearing a light weight teal rain coat and striped socks!

In case you missed this picture of my glamorous walking outfit from an earlier post. Today I am wearing a light weight teal rain coat and striped socks!

Okay, people think about cancer and an immediate thought is often hair loss. Fortunately, I did not have to endure chemo and all of its yucky side effects.

This does not, however, mean that I was spared from my cancer treatment having any impact on my hair. As I have over-shared so frequently in the past, I take hormone blocking medication because my breast cancer grew in response to lady chemicals, estrogen and progesterone.

I take Lupron, which “shut down my ovaries” by disrupting the signal between my pituitary gland and my ovaries. So my ovaries do not make progesterone and estrogen.

Other parts of the body make estrogen, though, for example, adipose tissue (fat and other stuff). This is one of the reasons that being overweight is a risk factor for breast cancer. This is why I walk three miles a day and eat the way I do. I was overweight and want to stay a healthy weight.  I take another medication, Tamoxifen, that works by preventing estrogen from binding to cells in the body.

I have surmised that I have less estrogen in my body than a menopausal woman because my estrogen is getting knocked out two ways. I may be wrong about that but lets just say that my level of female hormones is well below average for a woman, even a woman of my age.

The first change I noticed was the introduction of hot flashes. Another change was that I’ve been getting hairier. At first I noticed more hair above my lip. Last week, I noticed a downy fuzz of barely visible hair on my cheeks and jaw. The last time I checked, I was not a 13 year-old boy.

Aaaaaaaaah! I’m the bearded lady!

But the silver lining is that just as I am a good looking breast cancer patient (with so many of us ladies having to get chemo, it’s an easy bar to clear), I’m pretty good-looking for a bearded lady.

And maybe I can make a little extra circus moolah on the side to help pay the medical bills.

Another, good-looking bearded lady, Annie Jones toured with Barnum and Baily Circus. From Wikipedia http://en.wikipedia.org/wiki/Bearded_lady

Another, good-looking bearded lady, Annie Jones toured with Barnum and Baily Circus. From Wikipedia http://en.wikipedia.org/wiki/Bearded_lady

 

This post is from 6/28/12, one day after my first surgery, which was a lumpectomy. I’ve had five additional surgeries since this time and John and I are still trying to work out the rhythm of the caretaker/patient dance. We are getting there and planning for my reconstructive surgery in March.

 

So, I am doing pretty well today, one day after surgery. My pain rating (on a scale of 0-10) is about about 1-2. John says he is running out of things to do around the house and noted that I don’t seem to need much besides a steady supply of decaf coffee. He asked my plans for the day. Plans? Sitting on my butt is my plan. Perhaps I confused him when I unloaded the dishwasher this morning with my left hand. (The surgery was on the right side.) Yes, I know you are all yelling at me in your heads as you read this. I am following the directions given to me by my nurse! I am taking it easy.

Anyway, John asked me “Do you want to go to a movie today. If not, I can go without you.”

“And leave me home alone?”

“Well, you haven’t really needed me much.”

“What if I get an infection? I’m not cool with you leaving today and I don’t want to go to a movie. I think it would be uncomfortable to sit in a theater.”

John did not need much convincing to stay home. I just think he needs to be needed. People just being around is a lot of help. A hard part of this process is that I don’t know how much help I will need and what kind I will need. I know that’s hard for John, too.

I promise to stay away from the dishwasher for the rest of the day.

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Yesterday, my hubby complained of being hot and not feeling well. I thought that perhaps he had caught menopause from me and was having hot flashes. Given that I caught menopause from a hypodermic needle (full of Lupron), it makes sense if you think about it. Today, he feels much better.

As a former university researcher, I conclude that menopause in males is a 24 hour condition. I think I will write a paper on this and submit it to the Journal of Polymorphous Perversity. (See an example of one of their premier articles, Oral Sadism and the Vegetarian Personality.)

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They’re back!

The hot flashes, that is. Well, they didn’t really go away entirely but they had settled down to a dull roar of 2-3 a day instead of 12-15 a day.

I got my three month Lupron shot last Thursday. This usually causes a few days of increased hot flashes.

It’s still not up to the 12-15/day rate, and for this I am grateful.

I’m trying extra hard not to think about the possibility of going through menopause all over again after I come off of Lupron in a couple of years. Not to mention the prospect of having cycles again! Don’t take away one of the few bonuses of breast cancer treatment!

I know, inconvenience is the kind of problem to have. But I’m going to let myself whine about this just a little bit.

Okay, I’m done whining. I feel better now. I’m going to go make a meatloaf, complete with gluten free bread crumbs.

My grandma took a lot of nutritional supplements and thought a lot about nutrition. She worked at a health food store, Ames’ Nutrition, until she was about 80. In some respects, she was far ahead of her time, for example her concern about cholesterol. Other times, her beliefs and health practices struck me as eccentric and at times, down right illogical. Like the time she asked for a whole wheat bun at Burger King. Maybe she thought by requesting whole wheat, it would help the fast food chain reconsider their offerings. Okay, now that doesn’t sound so illogical. A better example would be when she put honey in my grandpa’s eyes to help his cataracts. Grandma always carried a large purse. When we had some kind of ailment, she often had some remedy in there. She always had papaya enzyme tablets in there, in case someone had indigestion.

My father-in-law was visiting recently. He got a look at my pill box and was impressed by the size of the daily compartments. After many years of just taking vitamin D and calcium, I am now taking A LOT of supplements. I laugh at myself and think, “I am one of those crazy supplement people. One of the pod people.” Cancer has made me more like my grandmother than I had expected to be.

So what supplements are in the enormous pockets of my pill organizer, you ask? (Everything but the multi-vitamin are what my naturopath has recommended for me.)
Vitamin D (breast cancer prevention)
Vitamin E (tissue healing)
Fish oil (cancer prevention)
COQ10 (for cardiac health)
Bone Strength (combo of calcium and other goodies for the bones)
Zyflamend (combo of turmeric, ginger, and other anti-inflammatories for cancer prevention)
B12 to combat fatigue
B Complex for stress
GLA (gamma-linolenic acid) cancer prevention and skin health
Magnesium Citrate-for sleep and to keep me regular ’cause the 2 TB flax meal is not enough for a lady on hormone blockers
Multiple Vitamin (You know, just in case I missed anything.)

I have a definite sense of style. When I was a young girl, most of my clothes were used, hand-me-downs from my brothers or from the local used clothing store. Now it is kind of cool to wear second hand clothes. Back then, it was definitely not cool to do so. And I had interesting taste when I was younger, to put it mildly. When I was 10, I saw these shoes at the second hand store that I really wanted. They were flat and brightly colored. I know that green was one of the colors and there was another one, too. I was happily wearing them at school when one of the older kids recognized what they were. “Hey, she’s wearing bowling shoes!” And upon seeing the $1.49 price marked on the sole in grease pencil, “And they’re used!”

As I got older, my style got more sophisticated. As an adult, I dress pretty nicely for work. I am embarrassed to admit how much I like to shop for dresses and shoes. I hate “going shopping” though and buy nearly all of my clothes online at discount sites.

When I’m not at the office, however, I am much more about “function” than “form.” This is particularly true of the outfit I wear for my daily 3 mile long walks. And as a resident of Seattle, I have nearly every inch of me covered in Gore-Tex. My neighbor, Paula, who works for the famous outdoor recreation outfitters, REI, makes fun of my outfit. I don’t know, I think it is cat walk ready. Maybe I’ll get hired to do a Cabela’s ad to be featured in Field and Stream.

For the breast cancer survivor on the go. The latest in waterproof walking attire, complete with hot flash friendly layering.

For the breast cancer survivor on the go. The latest in waterproof walking attire, complete with hot flash friendly layering.

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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