As a person with “no evidence of disease”, I am grateful. I am also grateful that I continue to heal physically, emotionally, spiritually, and yes, cognitively. I have written of the attention, concentration, working memory, and organizational difficulties I’ve had since being diagnosed with cancer. (Some people call this “chemo brain” though I didn’t have I.V. chemo.) These difficulties have slowly but surely improved over time. A huge boost came after I completed a cognitive behavioral sleep program and then later, when I took gaba pentin for a few months to reduce my nighttime hot flashes. I have also had improvements through working to reduce my anxiety and grief through my mindfulness practice and personal psychotherapy. Last but not least, writing this blog is one of the most therapeutic endeavors I have ever undertaken. It, of course, has side effects like any therapy in that my posts sometimes worry my mother.
Although a good deal of my energy has returned, I still don’t work full time. I find that it is too hard to maintain my emotional and physical health when I do this so although I sometimes schedule a full time or slightly overtime week, my average is about 80%. Prior to my diagnosis and shortly afterwards (I had to cram my schedule in order to take off time for surgeries), my schedule varied from week to week but I worked up to 150% of what is considered full time.
Despite my reduced hours, I am quite busy. Although most of my day is meaningful and productive, a good portion of my day is being busy for the sake of being busy, doing trivial things that do not fill me up. And some of the trivial things would not be trivial if I stuck with them for more than a couple of minutes. But I spent some part of my day alighting from one activity to another in rapid succession.
I do this less than earlier in my cancer treatment. The main reason back then was fatigue, boredom, and the need for fun. Since I was having trouble with sustained attention, I flitted around lot. Although I have never written as much or as frequently in my life, I stopped reading books. There had been no time in my life since about age 10 or 11 when I was not reading on a daily basis, with some breaks for a few weeks during adulthood, when my stress was at its peak.
I’ve been doing a lot of thinking about accepting the things in my life about which I feel feel, grief, and anger. I know that a common fear for people impacted by cancer is fear of abandonment. My husband worries about losing me. My daughter, although she denies it, worries about it too, I think. She acts very much like other teen girls with whom I’ve worked, who have a mother with a serious disease. I worry about losing my family, through decreased participation in family life if I were to get ill again and through my own transition to death, which may not come any time soon, but will come some day.
I had a epiphany last week. Although I was aware of my own abandonment fears, I realized that I was continuing to give myself busy work to avoid feeling lonely. I have been filling up spaces in my heart and mind with filler. I have too often disengaged from my husband because I associate him with our fear of my cancer as well as the stress we have in parenting.
Since that epiphany, I have made some changes. Trivia is okay but not as a main course. And trivia is much better when enjoyed with a loved one. I also realized that a lot of my life is serious and difficult. I have a serious job as a child/adolescent psychologist. I have personal psychotherapy, our family class on mindfulness and emotion regulation, and couples therapy with my husband. Between my job and my appointments, I spend the majority of my waking hours in a mental health facility. Last Friday in couples therapy, which we have been attending weekly I said, “I want less therapy and more fun. John, I want to spend more time with you having fun.” Our psychologist thought this was a great idea. John agreed, reluctantly, because this scared him. But we’ve been spending more time together. Yesterday, I received a note from a childhood friend. Her husband “out of the blue” told her that he is divorcing her, on the day before their 27th wedding anniversary. This has also reinforced my resolve to continue to work on my relationship with my husband. Too often people live separate, lonely lives, full of activities, suffering in silence.
I am not by nature, a lonely person. Cancer has a way of whittling away at security, even for those of us with “no evidence of disease”. Breast cancer also has a way of striking women at the prime of life in terms of professional and family responsibility. Many of us have full careers, children who are not yet independent, and elderly parents who may need support. It is easy when juggling these balls, to feel fragmented and flittery, to feel engaged with everything but intimately connected with no one, not even with ourselves.
Balance right now means more fun and more depth.
I love how you go deep into the emotional side of things and that your passion for healing and helping others do the same! I’d love to get some advice from you on my blog I recently started. colesworldblog.wordpress.com . Let me know what you think! 😀
Thank you for reading and commenting, Cole. I wish you the very best with your blog! -Elizabeth
Well, said, my friend. I can so entirely relate to this. I, too, have only been able to crawl back to working about 80%, which, in reality, ends up being close to full-time, but 80% of my former paid full-time schedule is all I can handle. I, too, have had to plan more fun, and I have. A few years ago, it was scary to make plans at all. It’s such a long, slow process to climb out of the ditch. Blogging has helped me enormously as well. It cannot be said enough how draining it is to work in healthcare, as you know I do as well, how hard it is to solve other people’s problems for a living. It can be nourishing, but the responsibility can also be indescribable, especially when we are trying to figure out how to solve — or just to identify — our own problems. We can only strive for patience, awareness, and at least as much compassion & insight for ourselves that we direct toward our patients. Much love to you, Elizabeth. It helps me so much to know that you get it. xoxo, Kathi
Kathi, it helps me so much to know that you get it, too! I remember the first time you commented on the extra emotional load that we have as healthcare providers and I thought, “Oh yeah.” I mean, I was acutely aware of this during active treatment but had not really thought of it deeply in this whole “aftermath” phase of things. We see people in pain who want to feel better. Some will improve, some will not, and others will takes peaks, valleys, and times of plateau over a long period of time. Sometimes we don’t know when our patients will be in great distress and it is like walking into a flash flood. And there’s just so much uncertainty in the whole process. Although we may have tools we can use and a larger frame of reference, we don’t know what the future holds.
You keep having fun, lady! Thanks for your friendship. Xoxo.
Such a poignant and honest post, Elizabeth. This disease creates so many layers of emotion, etc. and even if it leaves your body, it has the power to leave so many difficult issues & feelings in its wake. I know you are not alone and I think everyone who has faced or who is facing cancer deals with some or all of what you have been feeling. Myself included. Thank you for opening yourself up & sharing. I’m sure that in doing so, you will help most, if not all, who read your post(s).
My warmest wishes & hugs… xo
Thanks so much for reading and so thoughtfully commenting. I hope you and your children are well. You were one of the women I had in mind when I wrote this post, when cancer strikes when you are a mother of young children. Xoxo.
“Cancer has a way of whittling away at security, even for those of us with “no evidence of disease”. Breast cancer also has a way of striking women at the prime of life in terms of professional and family responsibility. Many of us have full careers, children who are not yet independent, and elderly parents who may need support. It is easy when juggling these balls, to feel fragmented and flittery, to feel engaged with everything but intimately connected with no one, not even with ourselves.”
OMG Elizabeth thank you for so eloquantly articulating what I have been feeling. x
Lisey, although I am glad this connected with you, I am so sorry that any of us have to go through this. You have little kids. That is so hard. Xoxo.
This resonates with me so much. Thank you for this post. I haven’t written in my own blog for some time now. I miss the therapeutic effect it had on me (thank you for reminding me of that). I think I need to get back there.
So much of what you have written here speaks to me right now and has helped me understand more about why I have been feeling the way I have been feeling (which has been pretty miserable, very, very alone and just sad about being the state of my life). This particularly struck a chord with me: “It is easy when juggling these balls, to feel fragmented and flittery, to feel engaged with everything but intimately connected with on one, not even ourselves.”
You have really helped me today. I don’t even quite know how to express just how much, but know that you have and that you have my gratitude.
xo
Lisa
This resonates with me so much. Thank you for this post. I haven’t written in my own blog for some time now. I miss the therapeutic effect it had on me (thank you for reminding me of that). I think I need to get back there.
So much of what you have written here speaks to me right now and has helped me understand more about why I have been feeling the way I have been feeling (which has been pretty miserable, very, very alone and just sad about this being the state of my life). This particularly struck a chord with me: “It is easy when juggling these balls, to feel fragmented and flittery, to feel engaged with everything but intimately connected with on one, not even ourselves.”
You have really helped me today. I don’t even quite know how to express just how much, but know that you have and that you have my gratitude.
xo
Lisa
Lisa, thank YOU for reading and commenting. I expose a lot about myself in my blog and one of the reasons I do so is that not only is it helpful for me but it is helpful for others. I am very gratified by this and it gives the senselessness of the cancer experience a kind of purpose and meaning that is much more positive. I wish you the best in your health.
Great blog. Great comments. Don’t worry about my worries. It doesn’t keep me from enjoying life. I am very proud of you.
Thanks, Mom! That was the perfect reply.
Thank you for sharing this very honest and heartwarming post.
You are so very welcome!