Archives for posts with tag: Coping with cancer

I notice that I often unconsciously place my hand on the spot where my breast used to be. It’s sort of like a breast, at least more so than right after my mastectomy. As I’ve previously mentioned, there’s a calzone-shaped tissue expander in there right under my skin. I do it so often that I’ve begun to worry that I’ll be talking to one of my patients and suddenly find that I have put my hand under my bra without even realizing it.

I have to admit, it’s a pretty good hand warmer. Since I don’t go around topless, it’s well insulated by clothing. Plus, it’s located near the nuclear reactor part of my body, where the hot flashes seem to originate. And since the skin over the expander has no sensation, it is not unpleasant to touch it with an ice cube cold hand.

But mostly, I think my hand is just doing it’s version of, “What the Hell are you? Why are you shaped like a savory turnover? Why do you feel like a Tupperware lid?” Followed repeatedly by, “Oh my goodness, are you still there? What are doing here. Are you still shaped like a turnover? Yes, you are. Do you still feel like a Tupperware lid? Why yes, you do.”

It’s kind of like the relationship between my tongue and a crown that was put on one of my teeth about five years ago. When it was first placed, my tongue was on it constantly, like it was a foreign object that didn’t belong in my mouth. I still find that without realizing, that my tongue has a little habit of checking it out, probably at least once per day. And I think my friend, Lisa was right about my cat doing the same thing when he took a nip at my right breast some weeks back. It was his way of saying, “What the Hell is that?” My cat is about as smart as my tongue so I think this is a good hypothesis.

So now I think I’m going to do an Internet search for portraits of Napolean and see if he’s wearing a little pink ribbon in any of them.

No pink ribbon but based on the hand position, I surmise that Napolean battled sagginess in addition to Waterloo.

No pink ribbon but based on the hand position, I surmise that Napolean battled sagginess in addition to Waterloo.

I just lived an entire month without a surgery. When was the last month that this was true, you ask? The last surgery free month was May. Here’s a list for those of you keeping score at home.

June 27-Lumpectomy 1

July 18-Lumpectomy 2-Undiscovered Country

August 8th-Right-side Mastectomy

September 26th-Delay Procedure and tissue expander placement

October ?-Skin graft.

My next surgery? March 11th, for my TRAM reconstruction. Yay! I will make the best of my months off!

The City of Seattle has posted signs around my neighborhood that read, “Slow down. Drive like you live here.” Today, I realized that this is a philosophy that I am working toward in my life. Slow down. Act like I live here, on Earth, right now instead of living in some driven future world that hasn’t happened yet.

I know that working to live in the moment, to “stop and smell the roses”, etc, is not a new idea but today the sign spoke to me.

Now I am sitting in the covered outdoor section of Bird on a Wire coffee shop sipping my green tea with soy milk out of a huge ceramic mug instead of a paper to go cup. Today I ordered my tea “for here.” Because of that I am enjoying the sound of the rain falling on the metal roof of the patio. Bliss.

2012-12-01 08.55.08

Yesterday, in addition to being my 47th birthday, also marked 6 months since my breast cancer diagnosis. Since I started this blog on that same day, it also marked six months of of blogging. I’ve accumulated quite a number of posts, two hundred something and counting. As part of my own recovery, I look back at them from time to time. I’ve decided to re-post one of my favorites, about once a week, starting with my oldest posts. So, this is the kick off Best of Blog!!!!!

I wrote this post on 5/27/12, three days after learning about my breast cancer. I had started back on Weight Watchers at the beginning of May and had quickly decided to keep working on weight loss. As you may know, I have since lost a considerable amount of weight and changed to a much healthier lifestyle. This post is called “My Other Project.” It’s about more than weight loss and health, as you will read.

So my other project is Weight Watchers. As some of you know, I have had trouble maintaining a healthy weight since I was a teen. Sometimes I dread going in for my annual physical because if I’m overweight, I know my internist will ask me about my weight loss plans. Even though it is totally her job to talk to me about this and she does it in the kindest way possible, I still feel dread. Just last Friday, I was weighed at the beginning of my consultation with the surgeon. I was slightly surprised as I had asked the day before whether I would be given a medical exam and the woman whom I had spoke with told me that it was just a consultation. So, the nurse escorted me from the waiting room with the first stop being the scale. I quipped, “Ugh, getting weighed is worse than having cancer.” Crickets. I am known for my gallows humor under extreme stress. After all, I was the the person that upon opening a letter at work informing me that I was one of the people being let go in a round of lay offs who stood in the hallway, waved the letter, and exclaimed, “I thought this was a bonus check!” People laughed then but not this time. And perhaps I was imagining things but I thought I even saw a bit of a pained look on the face of one of the RN’s that passed me so I lamely said for all to hear, “I really don’t think it is worse to be weighed than having cancer.”

There are periods in my life when I’ve been overweight and periods when I have been at a healthy weight. I also have a long history of a poor body image. I didn’t really believe that I could possibly be good looking until I was an older teen and even that was a tenuous realization. There were also periods when I viewed myself as downright ugly. I used to get bullied about the way I looked, too. NOT HELPFUL. I remember when I was a 5th grader, there was this 6th grader who purposely sat on the bus with me for what seemed like days on end to tell me how ugly I was. He once said, “You’re so ugly, you don’t deserve to live.” Now this was not one of the popular kids, he was, objectively speaking, a pretty homely kid with a lot of problems and not many friends. Nonetheless, I can still remember the way my face burned and my stomach turned, just listening to him. In the 7th grade, some of the 8th grade boys used to tease me by pretending they liked me by derisively flirting with me. They also gave off the impression that they thought I didn’t know they were insincere.

When I was in the 8th grade, I lost about 25 pounds and grew a number of inches. I also started wearing make-up and stylish clothes. When I wasn’t wearing my velour top, white painter’s pants, and high heel Candie’s slides, I was wearing my Brittania’s with my blue Nike swoosh running shoes. I got my hair professionally cut into a Farrah-esque mane, except with more curl and brunette hair. Anyway, you get the picture. The world changed for me. Some of my old friends were no longer friends and then some kids who wouldn’t have previously given me the time of day, acted like they wanted to make friends. I pretty much stuck with the friends in the third group, the ones who stayed my friends throughout my physical transformation.

When I got to high school, some of those former 8th grade boys did not recognize me because I had changed while they were high school freshman. One of them actually tried to ask me out a few years later and our band teacher was even trying to be his wing man. I did not explain myself. As it turned out, I actually didn’t end up dating a lot in high school. I was loud and a good student. I was considered a “brain” and in adolescent black-and-white thinking, if you fit in one category, it was hard to be in another category like “pretty” or “fun.” I remember, too thinking that I would have a better dating life if I weren’t doing as well at school. As much as I wanted a boyfriend and doubted whether I was attractive or not, I knew that if I worked hard at school I would have a lot more choices later in my life. I also remember having a strong sense of financial responsibility for supporting myself someday. (This was more than a little unusual as I was 1) thinking far ahead into the future and 2) there were still a lot of stay at home moms back then, including my own.

By the time I got to college, I got a lot of attention for my looks. I had never really experienced a lot of positive attention like this. Men I didn’t know would see me walking up the steps to U.W. buildings and open the door for me! I have to admit, it was pretty cool. I remember during one week of my sophomore year, I had two young men asking for dates. I thought, “Why shouldn’t I be able to date two men?” So I went out to lunch with one and out to dinner with the other all in the same week. SCANDALOUS! This will sound ridiculous but the idea of dating two guys felt like juggling 100 items at once and like I was doing something wrong. I liked both of them. After a week I chose one of them for a stupid reason, too (he lived closer to me.) Ironically, this boyfriend was also one that when mad at me, complained that I was too fat and not pretty enough. This is a lesson to you, young ladies out there. It is perfectly okay to casually date more than one guy especially if you are simply eating meals with them. And don’t pick boyfriends based solely on convenience.

My husband and I met when I was 20. He’s a dear and has always sincerely complimented my looks no matter my age or weight, which has fluctuated quite a bit over the past 25 years. It was with ample embarrassment and some shame that I recently admitted to him that even now during the overweight periods of my middle aged life, I think negative thoughts about my weight and appearance several times a day. I am extremely careful to avoid saying these things aloud, especially in front of my daughter. But despite the fact that I have a wonderful husband, career, and family as well as the fact that I am a pretty happy person, I have yet to eliminate the negative self-comments from my head.

It is easy to say that this is ALL the doing of the media or our culture for it’s ridiculous emphasis on beauty, sex appeal, and youth in women in defining their value to society. And although I was hardly immune to this influence, I was able to counter so many other cultural influences. I didn’t take drugs, smoke, or drink. I did well in school. I was very ambitious in my schooling and career. Further, I have experienced myself as being valued for so many substantive characteristics, for being intelligent, for being kind, for being smart and fun. I know there are other ways to be valued as a woman than for beauty. I am a happy and outgoing person. When I walk down the street, people often smile or say, “hello.” My experience with the world, even of people I don’t know is so overwhelmingly positive. Why do I still have these thoughts of being less than? Is it really so important to me that I be valued specifically for beauty? Or is this voice in my head just an old tape that plays when I am feeling the negative physical and emotional effects of not eating right or exercising? Maybe it is really closer to the latter and I am not so superficial deep down after all. I’ve never thought about it that way before. Thanks again, Mom this blog was a great idea!

Some of you may read this and be tempted to provide me with reassurance, to tell me, “Don’t be ridiculous, you are beautiful.” I’m not looking for reassurance. Whether I am beautiful or not is beside the point. Whether I am physically beautiful to others is irrelevant. All of us know women who are breathtakingly beautiful and even make money at least in part for being breathtakingly beautiful and are still horribly unhappy about their looks. (I’m looking at you Uma Thurman.) No amount of outside reassurance is going to fix those insecurities and doubts.

Finally, I may never fully rid myself of that negative body image tape. But maybe I need to stopped feeling so embarrassed and ashamed by it. I will never be perfect so I don’t need to beat myself up for beating myself up. The tape is one of the things about my life I would like to be different. I’ve already proven that I can live with it and be a happy, well-adjusted person. And yes, I know that my project is bigger than Weight Watchers. But the Weight Watchers project is helping me be physically healthier and there’s no shame in that.

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I woke this morning to the sound of heavy rain. Actually, I woke to the sound of my alarm and then the rain. I reset my alarm and tried to go back to sleep, fully preparing myself to cancel my walk today. A half hour later, I felt a little burst of energy and decided to get out and walk. The deciding factor was the lack of wind, which meant that I could bring an umbrella with me.

The first part of the walk was pretty easy. It wasn’t really raining that hard, as it turned out. Some of the storm drains were clogged so I had to jump from dry spot to dry spot to cross the streets. But that was even a little fun, like jumping from stone to stone to cross a creek. It reminded me of being a kid again.

Then the rain got heavier, a LOT heavier. But I stayed mostly warm and mostly dry and had a good walk. I took off my shoes at the door and walked into the house, leaving wet footprints with my wool socks.

I had a comforting thought during my walk. Through thick and thin, there are things I can do to take care of myself.

I also had the thought that as we head into winter, I might be wise to buy some water proof gloves and reassess my supposedly waterproof breathable Gortex light hiking shoes!

One of the things I like most about my daily walks is the reminder of how surprisingly busy the world of the outdoors is. Today, there were gulls flying overhead and little birds flying into all of the berry-laden bushes. I also recognized the sounds of a starling. Their calls are so varied and mechanical sounding as if they are wound up by hand each morning.

John had recently commented that he doesn’t know how we can have hummingbirds all year with the lack of flower nectar. I told him, “They must find something to eat or they wouldn’t stay around.” Today I found two hummingbirds flying into a couple of bushes. When I looked closely I noticed that each bush had tiny little flowers in it, thousands of them.

So much life. And I’m part of it, too.

I took a few smartphone quality pictures on my journey.

Yes, that is a chicken coop in the left back corner. Our neighbors are taking advantage of Seattle’s City Chickens program.

 

Now that most of the leaves are gone it’s much easier to see the grapes on these vines.

 

Carpet left from the wind storm last night.

 

 

Lithodora diffusa ‘Grace Ward’. This is such a handy little shrub. Although it’s not the solid blue mass of flowers it is for a couple of weeks of the summer, it keeps at least a few blooms on it all year.

Arbutus unedo. Another handy shrub that blooms and fruits constantly throughout the year. The fruits are edible though bland.

 

 

 

 

This is a beautifully written and expressed piece by Tracy, who writes FEC-THis, a blog about her experience with breast cancer. Tracy lives in Great Britain, is in her early 40’s, and has a teenaged son.
And yes, this is the same Tracy who writes thoughtful and supportive comments on my blog.

 

THAT question and why I will never ask it.

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Thanks all of you for your supportive comments! The family seems a bit more even-keeled today. And if they aren’t, that’s okay, too. Everyone has earned their right to crankiness and anxiety. Plus, I’m going out with a friend tonight after work. So if they are still cranky, I will miss it! Crank away, family!

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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