Archives for posts with tag: coping with breast cancer

This post was inspired by the Health Activist Writers’ challenge for the month of April. I write “inspired by” because I have yet to use one of their suggested daily writing prompts.

As a child psychologist, I am often advising the mothers of my patients to take more time for self-care. A frequent response is, “I know, but I just don’t have time,” to which I reply, “If you feel you have no time for this than you have been without time for yourself for far too long and this is even more reason to do it!”

I know I am asking a lot of moms who are already taxed with parenting, work, and household responsibilities. I have struggled with the same life balance issue myself over the years, especially since becoming a mom 14 1/2 years ago. One of the valuable lessons I am continuing to learn as a breast cancer patient is to take care of myself, I mean REALLY take care of myself. It’s not that I was living a martyr’s life but I was not taking sufficient care of my health. To do this properly, takes time.

In 2002, I was laid off from my very first job following the completion of my post-doc. To make a long story short, the job was ugly. It was the first time in my life that I was treated like I was incompetent. Down deep I knew that I wasn’t incompetent but to be treated this way for nearly three years in my first “real job” and right after becoming a mom was a major blow. The lay off itself was done in a fairly nasty and unfair fashion. It was toward the end of that job that I had my first of two incidences of Major Depression. (The second incidence occurred a couple of years later but only lasted 2 weeks because I got back into treatment immediately after recognizing that I was not myself). It was BAD. It wasn’t just sadness, which is what a lot of people mean when they say, “I’m depressed.” I had no appetite. Food was flavorless. I lost 10 pounds in a week. My sleep was messed up and I had to will myself through each day to have enough energy to parent Zoey who was a toddler at the time. She has always been an empathetic girl and at the time, was learning to read facial expressions. I remember feeling heartbreaking guilt and sadness one day. She was sitting in my lap, looked up at my face, used her fingers to push my mouth into a smile while anxiously asking, “Mama happy?”

Being laid off and depressed was a major wake up call for taking care of myself. And since I was laid off and able to collect unemployment for a few months, I was able to make use of the time to figure out what to do with my life professionally. At that point, I decided that I would never rely on one source of salary again if I could help it. So in 2002, I applied and tested for my psychology license in Washington state and in 2003, started my private practice. Meanwhile, I was writing research grants and ended up being employed through two of them, the longer one landing me on the research staff of the Social Development Research Group at the University of Washington. I worked there until 2007 until the research money ran out. I was unable to secure funding for more grants. As the money ran out, I expanded my practice and then by the time I left U.W. in April of 2007, I was able to build up my practice to full time. Although being in private practice had not previously been an aspiration of mine, it ended up being the perfect job for me.

So although I would not have taken that job had I known what it was going to be like, I got some very positive life lessons out of it. Also, I made a number of friends at that crazy job including my dear friends, Jennie and Lisa, whom I’ve mentioned in my blog. Hmm, taking the opportunities afforded by crappy life circumstances to glean important life lessons? Gee, that kind of sounds like my breast cancer experience thus far.

Fortunately, I was able to use some of those life lessons from my crappy job experience to cope with my breast cancer better and to avoid getting depressed again. Sorry, I hate being depressed. And yes I have grief, but healthy grief and clinical depression are not the same thing.

So having breast cancer and especially the time off after my major surgeries, has given me some time to revise my life plan so that I am a happier and healthier person. As I mentioned previously, taking care of myself takes time and emotional space. I will not always need this much time and this much emotional space but right now I do. At first, this was a hard adjustment for my husband because healing has meant my being more emotionally distant than usual. (And no, I don’t just mean less sex.) We had to develop different ways of spending time together, for example, John started accompanying me on my walks on the weekends. He also eats all of the healthy dinners I make ahead of time in reasonable dinner-sized portions and freeze. The walking and the diet change have been part of the reason that John has lost 22 pounds. My taking care of myself has also meant that John had to take on more responsibility and learn how to take care of me after surgeries. It has also meant John taking care of some of his own health issues better.

For Zoey, my cancer has meant worrying about a parent’s mortality at an earlier age than average. It has meant seeing me less energetic and weaker at times. But overall, I am very happy to report that Zoey has more than risen to the challenge. She fairly quickly snapped out of the angry, eye rolling teen stuff that she was directing toward me and started treating me much more respectfully and affectionately. She is often there with a glass of ice water when she sees me fanning myself during a hot flash and she secretly changed my screen saver to a banner that reads, “I love you, Mom,” just because. Sure we have our moments and she is still able to be disrespectful and her eye rolling muscles aren’t totally lax. And having a mom who is a breast cancer patient when she is a 14 year-old girl makes her life harder. I wish she didn’t have to go through this. But she has grown enormously.

Finally, by taking care of myself, ultimately, I will take better care of my patients. Some of them are feeling a little anxious and impatient because I am off work again for an extended time. But if I don’t take care of myself, I will not have enough energy to do a good job. And as my dear friend, Nancy points out, by taking care of myself and coping positively with a major life stressor, I am modeling valuable skills for the families I see.

So even though the villagers were not initially happy with my changing my life to have a stronger focus on self-care, ultimately, my self-care is reaping benefits for the villagers.

I do believe that there is more than one good solution to every problem but perhaps this lesson could be helpful to some of you readers out there.

 

My recovery continues, though at a slower pace. Nonetheless, I’ve passed a few milestones in the last week:

1) I tried on the swim suit I bought awhile back and not only does it fit, but I look normal in the chest area. Woo hoo!

2) The miracle lounger went back to the medical supply company this morning. I still need to spend a lot of time sleeping as well as most of the day off of my feet but sleeping in bed has gotten comfortable again and our couch is again comfy. I miss my tray table, though. My laptop computer is warm and although it is comfortably resting on my legs right now, I expect it will cause some hot flashes later in the day.

3) I averaged 3 miles a day of walking, for seven days straight! Yesterday I was beat so I stayed in. I didn’t make myself feel guilty about it but instead reminded myself that walking every day is above my health goals. I started walking every day instead of 5 times a week because it felt good and I wanted to do it. So yesterday I was mindful that my body was not up to doing a “bonus round” of exercising.

4) On Sunday, I cooked for the first time since the surgery. I wanted to bring something to my brother and sister-in-law’s for Easter dinner. I roasted some asparagus. It took me 15 minutes, including washing, trimming, and cooking. They were delicious.

 

I have so many thoughts, meaningful ones, and I just can’t get them organized into a post. Boo, brain! Oh, I take that back. Brain, you’ve been through a lot and it’s okay for you to take a rest. Remember when this happened after our last major surgery, the mastectomy? Other body parts need a lot more energy now for healing. Frontal lobes, you are low on the priority list right now. I’ve had a very expensive and extensive stabbing by a highly trained surgeon. Parts were rearranged. My spare tire was made into a headlight. It’s only natural that there would be less energy for thoughts other than self-preserving ones, like “Hey, Self, remember no drunken table dancing until six weeks past surgery!”

I have the ingredients for a meaningful, uplifting, and moving post but neither a bowl nor spoon by which I can mix them into blog magic.

This reminds me of something. I remember when I lived in North Carolina, there was column in the local paper that was meant to be a place holder. However, the real article never made it to the published edition of the paper. So there was a column that read something along the lines of, “This article will be of interest to a wide variety of readers, blah, blah, blah.”

So until I can get my ball bearing thoughts organized, here’s a placeholder:

This blog post will be so absorbing, humorous, and meaningful that each reader will be ever happy and ever healthy. And neither the reader, the reader’s children, or the reader’s children’s children, will ever again experience being stuck in traffic. Finally, drunken table dancing will always result in only positive consequences.

You’re welcome.

One of the ball bearings that would have made your life perfect.

One of the ball bearings that would have made your life perfect.

I can’t figure out what to wear to my daughter’s concert! What will I do?

Also, I’ve given myself a series of hot flashes from trying on so many dresses!

And with all of these hot flashes, how will I do my hair tonight? I was planning to straighten it with a flat iron it for the first time in months. (Remember, I’ve been avoiding being around hot things.) And I ran out of my curly hair styling product. I’m not driving yet and it doesn’t quite seem justified to ask my husband to interrupt his deck building project to go get it when the only one who would notice a difference is me.

I think I will take a little nap. In the mean time, let’s have a little vote on the dresses. Here are pictures of the contenders.

Dress A-my go-go boots dress that was involved in wax-removal-gate(From 6pm.com)

Dress A-my go-go boots dress that was involved in wax-removal-gate
(From 6pm.com)

Dress B. This one was involved in "Gee honey, that dress makes your stomach-look big-gate." I think it's cute and "he who should not be named" made that remark before surgery. (From 6pm.com)

Dress B. This one was involved in “Gee honey, that dress makes your stomach-look big-gate.” I think it’s cute and “he who should not be named” made that remark before surgery. (From 6pm.com)

Dress C has inspired no controversy.

Dress C has inspired no controversy. (Used dress purchased from Ebay)

Dress D was a big hit at another recent soiree.

Dress D was a big hit at another recent soiree. (Another re-used dress acquired from Ebay)

Dress E has also inspired no controversy probably because it arrived in the mail today and "you know who" has not seen it.

Dress E has also inspired no controversy probably because it arrived in the mail today and “you know who” has not seen it. (From Ebay.com)

Dress F: This was the dress I was wearing when I was super pumped (literally) about having cleavage again, not noticing that I had so much as to indicate a medical problem! The version of the dress that I have is in blues and greens.

Dress F: This was the dress I was wearing when I was super pumped (literally) about having cleavage again, not noticing that I had so much as to indicate a medical problem! The version of the dress that I have is in blues and greens. (From Sierratradingpost.com)

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Not surprisingly, breast cancer is not big sexy time.

When I learned that I had breast cancer and needed surgery, I expected the anti-sexy impact of stress and surgery. I did not, however, expect to have six surgeries and counting.

When I started taking hormone blocking medications, I expected to go into early menopause and to perhaps have hot flashes, not to mention the impact of having almost no female hormones on a woman’s sex drive. I didn’t expect that for a few months, every time my husband did as much as put his hand on my shoulder that I would immediately have a hot flash.

Last October, my medical oncologist asked me what I using for birth control in the couple of months before the Lupron injections had done their work in rendering me infertile.

I told her. Her response? “Wow, most women laugh in my face when I ask them about birth control use during breast cancer treatment.”

So maybe I’m “big sexy time” for a breast cancer patient.

My professional (two reports to write), domestic (three loads of laundry to fold), and family (father-in-law is arriving soon) worlds are colliding with my blogging world! I need more blogging time.

And yes, it is funny to have too much normal life interfering with my cancer life. I guess it’s one of those kind of problems I want to have. That is to have enough room in my life as a cancer patient to be able to cram in too much non-cancer living.

Or “under cover empanada.” Or “under cover calzone.” For another option, “under cover apple turnover.” I opted for piroshky in the title because “under cover piroshky” reminded me of Boris and Natasha from the Bullwinkle and Friends cartoons.

I speak of the shape of my newly expanded breast. The primary purpose of the tissue expander is to expand tissue and to encourage new skin growth. Looking like an actual breast is secondary to this goal and now that the expander is almost totally filled with saline, I realize that it looks like an upside down filled bread product. And all but the apple turnover are made with yeast so I am getting closer to a leavened breast after all. The fold part of the empanada corresponds to the top of my breast. It curves on the ends so it is not totally horizontal. The middle of the fold, however, makes a handy shelf. I could probably balance three shot glasses there. Party! If you are in more of an afternoon partying mood, I could balance a tea cup (without saucer) or for you coffee drinkers, a couple of demitasse cups.

Just thought you’d want to know about this development. You’re welcome!

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Lindbergh High School Reunion '82, '83, '84, '85

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