Archives for category: Feelings

Yesterday, I saw a young woman waiting for the elevator at the Swedish Cancer Institute. She was probably in her late 30’s. She wore well-fitting jeans (not tight, just right), a top, and a cute little hat on top of her nearly bald head. I thought, “She’s rockin’ that look.”

I smiled at her, said “hi”, and we both got on the elevator. She saw my Swedish tote bag, which identified my membership in the cancer club. She remarked that she had carried hers around for months but it made her feel like a nerd.  I joked that I called it “my big ole’ bag o’ cancer.” It ended up that we were both headed to the surgery clinic. We chatted a bit more as we waited to check in. She seemed smart and friendly. After we checked in, I joined John who was already in the waiting room and she sat in a different section of the room.

After several minutes, she walked over and said, “I hate waiting. Would you like to chat?” We introduced ourselves and talked for a few minutes. Jen had also just gotten surgery but this was her second surgery. She had also just completed a round of chemotherapy and it was likely that she would complete another one. I wish I’d gotten a chance to talk with her more but I was called in for my appointment soon after she joined us.

Jen looks really young and she’s had a lot of treatment in the last 7 months (she was diagnosed in December). Despite these sobering facts, I was reassured by her. Two of my biggest concerns about cancer treatment are having energy and if I should ever need chemotherapy, changing the way I interact with the world because I would be an obviously ill person. But Jen had enough energy yesterday morning to take care in putting together an outfit, which she rocked. (I know that she had just finished chemotherapy so she probably felt worse earlier but still.) She also engaged with me, a stranger in an upbeat way. I’m sure she gets lots of looks and has the frequent dichotomy of experiences where people either avert their gaze and ignore you or approach you and talk about your illness even though they are a stranger. But still, her presence was reassuring.

If I don’t see you again, Jen keep rocking the hat and I wish you a speedy recovery from this point on.

I’m still waiting on pathology results. In the meantime, although I’d sworn off spam this one is pretty funny:

hi mate…

Thanks for using the time to talk about this, I experience fervently about this And that I carry satisfaction in studying about this topic. Please, as you attain facts, please update this website with far more facts….

They must use an online language translator for this. It reminds me of the story John tells about early attempts at artificial intelligence during the Cold War, when computer scientists tried to develop an English/Russian translator. They inputted the bible quote, “The spirit is willing but the flesh is weak”, translated it into Russian and then translated it back into English, yielding, “The vodka was good but the meat was rotten.” Using the same process, “Out of sight, out of mind” became “blind idiot.”

John’s birthday is actually tomorrow, but I have work followed by a big doctor’s appointment, which could potentially usurp his birthday. Even if the pathology report has good news, I may be too pooped to party.

Anyway, back to John. As most of you know, my husband is an awesome guy. I was almost 21 years old when we met. I had not dated much in high school at all and had a few boyfriends in college, none of them being the greatest match for me or vice versa. As only a young adult’s logic can take them, I was coming to the conclusion that perhaps my lack of luck with men was a calling to become a nun, sort of by default. I was seriously considering meeting with Sister Catherine, at our church when I met John in a writing class at U.W. We both needed to take a writing class as a graduation requirement. This particular class, which had about 20 students, was linked to a huge lecture class taught by the famous history professor, Jon Bridgman. That class had about 500 students and covered classical history.

I first noticed John’s intelligence and kindness. He was a thoughtful speaker. It was clear that he liked to read (myself also a book lover) and that he took his education seriously. (I’d had a previous boyfriend or two who was more interested in begging me for my lecture notes instead of attending class.) There were a few minor obstacles, like the fact that he had a long distance girlfriend and that although he thought I was beautiful and a nice person, he didn’t like me. In his words, I was “loud and obnoxious.” I also thought his sense of humor was pretty lame and corny. (Yes, I know this is a shock since John is known for his wit.) But John was at times so amused with the absurd thoughts in his mind that he would just laugh for 20 minutes straight only to be able to choke out a word or two between guffaws, for example, “cock roaches!” See, not so hilarious without knowing his mind.

In the 25 years that John and I have been together, I sometimes think of how different my life would have been if I had just moved on after John told me that I was too loud and obnoxious for him or when he told me that he had a girlfriend. Something told me that things would work out and that we would be a good pair. Plus, my mom even liked him based on description and said that I should be patient because he sounded like a really good guy.

John and I were in different states during the 1st of his birthdays he’s had since we’ve been together. It was the summer of 1987 and he was working at fish canneries in Alaska. For his birthday, I made him two care packages. The first was “things that don’t smell like fish” and I filled it with homemade potpourris and sachets of herbs. The second box was “things that don’t taste like fish” and it was filled with homemade baklava and other goodies. I’ve never thought of this before but in the last several years, we’ve traditionally celebrated John’s birthday with a “seafood blow-out”, which is my cooking all kinds of seafood for dinner.

We might need to hold off on the “seafood blow-out” tomorrow. Did I mention that I’ve been pretty tired lately? Instead, I offer this “gratitude blow-out” to John. Happy Birthday, John. I’m glad I was patient with you and I’m glad that you took a chance on me! You are a wonderful person, husband, and dad.

I think John had something else in mind in terms of taking care of me. When I was first diagnosed last month he went directly to his HR department to find out how much paid leave he could use to take care of me. He soberly reported, “It’s not as good as I hoped. It’s only 5 weeks.” My reply, “John, I’m not going to hospice care. Five weeks is plenty.” (Plus, there’s the whole self-employed part of me that thinks, “Paid leave? Woo hoo! What are you complaining about?”)

So I think he had something more along the lines of the English Patient type care taking. The fact that I am doing much better than anyone expected is confusing. This morning, he started talking about movies again. The man is seriously passionate about seeing movies when they are in the theater. And his motivation to include me in this passion has ramped up recently. He would probably laugh at me, but I suspect this is his way of checking that I will still be around for him. That’s understandable and sweet but it is also irritating. I know that I have a hard time not feeling responsible for people. I’m actually feeling a little guilty that I don’t want to go to the movies this weekend and that John is feeling bored taking care of me. I know it’s irrational but since I have not yet learned to let go of this, I end up feeling annoyed with my husband who is just doing his best in dealing with a scary situation over which he has almost no control. Though I have to say, the fact that he has a good job and carries my health insurance is no small feat. Having excellent health insurance is an enormous privilege. I hope our country keeps moving toward shifting it from a privilege to a right.

Okay, now I’ve gone from annoyance to gratitude. Thanks again, Blog!

So, I am doing pretty well today, one day after surgery. My pain rating (on a scale of 0-10) is about about 1-2. John says he is running out of things to do around the house and noted that I don’t seem to need much besides a steady supply of decaf coffee. He asked my plans for the day. Plans? Sitting on my butt is my plan. Perhaps I confused him when I unloaded the dishwasher this morning with my left hand. (The surgery was on the right side.) Yes, I know you are all yelling at me in your heads as you read this. I am following the directions given to me by my nurse! I am taking it easy.

Anyway, John asked me “Do you want to go to a movie today. If not, I can go without you.”

“And leave me home alone?”

“Well, you haven’t really needed me much.”

“What if I get an infection? I’m not cool with you leaving today and I don’t want to go to a movie. I think it would be uncomfortable to sit in a theater.”

John did not need much convincing to stay home. I just think he needs to be needed. People just being around is a lot of help. A hard part of this process is that I don’t know how much help I will need and what kind I will need. I know that’s hard for John, too.

I promise to stay away from the dishwasher for the rest of the day.

 

Okay, I got bored resting within two hours of getting home. The biggest thrill was my first trip to the bathroom, which yielded blue pee. This would have been more exciting if I had not been warned of this ahead of time. (The reason? There was blue dye in the radioactive isotope for the sentinel node biopsy). Also, it might have been a little more exciting if it were a different color. Given the popularity of blue as a color for toilet cleaners, blue toilet water is actually kind of mundane. Plus, my pee color changed back to normal really quickly. Bored again.

This does not mean that I am not resting. I am still resting, just restlessly doing so. It’s not as if my couch cushions are unfamiliar with my butt, either. I can very easily waste time on the couch surfing, reading my Kindle, etc when I have a pile of laundry waiting for me to fold. Wasting time on the couch is so much more fun when it is every so slightly naughty than when it is mandatory.

I will be good. I will rest. I will be bored. Bored is way better than many alternatives. It’s like I told the anesthesiologist when he kept apologizing about having a hard time getting my veins to present themselves so that he could run an I.V. (It wasn’t his fault. My veins are tricky. Plus, he didn’t have to make more than one attempt with the needle, which has happened multiple times with other folks.) I just told him, “You all are trying to save my life. In the larger scheme of things, this is no big deal at all.”

I will be bored. Boredom I can live with.

Every day now, I receive Spam comments to my blog. They are usually some thinly veiled advertisement, badly translated from another language–a word salad of barely intelligible meaning. Today, I received kind of a hostile comment on one of my posts. I didn’t save it so I am paraphrasing. “I am disappointed in your blog. I hope it will not be so disappointing next time. You keep crying about your situation just to get attention.” Then there was a link to some product. I imagine the tactic is to get people mad enough to click the link, in hopes of sending off an angry email. By that time, it is too late and they will have become the next set stars of the company’s Spam-a-lot production.

I did not click on the link. But I did think you’d appreciate seeing what post was criticized for being so whiny:

 

Lots of Kindness

Although my husband may disagree in matters related to my attitude toward his contributions to housekeeping, I am a pretty positive person. I believe in the inherent value of people even if they do “bad things” or worse, even if they annoy me. Even with my above average rosy view of humanity, I am absolutely blown away by the kindness I have received regarding my cancer. There is at least one person praying for me (a chaplain at St. James’ Cathedral) who has never met me. My friends and relatives have been beyond kind and helpful. The various technicians and nurses at Swedish and their partner health care offices tend to my comfort, ask me for the names of my doctors, and tell me that I have an “excellent team” caring for me.

I sure don’t like being seriously ill but this is pretty sweet. No wonder Huck Finn (or was it Tom Sawyer) faked his own death so he could hear all of the nice things that people said about them. No wonder people have trouble with malingering or Munchausen’s by proxy. All of this attention could be addictive to some people.

But no worries. As much as I am touched by the kindness around me I look forward to the day it will not have to be so obvious and necessary. I look forward to being taken for granted. (Okay, that last bit is dishonest. I hate being taken for granted! Ah, the song of a mom of a teenager.) Let’s just say, I look forward to the day when I am not taking up so much space in the worry parts of people’s brains.

In the meantime, keep the prayers and positive vibes coming. I’ll send mine your way, too.

As you know, Zoey finished middle school last Friday. This year has been a bumpy double marathon for her but she ended a year on a high note. She is feeling sad that she will not see some of her friends every day any more, since a number of kids are going to different high schools next year. I suspect she will actually see a couple of them at All City Band this summer, which starts rehearsal next week but she doesn’t really know who will be there. Zoey is a kid who needs major down time after a big event, a party, a martial arts best test, a week of standardized testing, etc. We’ve had a lot of events lately and she really hasn’t had a chance to vegetate, which can make her pretty anxious.

She has also gotten quite worried about me. We went out to dinner with grandparents last Friday and when someone mentioned my going to the hospital later this week, she said, “Mom, you’re going to the hospital?” It had apparently not registered with her when I told her about my cancer and she has not really wanted to talk about it since that time so I’ve kept her exposure to “cancer talk” to a minimum. So, I re-explained that I was going to the hospital for surgery but that I would be home the same day. I told her what she would be doing that day (glass blowing class followed by All City Band rehearsal) as well as who would be driving her to the different events. She kept excusing herself from the table “to get some air” and she paced up and down the street. Eventually, I walked with her to the bakery down the street from the restaurant so we could buy desserts to take home. She let me put my arm around her as we walked (in public, in our own neighborhood, no less). I told her that I knew it was a really hard time but that I really thought everything is going to be okay. I also told Zoey that I thought she’d feel better once she started going to the All City Band rehearsals and saw some familiar faces. She didn’t say much, but she listened and it was a nice mother-daughter moment. Plus, she got cake out of the deal.

Later that night she came into my room to make sure I was okay and not upset. (I had gone to bed particularly early because I was particularly tired.) I told her that I was just tired and gave her a hug good night. I asked her if she wanted to crawl into bed and read with me until John came to bed but she said that she was really tired, too so she went to bed.

I know she will be fine but I hate to see those wild big eyes she gives when she is scared. I can only tell myself that in all likelihood, this will end up being a good learning experience for her, especially if John and I can keep modeling good coping for her. That’s not the most poetic way to put it, but it’s true. And truth is nothing to sneeze at.

Next Wednesday I graduate from one stage, the diagnostic stage to the next stage, the treatment stage of my breast cancer.  This stage starts with surgery, unless you count the needle biopsy I had since technically, they removed cancer cells to do it. (See, I’m healthier already.) Other than knowing that I have three appointments with three different physicians the following week, I don’t know what the steps will be after surgery. That’s because the surgery is part treatment and part assessment. And I suspect that a lot of medical treatment is like this, that in treatment more information is gathered and this informs successive treatment decisions. That’s what my job is like as well.

I cope best when I have concrete and active things to do and when I am able to rest and take care of myself. I am running out of these steps before I hit another misty patch of ambiguity. I’ve also finished the big pile of work that I needed to get completed during my last two weeks’ work marathon. Now I’m tired and my to-do list is not entirely clear. I find myself starting to get into “what if?” territory. “What if” I get radiation and I’m one of those people who gets fatigued for years afterwards. I wonder if my hair is long enough to give to Locks of Love if I end up having to get chemotherapy? If it were, then some good could come of cutting it rather than just waiting to lose it all. I think you get the picture.

So this started a couple of days ago and here is my plan to nip it in the bud:

1) I’m going to meditate for 10 minutes today after I finish this blog entry.

2) I’m going to stay off of the computer tonight to help me get a good night’s rest.

3) I am going to list all of the steps of cancer diagnosis and treatment that I have already completed so far. Even though I didn’t start out with a full check list, these are still steps I have gotten through and represent forward progress:

I have completed:three mammograms, 2 ultrasounds, 1 needle biopsy, 1 MRI, 2 blood draws, testing for the BRCA genetic mutations, and two results phone calls. All of this has entailed 6 trips to Swedish in the span of less than 5 weeks. Not too shabby. Lots, lots, more items will be coming to my to do list, but I’ve definitely made progress past square 1.

At the risk of getting all “Mama Grizzly” I will tell you that I am beyond tired of the comments thrown our way about how our daughter is this or that way because she is an “only child.” And no, folks aren’t chalking her numerous awesome qualities to the fact that she has no siblings. At times, her singleton status was used to explain positive qualities such as the times her otherwise sweet kindergarten teacher ascribed Z’s exemplary vocabulary to “you know, she’s an only child.” Her K teacher said this with a definite negative slant. With a flavor of “your conversing with your daughter has given her the horrible handicap of too many words when she should be engaged in more developmentally appropriate activities such as paste-eating.”

And on occasion, I’ve had people ask me, “Why do you only have one child?” These are not close friends.  These are people who I am meeting for the first time. Thankfully, I am old enough that people don’t ask me this anymore. But my stock response to the question of “Why do you only have one child?” is “Because one is all we have.”  Most people understand that this kind of circular answer is code for “you are asking an overly personal question” and they stop.

So is it really true that single childhood is a burden we give to our children?

Fact: Research shows an advantage for only children in terms of ultimate educational attainment. (No, an association does not mean that no one from a large family can get a Ph.D., says the 5th of 6th children, who has a Ph.D. It’s a probability thing, not an absolute relationship. That’s the way research is–there are almost always exceptions.)

Another Fact: Any general social advantage that children with siblings might show in kindergarten, goes away a couple of years later.

Another Fact: Zoey is an individual. Even if it were true that only children don’t know how to share or are more selfish she has proven this not to be the case with her:
Zoey was the leader of the “change the world club” that met at recess at her school. They carried around notebooks and brainstormed ideas for alternative energy sources. This club started in grade 2, when she was 7 years old. Nobody suggested this idea to her. It was a cause and club that she initiated.
Zoey started her own fundraiser after worrying about world hunger. She did a read-a-thon, called relatives, went door to door, talked to her teachers and principals. She raised $1800 for Heifer International. How old was she? She was 8 years old.
Fast forward to 6th grade, when Zoey was 11. One of the girls at school didn’t have enough money to go to the Disneyland trip with the band. Zoey started a fundraiser and put in $50 of HER OWN MONEY. She ended up raising $200. The girl’s parents were inspired to chip in the rest of the money. I was kind of surprised that they didn’t return the kids’ money especially since they live in an expensive part of town. (Maybe they were only children or something.)
Zoey has participated in the Big Climb to raise money for the Leukemia and Lymphoma Society for the past two years.

And yes, I get it that she will not have sibling relationships after we die. That does worry me. But she does have deep and wonderful relationships with her cousins.

Okay, so if you have a problem with my kid, her quirkiness, loudness, the fact that she can run hot and cold, talks too much about Futurama, or any other quality that might rub you the wrong way, don’t blame it on the fact that she is an only child and therefore more selfish, less empathetic, or more socially maladroit. Everyone has quirks, even ME, THE GIRL WITH FIVE BROTHERS. Plus, she has about a million positive qualities. How about focusing on them and just enjoy her as she is. It should be easy. You don’t even have to remind her to do her homework or clean up after herself.

As a child/adolescent psychologist, I can tell you that there’s almost never one reason why someone is the way that he/she is. Pat explanations can be harmful. In my job I hear them all of the time, “There’s no such thing as ADHD, some kids are just brats and lazy. There’s no so thing as learning disability;  those kids are just looking for crutches when the real problem is that they are not smart enough”, etc. Those kinds of comments, especially at this time, they can act like a rasp to the heart strings of this Blog writer who is just trying to get through a stressful week before surgery, irrationally afraid that she will be too sick and tired later this summer to be a good mother to her teen girl, and who doesn’t need another reason to feel irrationally guilty because she was too selfish to produce a sibling for her kid. (She must be an only child.)

P.S. If you secretly think I may be talking to one of your readers specifically, I’m not. I have heard this all through the years from everyone and their mother. (Actually, everyone but my mother, thanks mom.) If you have made these kinds of comments to me about me or to others, please consider that parents have enough to feel guilty about without adding something that isn’t even generally true. These comments often come from well intended places, but please think about what you are saying and how it might impact others.

P.P.S. If you still think this post is about you, have taken offense, and feel the need to express your complaints, please wait until I’m done fighting cancer and then you can kick my ass all you want. I will almost undoubtedly tell you that I didn’t write this post about you and if you hold these views about only children, I will likely stand firm in my position but I’ll love you no matter what.

I am mama grizzly, hear me roar!

 

Lindbergh High School Reunion '82, '83, '84, '85

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George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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