I have been working half-time this week, following what turned out to be two small heart attacks. As I wrote previously, the current working diagnosis is Spontaneous Coronary Artery Dissection (SCAD). It is infrequently diagnosed and mostly seen in women in their 40’s to 50’s, physically fit, and with few or no heart attack risk factors. The cause is unknown. It is possible for dissections to heal so I am taking a number of medications to improve my heart functioning as well as to prevent the formation of blood clots. I have follow-up tests and lots to learn about heart functioning.
This was a shock, to understate things. Just two months ago, my husband and I were in Southeast Asia. We were walking through ruins in extremely hot conditions, just as we’d done when we were in our 20’s, on our honeymoon in Egypt during the summer. During the vacation, I was really pleased by the health of my body and what I was capable of doing. I thought of trips that John and I could take in the future.
Yesterday, I had a mammogram. It was normal. My 5 year “no evidence of disease” anniversary is in two weeks. This is big news that has been upstaged by my heart. In the past, I have compared cancer to a natural disaster. It can happen to anyone, no matter how virtuous. I am re-thinking that metaphor, at least in my experience. My breast cancer was more like a failed safety inspection. The treatment was to prevent a disaster. One of the harder aspects of breast cancer treatment is that it made me feel sick when I hadn’t felt sick. The heart attack was like a natural disaster, a small earthquake followed by an aftershock. They caused damage to my heart. The medications I am taking now actually seem to be making me feel better.
Today, I have no work responsibilities or health care appointments. I am taking care of myself. I am listening to my body. Yesterday, it told me that taking a walk with a friend was a good idea and it was. Today, my body told me to sleep in. It has also told me to spend a lot of time resting on the couch. Finally, it has told me to take pause and check in with my thoughts and feelings.
One thought that passed my mind was, “I’m still healing from the cancer and now I have heart problems.” I felt the urge to cry “foul!” (And it would have been fine if I had.) My next realization is that I have always been healing from multiple wounds.
We are all healing from multiple wounds.
Be kind to yourselves, friends.
Don’t turn away. Keep your gaze on the bandaged place. That’s where the light enters you.
-Jalaluddin Rumi
This is so scary! Thank goodness you are intelligent and will follow the order of those in charge. Many prayers for you and your family.
Thanks, Mom. Like I said, I’ve felt much better with some new medications I’ve been taking for the past several days. I had to stop taking some before because they lowered my blood pressure too much. My pressure has been normal with the new meds.
I’m SO sorry to hear that you had another episode — and now a more serious SCAD diagnosis. Also wish I’d been paying closer attention the last week. I intended to check on you but held off, assuming you needed rest. I trust you feel good about your medical team and their plan for you. Thinking of you and sending all the best of the bests. Will stay in touch.
Lisa, it all happened so fast that you could have blinked and missed it. No worries and thanks for you love and encouragement.
Wow, Elizabeth… I don’t think we ever get used to our body not functioning as it should. It’s such a vulnerable feeling. I love how you ended your post. The Rumi saying is beautiful and so apropos. Be well. xo
The Rumi quote is one I found shortly after my initial breast cancer diagnosis.
I hope that you are doing much better.. just a thought but did you have radiation to the left side of your chest during your cancer treatment .. this too can cause later heart problems??? … it is a shock when we do the right things and our bodies let us down ..take care my friend xxxx
Helen, I am feeling better, though quite fatigued for a good part of the day, which is to be expected I think. I didn’t have radiation treatment at all. There are no specialists in Seattle, either. Only a few in the country. I have some investigating to do.
Ok I could not remember .. it was just that I had seen others with heart side effects after their treatment … i hope you find more answers as it is a concern when you have a health issue that is on going… take care ..i know you will look after yourself xx
[…] about the magnitude of a cancer diagnosis – and it’s lasting side effects – Elizabeth writes of a recent unexpected health issues. See also Stephanie‘s latest post on finishing […]
[…] Elizabeth reaches the five-year with no evidence of disease mark, she is in a reflective mood about the […]