I was walking around my neighborhood the other day, as I do nearly every day. I don’t always take the same route and I don’t always plan it out in advance. But this was a route I’d taken many times. When I am walking, I typically keep my eyes on the trees and the flowers as well as watching out for cars and for uneven pieces of side walk that stick up. (I have tripped many times.)

It was a clear sunny morning. I happened to look up along the horizon. There was the top of Mt. Rainier looming above. I don’t remember ever having seen it on this route. But perhaps, I was not looking at the right time. I have spent 40 of my 49 years living in this part of the world. It is only a 30 minute drive to the house in which I grew up. I have seen Mt. Rainier many many times, thousands of times.

I couldn’t even see the whole mountain. Nonetheless, I gasped and reflexively put my hand to my chest. The mountain itself, though about 100 miles (160 km) away, is incredibly majestic, even in partial view. There is some disagreement, but standing at 14, 409 feet (4392 meters), it is the highest mountain in the U.S. outside of Alaska. Even from my neighborhood in Seattle, I could see the sun glistening on the ice of the glaciers. America, the Beautiful, right in front of me.

I have been working pretty hard lately, working more hours than I had planned to at least for the next couple of years. But I have my reasons and some of them, like the fact I am having to work more to cover a marked decrease in my collection rate for my business, are not pretty.

Some of the reasons, however, are pretty. I am working more to help pay to take more vacations. This month, my husband and I will spend a childless five nights on the Oregon coast. Next month, we will drive across the border into Canada to visit parts of Vancouver Island that we have not previously visited as well as reconnecting with the city of Vancouver, which is one of the most beautiful cities I have ever been. I take another couple of days off to go hiking with John’s aunt and uncle, who will be visiting us for the first time in Seattle. In August, I am taking time off to visit with dear friends from out of state. In September, my family travels to North Carolina for a much anticipated wedding and a celebration of our kid’s 17th (!!!!) birthday!

Then the plan is for the work-a-thon to end. No worries, I am already scheduling patients in September and I am taking care to go back to my old ways of not working full time hours. My energy level typically drops in late October, anyway, as the daylight hours grow shorter. Today, we will have 16 hours of sunlight. I’m not coming home from work in the dark. I have been gardening and doing home projects, like getting my home organized again!

But it is true that when I work more hours, I tend to live less in the present, to keep my head down, shoveling. These are also times of greater stress, when it is easy to borrow trouble in life and to expect bad things to happen.

It is good to look up to the surprise of a mountain’s majesty. It is important for me to remember that there are good surprises in life.

My husband and I took a three hour drive to get up close and personal with Mt. Rainier a couple of weekends ago.

My husband and I took a three hour drive to get up close and personal with Mt. Rainier a couple of weekends ago.

One of my favorite classes while an undergraduate at the University of Washington was, “Ideas in Art”. We learned about visual art from different time periods and cultures along with the poetry and philosophy associated with each culture and time period. One of our required reading for the part of the course that covered the early modern art era in Europe was Marcel Duchamp’s, The Green Box. Duchamp was one of the founders of the Dada movement, an avant-garde style that stood with one foot in the absurd. “Dada” after all was named after the babbled phonemes that infants make before they learn to utter full words. Each of the 320 original Green Boxes contained 94 scraps of paper, notes, sketch studies, and more. What we read was an English translation of these items.

The Green Box contained a lot of information about Duchamp’s approach to art. He was a painter, sculptor, and art discoverer. Examples of the last category was his “readymade” art. This consisted of a manufactured object that made into art by calling it art. The infamous of Duchamps’ readymade art was, Fountain, a urinal that he displayed upside down and signed with the pseudonym, “R. Mutt.” Duchamp also made modifications to readymade objects, which he called, “readymade aided”.

As you might expect, the art world was not greatly enamored with Duchamp’s readymade’s, aided or not. Duchamp was provocative, to be sure. But he was trying to test the meaning of art with absurdity and to make his own meaning for art by using found objects. Aesthetics are, after all, highly subjective.

A lot of my experience of breast cancer has been about making meaning of it. I know that as a psychologist, this is a common process in dealing with loss, grief, and for many but not all of us, trauma. Meaning, however, is not something that has already been manufactured; it is a process. Maybe that is a piece of the resistance to labels like “survivor”, cancer metaphors like war, or traditions like wearing pink feathered boas. I have also seen the tradition time and time again of resisting all established traditions by attempting to make a new paradigm.

Cancer research and treatment needs objective standards in order to make discovers in a systematic way and to deliver treatment in a way that makes objective sense. This doesn’t mean that everyone is treated the same but the focus is on standards and protocols. And the things that people consider “unscientific” like rapport and responding to a cancer patient in an emotionally competent manner, are not unscientific. They are included in the science of psychology!

The meaning I make from breast cancer, however, is more about my individual identity. The meaning is subjective; it’s personal. Psychology can study the typical course of grief and loss and it has. I can read about the process and it may help me understand what I am going through. But I still have to go through it. I have to experience it for myself.

There will most certainly always be labels in our culture. To have no labels would make any chance of shared meaning and connection impossible. But labels, used inflexibly, like cookie cutters is not healthy. Language and labels are dynamic because cultures are dynamic. And within every culture, we have many individuals.

In my professional life, I provide information and guidance based on objective research and my subjective experience. A gift of my blogging is that most of the time, I only have to speak for myself. This is a vital part of my self-care and healing.

Just as there are many types of art, there are many types of people. Personally, I prefer to go to museums that feature more than one vision. Before we became cancer patients, we were individuals. There’s no reason for us to stop now! The objective similarity among individuals who have been diagnosed with breast cancer is that we have all been diagnosed with breast cancer at some time in our lives. The meanings can differ but still exist as truths.

Meaning is not readymade.

 

 

You can call me a “survivor”. If I am alive, I consider myself to be surviving. I hope this is true for a long long time. I know that for many, it is not.

You can call me a “warrior” but I’m not fighting anyone. I am a pacifist, after all. War is a battle fought between peoples.

You can call me, “victorious” over cancer. The best I can be at this point is “no evidence of disease”. That is a gray area, to be sure. A victory is not the same as, “no evidence of defeat”.

You can describe cancer with other human metaphors, a thief, a rapist, a robber. To me, it is a disease, a natural disaster that works from the inside. It is a disease that is very good at reproduction. It is not sentient. It has no will, just a way.

Words are powerful. Cancer is more powerful than words.

But people have a will, people have a way, science. People have compassion and drive to help others.

When there is a cure for breast cancer, you can call me anything you please. Because the only words that will matter are, “Thank you.”

May was not a good month for me. It was a roller coaster ride of anxiety and trying to keep myself centered. I often didn’t feel like myself and there was a spell during which I was tearing up on a daily basis.

Yesterday I looked at my calendar and saw that it was the end of the month. I thought, “May, don’t let the door hit your butt on the way out.”

The weekend was actually pretty good. Hubby and I took two long walks during which we made a lot of progress on our family game plan. I always feel so much better connected and less isolated when problem solve together. I like us very much as a team.

This morning I woke up and felt so much more relaxed. I was actually eager to take on my work week even though I had to work over the weekend to catch up on report writing.

I was reapplying my lipstick this morning using my cell phone camera in “selfie” mode as a mirror. I thought, “Hey, I look well rested, happy, and relaxed.” So I snapped a photo.

Today is a new day in a new month. Summer starts in three weeks. We are getting little birds coming to our new deck fountain. Yesterday, a hummingbird took a bath in it. I am looking forward to more close encounters!

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As a mother of an almost 17 year old girl, I try to keep my mouth shut when it comes to what she chooses to wear. What girls and women “should” wear. Yikes, what a thorny question. As a feminist, I hate the way clothing is so sexualized even for young girls. I remember seeing a two year-old wearing a sundress with darts sewn in at her chest, as if she had breasts. Maybe it’s a small thing but seriously, why would a clothing manufacturer make the extra effort involved to do this? On the other hand, I understand that for teens, dressing in different ways is an important part of identity development and part of that development is sexual. As a feminist, I hate the way girls are shamed by adults and peers about what they wear because it is “distracting” to boys or is “slutty” or “whorish”.

Another thing I keep my mouth shut about is her weight. Yes, it is true that 1/3 of adults are obese, that she eats an unhealthy diet, and that she no longer exercises regularly. However, there are so many messages to girls and women about what they should way and how they should look that it is nearly impossible to have a conversation about weight. I admit that up until a few years ago, I would nudge the scheduling of my annual physical by a couple of months every year so that I could lose weight in time for the appointment and not get “THE TALK” from my internist. And honestly, she gives “THE TALK” in the best way possible. But I still dreaded stepping on the scale. And for the record, I never managed to lose weight during those couple of months between my scheduled and rescheduled appointments.

As I’ve written many times before, I have struggled to maintain healthy weight since my teen years. Although I am not a person who people typically think of as overweight, my BMI has entered into the obese range twice in my life, once in my late 30’s and the second time in my mid forties. Each time, I lost 40 pounds. When my weight was either declining or in the healthy weight zone, I typically felt good about my body. When I was not, I had some pretty horrible things things that I told myself every day, like a tic. And when I was at a healthy weight, I still had a habit of comparing my weight to the people around me, even people I encountered while walking down the sidewalk.

As I wrote in the post, The Skin I’m In, the tic stopped after I’d done a lot of work on my body image, a natural thing to work on after breast cancer surgeries. At the time, I was at a healthy weight. I told my psychologist that I was concerned that if I were to gain weight again, that the tic, the tape in my head that told me “you’re fat” and other messages would come back. She told me that it might not come back.

By March of this year, I had gained back 25 of the 40 pounds I had lost between May and October of 2012. This was also, incidentally, at the time I went to The Second Chance Prom with my husband. We had a wonderful time. As I looked at the photos of myself from that day, I thought, “Yes, I’m overweight but I look beautiful.”

I realized that although a substantial amount of weight had returned, the tape in my head had not come back. I intended to write about this in my blog. Then I found that it was really difficult to write about. I was ashamed of how badly I had judged myself. I was also too ashamed to admit that I thought I was beautiful. Women are only supposed to say that about their young selves, after all.

Shame is a powerful emotion and it results from a sense of having violated society’s rules. One reason women and girls have a lot of body shame is because we have failed to achieve perfection. We also fail to stay young. But another one of society’s rules is that women and girls are to be dissatisfied with their bodies.

What a trap. What a no-win situation, if winning is defined as having a healthy body image.

A couple of months ago, I started following Weightwatchers again. It was the first time I’ve gotten myself back on an eating program without “hitting bottom”, that is, being motivated by shame and disgust in myself. I started referring to Weightwatchers as “wise-minded eating”. I do watch my weight to reduce chance of cancer recurrence since my cancer was highly estrogen and progesterone responsive and adipose tissue (basically body fat) has glandular function and produces female hormones. Also, a healthy diet is just good fuel for my body. I feel better when I eat well. I am also losing weight at a slow, but steady pace. My motivation, instead of eliminating shame is instead, seeking health.

One of the antonyms for shame is honor. I like that.

I honor my body for getting me this far in life. I will continue to do my best to treat it well.

Many years ago, I was working on a research study evaluating the efficacy of bullying prevention program for elementary schools. To do this kind of research, schools must be recruited for participation. I was placed in charge of the task of contacting schools and districts as well as making presentations onsite. If memory serves, I made over 50 presentations. (In perhaps another post, I will write more about this. I enjoy public speaking but this was a very high pressure situation. Basically, I threw up about 2o minutes before nearly every presentation though I think I did a good to excellent job with everyone. Looks can be deceiving. A person can be funny, informative, and relaxed, and still have thrown up 20 minutes earlier. You just never know about another person’s life, just by looking.)

One of the presentations was to all elementary principals in a particular school district. After I was completed, there was a bit of time for one on one conversations. There was one principal who made a bee-line for me. She gave me the kind of handshake that starts as a firm “how do you do” and turns quickly in a seemingly never ending grip. Meanwhile she was earnestly telling me about her school. My co-worker, Truc, was also there. Truc observed this action intently; Truc is an excellent observer as well as being very funny. Later Truc said, ‘Elizabeth, she was saying, “Please, Elizabeth you must help our school. You ARE THE ONLY ONE WHO CAN HELP US!”‘

School principals have very demanding jobs with a lot of rushing around. That principal had a story to tell me and she was going to hold onto me until she had a chance to finish and could see that I understood.

Back in days as a researcher, that kind of poignant social interaction was rare. In my clinical life in private practice, especially as a psychologist with a specialty in diagnostic assessment, it is a frequent occurrence.

Everyone has a story, a life story. Families in need, need to tell their story. Some of them do not know where to start. Some of them don’t know how to stop. Both of those extremes keep me on my toes. In particular, parents and their teen children who engage in self-harmful and life threatening behaviors carry an incredible urgency in their stories. This is not my treatment specialty but within my diagnostic specialty, suicidality is much more prevalent than in the general population, especially for girls. So I encounter this situation with some frequency and help families secure appropriate services, which unfortunately, are in short supply.

Parents of suicidal teens are some of the most isolated people you will ever meet. They have a story that they are afraid to tell for fear of being judged harshly, among other reasons. Given the way that many people judge teens and their parents, it is a realistic fear, unfortunately. Sometimes we see another person’s tragic situation and blame them for it. To believe that they have control over it makes us feel safe.

I have heard many stories from parents, so many in fact, that I can tell you one that story is based on many.

I am incredibly alone. My house is full of people and each of us are shell shocked and alone. The loneliest moments are when we are yelling at each other.

I have met many many healthcare providers. I have gotten anywhere between 10 and 50 minutes to tell my story. There is so much to say, much more than I ever thought there would be to say in my life, ever.

You are a stranger to me but I need to tell my story. I will trust you with my helplessness. I will trust you with my failures as a person and as a parent. I will trust you with my shame at times for the unspoken regrets I have about ever choosing to be a parent. Bringing this child into the world has been painful and ungratifying but I will try to move try to move Heaven and Earth to save him.

I will trust you the best that I can. Sometimes I may not do a very good job. Three seconds later, I may do a good job again. My emotional life is like that; it is lived three seconds at a time, either dealing with, waiting for, or trying to ward off the next crisis.

I will do this because it is my job, to put myself second when my child is sick, so very sick that she may take herself from this world before she really even knows who she is, where she is, or the things that can heal with maturity.

Please help us.

We want a different story to tell.

I watched the Oscar winning film, Man on Wire, a couple of years back. It is a documentary about Philippe Petit’s high wire stunts, in particular, his 1974 high wire act between the tops of the former Twin Towers in New York City. It is a mesmerizing film.

Mssr. Petit’s balance was AMAZING. It wasn’t exactly as if he were walking on solid ground, but it was about as solid as one could possibly be under the circumstances.

I frequently find myself in very stressful circumstances. Sometimes, I am able to keep my balance and walk as if the ground is as solid as it could possibly be. Unlike Philippe Petit, I have not sought out these dangers. He had to have constructed a very different reality to justify his actions. I thought of his friends and family and how painful it would be to be a part of his life. Then I figured that anyone who could actually tolerate being with him must share in at least a bit of his acrobatic justifications. I don’t remember if this topic was addressed in the film but in my imagination I see his wife indoctrinate, I mean, explain to their young son (in English with poor French accent because this is my imagination), “Aaah, your Papa cannot stay on the ground. For him, it is a death. When he dies, he want to be…ALIVE.”

But I digress…

I find myself lately flailing a bit, having a hard time keeping my balance. When I flail, it is not pretty. Sometimes, I fall on my ass and stay there until the pain and embarrassment subside. At other times, it is more like a tap dance on a small stage. I shuffle, I step. I keep testing the ground for firmness, trying to find the right place for right now. It all seems very much on display. I can continue to struggle to find my footing even while I am experiencing a positive situation. It’s the ups and the downs that get me. If something positive happens after a negative, I sometimes find myself doing a little dance routine, “Hey friends and family, who I have depressed and worried with my tales of woe, look at me! Look at me! I am having THE BEST time. Ta da!!!!!!  I was good, right? Isn’t this great?”

Sometimes the level of observation I do is incredibly helpful. At other times, it enhances my self-consciousness and minimizes any chance of ease I have in the moment. This is a long-winded way of saying that I sometimes think too much.

I’m not quite sure how to get out of this mode. I know that it is fear based. (The nightmares I had over the weekend were a tip off. See, I am a professional. 😉 ) I am feeling the urge to apologize to people but when I really think about what I could have possibly done to hurt anyone it is that I have been flailing and awkward. I haven’t really done anything and I know from years as  a frequent flailer that the best way to increase the awkwardness that flailing creates is to apologize. If my awkwardness was all internal, my apologizing just confuses other people. They don’t know what the Hell I am talking about. And then I end up trying to explain myself and as the words come out of my mouth I realize that I am flailing in circles. Alternatively, the other person provides reassurance that I have not been awkward and flailing or that my awkward tap dance was completely understanding. This kind of reassurance can be a drug to us reassurance-seeking types and actually reinforce anxiety. The better course is to move on and keep going.

Eventually, I regain my footing.

I had a wonderful three day weekend with my family at the beach. That is, during the day. Saturday and Sunday nights were full of nightmares. As I mentioned yesterday, three years ago yesterday, I was diagnosed with breast cancer. I had a wonderful day yesterday, during the day. Last night I dreamed that I had a scan and that there was evidence of a recurrence. I spoke with a radiologist on my dream phone. I can’t remember quite what he said, but I recognized it immediately as a segue to bad news. I told him, “You are saying that to tell me that my cancer has come back!” He admitted that he had. Healthcare professionals, for the record, I am also a deliverer of bad news. I know your tricks, especially when it is  dream and my unconsciousness is writing the story.

In the dream, my husband looked at a written report and in a tone that communicated a lack of sufficient concern, he said, “It says here that it is an 18 meter mass.”

I grabbed the paper and saw that it said that it was a .18 meter mass. “Oh my God, John! It’s a .18 meter mass, not an 18 meter mass! That means it is a 1.8 centimeter mass NOT 18 METERS!”

(Dream mind does not always move the decimal point correctly, I admit. I also think dream mind perfectly illustrated the most stupid of the stupid marital disagreements, the one that MISSES THE POINT. I have DREAM CANCER GOD DAMMIT! Stop fighting with your husband. Neither one of you know how to treat DREAM CANCER!)

People, you get it. My brain is working crap out. Mom, if you are reading along, my brain needs to work crap out. I am doing my very best to keep the crap to a minimum. It is easier during the day time. I had a wonderful day yesterday and a wonderful today. I have less control over the worlds that my brain creates in my dreams.

This year was easier than last year. Perhaps next year will be easier than this year. Healing is a process that is approximately linear over time. But it has its fits and starts.

This morning, John and I took a walk on our own. That time together, along with the sweet historic buildings, and the beautiful farmland, did much to quell the nightmares.

I wish I did not still have them, but I do.

I am, in sum,  a pretty happy person. It has been awhile since I let the fears in my nightmares ruin my waking hours. I didn’t do that today, either.

Living with the uncertainty of life, the horrible, the traumatic, all of the things that I have experienced thus far, for me, is not about pushing it out of my mind. I can’t! My mind does not work that way. If I can’t notice both the good and the bad, I can’t help people as a psychologist. I can just spout platitudes that are not true and do not honor the hardship that many people experience.

And if I don’t notice and validate the good and bad in my own life, I can’t live with the kind of truth that gives me a sense of purpose and integrity.

I need to notice and remember in my life. But I’m living, too.

And pretty darned well if you get right down to it.

My selection of a  Boho Chic outfit thumbs its nose at nightmares!

My selection of a Boho Chic outfit thumbs its nose at nightmares!

The gentle farmland is decidedly not nightmarish.

The gentle farmland is decidedly not nightmarish.

Even pink, in its original form, is not scary to this breast cancer survivor.

Even pink, in its original form, is not scary to this breast cancer survivor.

Yes, I know that I already posted that today is the third anniversary of my breast cancer diagnosis. But I wrote that post yesterday to mark the day, just in case I didn’t feel like writing. But it is now the real day, my family is still sleeping, and I have more to say.

I slept solidly last night and woke up well rested. However, I had nightmare upon nightmare. They basically boiled down to losing everyone and everything in horrible ways. I was uninvited to one of my very best friends weddings FOR NO REASON except that it was suddenly decided that I was a bad person. My daughter, in a moment of anger, made a false report of child abuse against me. She then realized the horror of what she had done when my psychology license was suspended but in nightmare land, the wheels of motion could not be turned back. There was also a weird little dream where I walked into Costco (nightmare!) and the store layout had been totally changed (nightmare times two!) I was then instructed by a woman at the makeup counter to use red lip liner on both my lips and along my eye lid. The last little dream may have had something to do with my daughter’s contraction of pink eye last week. The brain does weird weird things, let me tell you.

Not everyone is impacted by anniversaries of bad events the way that I am. And it’s not like I am sitting with a calendar, marking the days so that I remember. I have one of those brains that is very good at marking the passage of time. This is often a very handy brain feature. I am a good planner, for example. My good friend, Gina, died over 15 years ago, suddenly, a few months after giving birth to her son. It happened in August. Although enough time has passed that I don’t remember the exact date or the exact number of years,  I still often have a mournful feeling in my body near the date of her death. August is also the month of my mastectomy and another very bad day in my life. On August 8, 2013, I found myself at work suddenly crying uncontrollably, after which I realized that it was the first anniversary of my mastectomy.

August 2014 was hard because we were on vacation and I found myself extremely anxious being away from home. My psychologist suggested that we avoid taking vacations during the anniversary times of bad events. I went back and forth about going away this weekend, Memorial Day Weekend, because of its overlap with my diagnosis date. (Yes, people, I not only got my cancer diagnosis right before a three day weekend but before one perfect for making war metaphors.) I actually made a number of reservations in the last few months and then cancelled them. When my husband was gone for 10 days, earlier in this month, I decided that anniversary or not, I needed to get away for my own sanity so I made reservations that could not be cancelled without a huge financial penalty.

On Friday, we made the drive to the rental house. We left at 3:00 pm and I expected given the fact that it was a holiday weekend that it would take at least 2 1/2 hours to get there to allow for an extra hour of traffic. Our first surprise was that my daughter, who finds car trips to be incredibly stressful, was actually pleasant on the drive. Our second surprise is that the trip only took two hours. When we walked into the house, my husband, seeing the gorgeous view out the back of the house, to which is attached with a wraparound deck, exclaimed, “This is the best place you have every gotten for us, hands down.”

Yesterday, we had a wonderful day. My daughter was in a good mood, the best I have seen for months. She SPENT TIME WITH US. She actually sat down at the dining table to eat lunch and invited my husband to join her. She played on the beach despite the availability of Internet! Sometimes, when I have a wonderful day, it can actually be a bit dysregulating, especially if it comes after a particularly stressful time, as this vacation has. Although it’s mostly good, this is the time when I’m most likely to get emotionally sloppy with my friends. “You are the BEST FRIEND IN THE UNIVERSE!!!” It’s not like I’m not sincere but you know, there’s a time and a place for everything and sometimes I act drunk on emotion. Good thing my people love me and are understanding.

Today may be a hard day. Today may be a wonderful today. Today may be both hard and wonderful. I may even get bored. I am hoping that today will be a celebration.

The view from the rental house at low tide.

The view from the rental house at low tide.

The view of the house from the beach.

The view of the house from the beach. The decks are amazing. I want to have a seafood party at this house!

Scene from historic La Conner, WA, taken with the watercolor setting on my camera. I decided that might look nicer on a gray morning.

Scene from historic La Conner, WA, taken with the watercolor setting on my camera. I decided that might look nicer on a gray morning.

Today is the first day of the rest of my life. Today I am exactly 49 1/2 years old. Today is a new day. Three years ago today, at about 10:00 am, I was told that I had an approximately 1 centimeter tumor, invasive ductal carcinoma, in my right breast. I was about as surprised as I could be. I had only a limited idea of how my life would change. Today is today. I am spending it in rural Washington, on the beach. Yesterday was a wonderful day, much better than I expected. Today, I may be in the mood to write, I may not. (I wrote this post yesterday.) I am hoping that today is a good day. I try to be grateful for each day. I mostly succeed.

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The view from the rental house in La Conner, WA. Can you believe this?

Deception Pass Anacortes, WA

Deception Pass
Anacortes, WA

Old warehouse in La Conner. The exterior was dilapidated. What a surprise to see this beautiful ceiling. Also, we probably should not have been in this building.

Old warehouse in La Conner. The exterior was dilapidated. What a surprise to see this beautiful ceiling. Also, we probably should not have been in this building.

I look at poppies all of the time and very closely. This one held a whole new universe.

I look at poppies all of the time and very closely. This one held a whole new universe.

My best food photo from tonight's dinner. In all, I made salmon, salad, oysters, and these clams.

My best food photo from tonight’s dinner. In all, I made salmon, salad, oysters, and these clams.

Lindbergh High School Reunion '82, '83, '84, '85

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