Archives for category: Facts

Yesterday, I put on a dress and thought, “Hey, I look pretty good.” I looked symmetrical, for one and it’s been awhile since I could say that. I did not connect the dots of facts in my brain that would have told me, “Hey, you’re not supposed to be symmetrical. One of your boobs is supposed to be smaller than the other. Don’t you remember complaining about that in your blog?”

Fortunately, I have a surgeon who noticed today when I was in for my post-op appointment. I was swollen with fluid, a combination of blood and serous fluid. The fluid was under my skin, surrounding the tissue expander that was inserted last week. I learned that this is a concern as is the ischemic tissue (skin that isn’t getting enough blood flow). As you may recall, I had this issue with the mastectomy, but this was much less than before and hey, they kept telling me how good everything looked after the mastectomy. Apparently, this was not supposed to happen again with the last surgery. In fact, Dr. Welk uttered the words I so did not want to hear, “I’ve never seen this before.” My skin is not happy. My doctor is not happy. I am not happy.

This is not a life threatening situation but it does mean there’s a slim chance that I could lose a sizable portion of skin, need surgery to have it removed, and have to start the whole process over again with another tissue expander surgery. Dr. Welk says that it will probably be fine and I am scheduled to see him again on Tuesday of next week. When I talked to my friend, Jennie she offered to come to the appointment with me. I said, “Oh that’s okay, John will want to come.” Then she reminded me that John is going to be in Hungary next week. Good thing her brain is able to connect the dots for me and she is such a good friend to offer to go with me. She has some good experience helping out friends in medical settings, having helped at the birth of at least two babies. So I am relieved to not have to go alone.

To be honest, I was pretty sad and overwhelmed about this earlier today. I know in the larger scheme of things that things look good for me. But it’s been a long haul since May. I also need to lay off the cancer reading for awhile. I know it was part of my plan to do a lot of  cancer reading to get in touch with my grief but I think I’ve had enough for now. It’s like in my practice when moms start feeling really guilty, I tell them, “You have the rest of your life as a parent to feel guilty. Don’t use it up all now. Save some for later.” This usually gets a big laugh of relief. So I’m going to save some grief for later.

Lastly, I am relieved to have figured out a solution to my professional attire challenge for next week. Dr. Welk doesn’t want me to put extra pressure on my tissue so I need to go around bra-less until at least Thursday afternoon. Unfortunately, it is not yet sweater season. Fortunately, I have a chemise that can be used as full slip, given to me by my friend, Cheryl that I can wear under my dresses. Phew! Visible googly eyed effect crisis averted!

Well Count Dracula may have wanted it, but I’m not sure about the phlebotomists at Swedish Medical Center. Actually, they do, but they are short-handed. I’m at my neighborhood clinic for a blood draw. My naturopath wants to check my vitamin D levels (very important Northwest people, and for more than breast cancer), my thyroid, and my vitamin B12 levels. My fabulous internist agreed to order the lab work so my insurance will pay for it, since my plan doesn’t cover naturopathy. (It does, however, cover acupuncture.)

The waiting room is full. There are just enough seats for the number of people in the room, all of whom are waiting for blood work. There are three seats empty, however. Three of the men are standing because how better to make time fly than to be on your feet for 45 minutes? I’ll stop being mean. Maybe they have bad backs or something. Or maybe they have compromised immune systems and don’t want to sit in the chairs so close to the other patients. Wait, one of the stand up guys hasn’t taken his heavy looking Boeing briefcase off of his shoulder. He is also hovering close to the sign in desks. Given that he is carrying excess weight and is brave enough to hover close to the potentially germy people at the sign up desk, I feel comfortable calling him, “Impatient” and judging him silently in my mind. Taking time to negatively judge a fellow human helps me pass approximately 50 seconds of wait time.

Hey, a lady just sat next to me and asked how long I’d been waiting. I respond, “About 15 minutes.” Then I try to ensnare engage her with my scintillating small talk. She responds, but only with politeness and no apparent interest. Foiled again, but that 90 seconds just seemed to fly by. Oh hey, an older lady takes a seat across the aisle and starts to talk to me. She seems to have real possibilities! She makes a comment about someone being so happy to have their name called. Then she makes a little sideways nod, smiles, and makes a small raspberry-like noise as if to say, “Can you believe this crazy world we live in? I, for one am determined to enjoy it.” After awhile, I realize that she is not consistently coherent, says the same phrase when each person goes to get their blood drawn. The head move and raspberry noise are repeated. In other words, instead of saying, “Can you believe this crazy world we live in”, she is saying, “I have a combination of vocal and motor tics.” While I’m digesting this, I do feel a little bit happy that her neurological issues give her a certain flair and noting her leopard print socks and colorful clothing, decide that despite the tics, her personality is coming through. Maybe she really is making a positive statement about life while simultaneously experiencing tics. This is what I choose to believe and the animal print clothing clinches the deal. My combined mental efforts as an amateur neurologist, fashion observer, and self-deluder took up at least 30 minutes. Goooooal!!

My name is called. I have a short conversation with a very pleasant phlebotomist with gnarly tattos. Noting that there is evidence of multiple recent needle marks in my arm he says, “Good times.” I tell him about my cancer. that I am doing well, and that I am getting excellent care at Swedish. He says something generic but it is communicated with an air of hipster sweetness so I feel supported. All in all, the blood draw and conversation take less than 3 minutes.

My total wait time was 50 minutes. It was not so bad. I am trying to think about time and waiting differently these days and it seems to be working. I also try to make sure that I don’t try to squeeze medical appointments into my schedule.

If they hired one vampire they could take care of this problem, stat. Just sayin’.

My hubby’s been getting the short end of the stick lately when it comes to my blog. While it is true that he sometimes lacks consistency in carrying out the hum drum, monotonous, but important daily tasks, he is the king of the big project. For my first birthday we celebrated after we started dating, he made me a full sized quilt. Did he know how to sew? No, but he figured it out. He appliqued the sun on the top and the moon on the bottom. In the middle, he wrote “I love you” in appliqued letters. It was and is pretty awesome. My mom still brings up the fact that he made that quilt from time to time, sometimes as a random celebration of John and other times as a much needed reminder to me that my husband is awesome and loving. See, now I’m starting to regret telling you blog readers out there about this. I will never be able to complain about him again!

John was not perhaps as hands on following my surgeries last week as I would have liked. We were both surprised at how painful they were. I think John expected me to be She-RA again. But I was an anxious, weepy woman for a couple of days. Although John was off work from Wednesday to Friday of last week, he was pretty busy on Thursday and Friday, working on a big project. I’ve already mentioned that he is building a deck. Part of his frenzy in getting it done is that he wants it to be a gift for me, a peaceful respite next year away from cancer. So John is pretty awesome and the deck is going to be cool.

Now for something fun. Here’s a photo from an earlier stage of the deck construction. Your job is to provide a caption for this picture!

What is this man doing?

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I forgot to mention the lovely fact that my breast looks like it is jaundiced or has carotene poisoning or something. This is because during surgery, Dr. Welk used betadine as an antiseptic, which contains iodine. Dr. Beatty, my breast cancer surgeon, never did that so I wasn’t expecting to be re-traumatized once again by having a part of my body turned Oompa Loompa color. It is a pretty wonky boob at this stage of the game and wonky is close to “Wonka” so hey, life is just having a little word play on me because it knows I’m always on the look out for good blog material. Maybe they’ve been reading my blog over at the Polyclinic and they actually used Clairol Basic Instincts, “Dark Auburn,” instead of betadine. (I’m totally kidding, wonderful people at the Polyclinic. I know you would never ever do something like that. I’m just getting my daily dose of humor about my breast cancer. Tee hee hee! Ho ho ho!!!)

I read online that hydrogen peroxide would take it off. It took off a little so now it’s slightly more yellow than orange. My skin is really sensitive so I should probably just leave it along for a few more days. But again, I blame Roald Dahl.

As I mentioned earlier, the surgeries went fine yesterday. One of the surgeries was a delay procedure and it is designed to eliminate blood flows up to the abdominal area so that all blood flow comes from above the area. (I know that there are medical directional terms but I can’t figure them out.) The reason for this is that blood flow to the breast comes from above. In the abdomen the blood flow from below is a lot stronger so Dr. Welk made two small and relatively shallow incisions to my abdomen to cut off blood supply in that direction. That will make the flow from above stronger, which will reduce the chance of complications when the tissue is moved to my breast.

The other procedure was the placement of the tissue expander. See below for photos of deflated and expanded tissue expanders. They come in different shapes and sizes but all look like they have a yolk in the middle. When it’s implanted, it’s filled up a little bit with saline solution but since they don’t want to torture women, they don’t fill it all at once. So there needs to be a minimally invasive way to fill it incrementally in the weeks following surgery. The yolk is a magnet that it used to find the port into which the saline is injected. Dr. Welk says he uses a device like a stud finder (I suggest “babe finder”) to locate it. One of the pictures shows the tubing that is attached to the syringe to fill up the breast. So why am I eager to fly? Because the metal yolk sets off air security alarms! I have my very own “Device Identification Card”, signed by Dr. Welk to prove that my breast means no harm to the people of Earth!

In the mean time, I am resting and also trying to figure out how to pad out my bra on the right side a little. I thought I was really smart and organized when I ordered a smaller breast form. Dr. Welk said he’d fill up the expander about half way. I guessed that half would be about an A cup and then further guessed at the size of a breast form. I considered just waiting and getting some of those “increase your cup size” inserts at Target, but I figured that I’d end up lumpy and lobsided. To make a long story short, I’m more like a B cup so the breast form is too big. It is also shaped differently than newly leavened breast. When I put the breast form in, I was about a size G on the right side. Plus, it just looked weird because the breast form angles differently than my breast. I can’t explain it without showing a picture and I’m not going to put a photo of my breast on this blog. Let’s just say that since skin from the top of my breast was removed that now that it is filled, it appears to be defying gravity, especially once particular area, resulting in a major googly eyed effect. I suspect that this effect will not go away until the TRAM procedure, during which Dr. Welk will add some skin to my breast from my abdomen. I’m hoping that he avoids using the skin decorated with my pregnancy stretch marks. The guy is all about aesthetics so I’m sure he will.

So now you know how the expander looks. As to how it feels, it feels like I have a water balloon right below my skin, which is basically the truth. If I tap on my breast with my finger, it sounds like I’m tapping a Tupperware container. Maybe I can push on it to “lock in freshness” or practice Morse code or something. Finally, pain-wise I am doing okay so far. I took a couple of Percoset (not at the same time) yesterday but today I have switched to Advil combined with Traumeel, a homeopathic pain reliever that is actually evidence-based. (I have long been leery of any kind of homeopathy, and remain so as a general rule but this one looks like the real deal. Check it out for yourself here.)

I’d like my breast sunny side up, please!

I am having two surgical procedures tomorrow afternoon. They will take place in the plastic surgeon’s office. I will likely be home at about 5pm. I’ll try to post something tomorrow night. I think everything will go well and I am looking forward to getting a little closer to the end of the surgery marathon.

When I come home, I’ll have a half-filled breast, some valium, and some oxycodone. I’ll resist the temptation to re-enact the Valley of the Dolls.

Nighty-night!

I’ve got a busy day today. It’s actually what used to be a normally scheduled day but I will bill more hours today than I did for either of the two weeks since I returned to work. This was not the plan but as you may recall, I had major cancellations during those weeks.

I am happy to report that despite my busy day, I started it off with 20 minutes of meditation, a glass of green tea, a 30 minute long walk around the neighborhood, and a fruit/nut bar that I made that contains 2 tablespoons of flax seed meal. I realized that just by scheduling myself so that my first patient is not until 9:30, allows me a lot of time to get self care stuff done without having to get up at the crack of dawn. I am much more of a morning person, too so this plan works better for me than waiting until after dinner time. By then, my natural inclination is to sit on my butt.

I did some testing this morning with a cutie pie of a 6 year-old. I haven’t done any testing for about 7 weeks and it was fun. I’m home now for lunch and perhaps a short nap before heading back to the office at 3pm to see a couple of kids for therapy. Tomorrow I have a lighter day and then I’m off for the rest of the week.

 

Yesterday, I had an initial consultation with Heidi Lucas, ND of Integrated Naturopathic Oncology. My friend, Nancy recommended her highly and Dr. Lucas is one of a very few naturopaths in the area who has additional certification in cancer treatment. I wanted to find someone who could help me support my health from a nutritional standpoint as well as with supplements and lifestyle changes. I thought she was very good, well versed in research, and very experienced working with women with breast cancer. My hubby had challenged me about not taking others’ advice about nutrition and supplements. For example, a co-worker of his, upon learning of my cancer, gave him a bag of sour sop leaves from which I was to make tea. I looked up research on this approach and decided not to do it because I couldn’t find any. I believe that the “non drugs” that we take into our body are as potentially powerful (for good and ill) as the drugs made in laboratories. The difference is that we know less about “non drugs” from a research perspective, though this is fortunately changing for the better. Consequently, I believe it is incredibly important to see someone with specialty training in this area who knows the existing research and has a lot of clinical experience to guide them. And really, I don’t tend to take medical advice from John’s co-workers, either.

The lifestyle changes are ones that I am doing all ready, deep breathing, exercise, having a good social support network, making time to relax, etc. Dr. Lucas recommended a number of supplements and dietary changes for me to do long term, as well as some recommendations for supplements to take before surgery (ex. extra vitamin A, vitamin C, and zinc) and a regimen to take after surgery to help with healing. One of the long-term changes is to eat 2 tablespoons of flax seed meal each day. I mixed it with some plain Greek yogurt, a little maple syrup, and frozen berries this morning. It was a tolerable gruel. I see smoothies in my future. I’m going to Google some recipes. She didn’t suggest many changes to my diet except to reduce my intake of milk (about a cup a day; fermented milk products like yoghurt and cheese are okay) and coffee. Coffee? Whaaa! She suggested that I try limiting coffee intake to every other day and drink green tea several times a day. Today I tried a latte with soy milk. At first it tasted yucky and by the end it was starting to grow on me. The green tea is fine. My friends at Red Cup Espresso (thanks for the gift card, Beth!) also have hemp milk. Samir has extolled it nutritional properties. Perhaps I will give it a try. I hope it doesn’t taste like rope. Finally, she wants me to sprinkle turmeric on my food and then switch to turmeric capsules. I forgot to ask her why she doesn’t want me to take capsules yet. Maybe my body has to get used to it or something. I like Indian food, so I don’t really mind.

So, I got a MUCH BIGGER pill organizer.

As you know, I am trying to establish new exercise and mindfulness habits. Today, I did the daily mindfulness practices for the week, a body scan (basically paying attention to each part of your body while doing relaxation breathing) and a “mindful meal.” During the meal, I tried to experience all of the flavor, texture, smells, etc of the food as I was eating it instead of just gulping everything down while I am fiddling with my smart phone or with my computer. (I don’t do this at family meals, just lunch.)

When my 9:30 testing case cancelled at the last minute, instead of driving straight home, I thought “I was going to take a walk around my office after I was done with this testing. If I go home now (testing takes a couple of hours and I didn’t have anyone scheduled until the afternoon), I know I’m bound to go inside and start working instead of going for a walk. I’m going on the walk now.” So I walked over to Red Cup Espresso. Gina and Samir made me a delicious latte, which I carried with me while I took a walk for an hour and a half. By the time I got back to my office, I felt great.

I drove home and started some cooking. I am also trying to prepare healthy meals ahead for freezing as part of my new eating habits. When it’s John’s turn to cook, he usually gets take-out. I’m trying to avoid that kind of food. It’s either fattening or unsatisfying or both. He has been working at top speed on building a deck so he is not going to be cooking frequently again any time soon. I also wanted to put away some food for my friend, Brian who had major surgery for sarcoma on the 13th. He will be coming home from the hospital soon.

When the mail arrived I noticed that there was an envelope from our insurance. We get a lot of these as you can imagine. I opened up the envelope and it was the Explanation of Benefits for my $28K hospital bill (please save rants about hospitals overcharging people for other venues) for my mastectomy. They said that they were paying $0 because the hospital had not obtained a pre-authorization. Aaaaaah! I took a deep breath and then went through John’s stack of mail because I know I had seen a pre-authorization for the mastectomy. I got the pre-authorization letter, a pen, and the Explanation of Benefits form. I let my fingers do the walking and called my insurance. The customer service representative was quite nice. (I do a lot of talking with insurance companies for my job. This is not always the case.) I asked her why the claims were denied even though I had a pre-authorization letter. As it turns out, insurance had already been in contact with Swedish Hospital about this. Apparently, they had a question about one of the charges and when that happens, it holds up the entire claim! As she noted that this inquiry had been made a couple of weeks ago, it would have been nice had they written something about this in their notes instead of just writing that the whole thing wasn’t covered. Phew!

Good thing I’m good at breathing!

Lindbergh High School Reunion '82, '83, '84, '85

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George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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