My April posts have been loosely inspired by the WEGO Health Writers’ Monthly Challenge. I have yet to use any of their daily writing prompts until now. Today is the Haiku challenge! I have written a few haiku just for you! I have categorized them, because unlike good poetry, my haiku do not stand well on their own.

About acupuncture:

Freezing my butt off
Instead of constant hot flash
Needles are good, yay!

About TRAM surgery recovery:

Righty’s still swollen
Cleavage moved left of center
Tee hee hee, cancer.

On having 2012 annual taxes and 2013 estimated first quarter taxes due within two days of one another:

Taxes are due twice
In the mid-month of April
Self-employment, boo!

About these haiku:

Writing breast-themed poems
After years of instruction
Makes teachers cry hard.

There you have it, I have actually followed the challenge today!

My activist sign today reads: Follow directions when it suits you.

These tulips are a little frilly for early spring. The fancy tulips usually don't start blooming until it gets warmer. Maybe these are having hot flashes.

These tulips are a little frilly for early spring. The fancy tulips usually don’t start blooming until it gets warmer. Maybe these are having hot flashes.

P.S. One of my favorite children’s books is an illustrated compilation of haiku by Issa called, Cool Melons-Turn to Frogs. Here’s an example from the book:

Cool melons-
Turn to frogs!
If people should come near.
-Issa, translated by Mathew Gollub

Issa, you felt sorry for the melons at the market because they got eaten after they were purchased. Would you be interested in sampling some Soylent Green?

I finally got around to making the very healthy chia pudding recipe I posted from my dear friend, Mike, who practices Chinese medicine in New York City. Helen of My Lymph Node Transplant had made it a few days earlier and kindly noted that it was a bit on the bland side, so she had added extra dates to it. At that point Helen declared it, “very nice”. So I doubled the dates. I also ended up roasting my raw cashews after my husband reminded me that he is allergic to raw nuts. I also substituted olive oil for coconut oil. I couldn’t find the latter and I suspect my daughter has absconded with it to use as wax for some project she is doing in her room, perhaps making a surf board out of a tree branch or something. (I exaggerate her mad scientist shenanigans only slightly. Only this morning, I found a seafood fork in the shower.)

After I blended the pudding in the my food processor, I gave it a sniff. It had a pleasant, nutty aroma. The appearance is a nutty tan color. I did not think it looked bad. However, my husband, who will eat ANYTHING, wouldn’t even try a bite. I ate a little spoonful and it tasted good and the texture was similar to tapioca pudding, just as Mike had described in his introduction to the recipe. Wait, a minute. I just remembered something. I don’t like tapioca pudding because of the texture. Actually, I find the texture to be somewhat disgusting. Did I think the fact that this pudding has healthy ingredients was going to change this for me? Aaaah! I have become my grandmother. Unlike the stereotypical expectations of a first generation Italian immigrant, my nonna was a pretty lousy cook. I remember how incredulous she was when her soups didn’t turn out tasty. She would say, “But I put a whole stick of good butter in it and a wedge of good cheese.” She thought the quality of the ingredient trumped all. And grandma, why did you put all of that butter in the soup. Yuck! (My mother has read this post and believes I may have confused her mother with Paula Deen, the famous butter loving chef.)

So, I took all of this time and energy, not to mention the expense of the very healthy ingredients and ended up with Soylent Green! You don’t know what soylent green is? It’s the “plankton based” food that people had to eat in the dystopian future sci-fi movie of 1973 starring Charlton Heston. You see the world had ruined the environment and was running out of food. Charlton played a rugged and “sexy” cop whose wardrobe looked like a mash-up of Oliver Twist and Mork of Mork and Mindy. The masses in this society had to eat processed “plankton” crackers. But as Charlton learns by the end of the movie, there’s no plankton. “Soylent Green, it’s people, it’s people!”

Okay, so my initial batch of chia pudding reminded me of a film about cannibal crackers. That is not a good start. But I had put this much time into it and put lots of good ingredients in. So, like Katie Torlai before me, I started combining it with stuff. I added a couple of tablespoons of pudding to 2 tablespoons plain Greek yogurt, 2 tablespoons flax seed meal, and 3/4 of a peeled apple, sliced into small chunks. This concoction was to be my breakfast, which I have adopted as my “medicinal meal”, that is the way I get 2 tablespoons of flax seed meal into my diet each day. Consequently, my expectations for breakfast are low.

As I mixed up my small vat of chunky, seedy, goo, the appearance points for the dish dropped from 1/4 of a star to zero stars. It looked really unappealing. I took a taste, fully expecting to exclaim, “Soylent Green, it’s chia, it’s chunky, yogurty, seedy chia!”

To my surprise, the added ingredients actually improved the dish’s texture score from 0 stars to 1 star. It no longer reminded me of the goo from badly cooked okra. The flavor rating was bumped up to 1 1/2 stars.

Ding, ding, ding! Marginally palatable breakfast is served!

Photo from Wikipedia

I just offered Charlton a spoonful of pudding. Coward!!!!
Photo from Wikipedia

P.S. I almost forgot that it is Health Activist Writers’ Challenge month. Today, my health activist sign reads as follows:

You are what you eat, especially if you live in a dystopian future complete with Soylent Green as the only food option.

I had my first acupuncture appointment today. The doctor was trained in both western and eastern medicine for 8 years in her native country of China.  She seemed bright and vivacious. Her touch was gentle but precise as she took my pulse, which was reassuring to me.

The needles were no big deal. I could barely feel her putting them in. They were left in for 30 minutes, during which I did relaxation breathing and occasionally reminded myself not to scratch my nose because my hands were full of needles that I couldn’t even feel. I was not even creeped out by the fact that she put one needle between my eye brows and another on the top of my head.

The 30 minutes passed fairly quickly. She skillfully and quickly plucked the needles from me like daisy petals. Then she ran her hands gently over my body to make sure that she’d removed all of them. I left feeling refreshed.

I am going to see her once a week for 6-8 weeks. We’ll see what happens!

In the meantime I have a couple of practical tips for those of you who might consider receiving acupuncture:

1) Use the restroom before your appointment. I ended up being fine but when she said, “30 minutes, you be okay?” after placing about 40 needles my first worry was that I would need to use the restroom. (Women, who have given birth and/or women of a certain age, you know what I am talking about.) In general, I am what I call an “opportunistic pee-er”. Just like I did with my daughter in the first few years after potty training, I often make sure that I at least “try” upon leaving the house or upon arriving at a new destination. Today, I didn’t because I came into the waiting room with a 20 ounce beverage. You might think that’s more reason to use the little girl’s room but although I’m not religious about it, I don’t like to bring food to the bathroom with me. I had planned to get settled in the waiting room and then scope out the facilities. But then I got absorbed in the paperwork and chatting with the fascinating woman who works in the waiting room. Although I did not make my usual potty stop, I ended up being just fine.

2) If the thought of needles creeps you out, I just want to remind a lot of you out there that you have endured much more invasive and creepy procedures in your medical treatments. This treatment was actually relaxing, pleasant, and blood free. And for bonus points, I didn’t even have to take off more than my shoes and socks! She just pulled up the legs of my yoga pants a little and pulled them down a bit at the waist.

3) Be prepared to talk about how you life, especially stress may have contributed to your disease and what methods you might use to reduce the stress in your life. I know that to some people, this approach feels like the patient is being blamed for their disease. I don’t take it that way myself but as a psychologist, I think of the brain (mind) as being part of the body, rather than being separate. So the idea that emotions, thoughts, or other “mind stuff” impact the way the rest of one’s body works is no news to me. To be clear, I don’t believe that disease is caused only be stress, attitude, etc.

It was pouring down rain this morning so I waited to take my walk. It’s beautiful so I’d better get going!

Today’s Health Activist Writer’s Challenge inspired post is about men with breast cancer. Scorchy, of The Sarcastic Boob posted a link to her new FaceBook page to Oliver Bogle’s blog, Entering a World of Pink. Dr. Bogle was diagnosed with breast cancer last fall. Coincidentally, he is a cancer researcher at the very prestigious Anderson Cancer Center in Texas. His wife is also a cancer researcher there and is a 5 year-old breast cancer survivor.

Thanks to Scorchy for sharing the link to the blog. It is excellent not just because it deals with male breast cancer, which deserves a lot more attention than it gets. It is very well written and since Dr. Bogle has a Ph.D. and experience as a lab scientist, his explanations of topics such as how Taxol works at the molecular level will blow you away. I also suspect he has a teaching background because by the way he writes because his explanations are excellent. I feel like I took a short continuing education class.

There are also less technical topics that would be helpful to many breast cancer patients, especially for newly diagnosed patients. For example, the post on the multidisciplinary approach to cancer assessment and treatment is really good. I know when I had my first surgical consultation one day after my breast cancer diagnosis and my dear friend, Nancy, asked Dr. Beatty about whether I should set up appointments with a “medical oncologist” and a “radiation oncologist”, my first thought was, “I thought all of these doctors were medical oncologists.”

So check out Dr. Bogle’s blog. It’s really good. I read the entire blog this afternoon. And yes, easy for me to do because I am at home recovering from surgery. If you would like to have an overview of male breast cancer, you might listen to the 20 minute podcast made by Dr. Bogle and his medical oncologist, Sharon Giordano, M.D. Click here.

I remember being in church as a teen listening to a homily by a visiting mission priest and an interesting man. One of the remarks he made in his sermon was some thing like, “The only one you convert when you are missionary is yourself.” It was a thought-provoking statement with I believe some truth in it.

In the spirit of his words, I have taken the Health Activists Writers’ Challenge today to help activate myself. I have been procrastinating about making an appointment for acupuncture. I left a phone message yesterday and today, I made an initial appointment. It is spring break for many schools so the doctor’s schedule is a bit lighter this week. So my initial appointment is tomorrow.

I will let you know how it goes.

Today, I am sitting in the waiting room at the surgical services for the Swedish Cancer Institute. I’ve been here many times before as a patient and I will be here again in the future, as a patient. But today, I am here as a support person. One of our family friends was recently diagnosed with breast cancer. I offered to come to the first surgery consultation with her and her husband.

One of the Health Activist Writer’s Challenge writing prompts is to provide tips to the newly diagnosed. I will use my experience this morning, as well as my recollection of my own thoughts and feelings from my own initial consult last May, to inform future post dedicated to this subject.

But first and foremost, I hope to be helpful in this meeting. This is a scary time in the process, where the “what if'” greatly outweighs the “what is”.

Stay tuned.

For today’s Health Activist Writers’ challenge post, I have a challenge for you.

I challenge you to join the WRF, the World Resting Federation. Yes, you read right, the World Resting Federation. Yeah, we get confused with another world federation. We have a similar name plus we also wear really cool costumes and have cool names. My resting name is Googly Eyes. We also engage in bouts to see who is the hardest rester. I am able to use the mesmerizing power of my cattywampus bosoms to render my opponents wide-eyed while I catch some major z’s.

Are you ready to rest with the best?

Come see my next match.

It’s on Sunday, Sunday, Sunday!

Limited edition commemorative pj’s will be on sale.

smiley t shirt small

This post was inspired by the Health Activist Writers’ challenge for the month of April. I write “inspired by” because I have yet to use one of their suggested daily writing prompts.

As a child psychologist, I am often advising the mothers of my patients to take more time for self-care. A frequent response is, “I know, but I just don’t have time,” to which I reply, “If you feel you have no time for this than you have been without time for yourself for far too long and this is even more reason to do it!”

I know I am asking a lot of moms who are already taxed with parenting, work, and household responsibilities. I have struggled with the same life balance issue myself over the years, especially since becoming a mom 14 1/2 years ago. One of the valuable lessons I am continuing to learn as a breast cancer patient is to take care of myself, I mean REALLY take care of myself. It’s not that I was living a martyr’s life but I was not taking sufficient care of my health. To do this properly, takes time.

In 2002, I was laid off from my very first job following the completion of my post-doc. To make a long story short, the job was ugly. It was the first time in my life that I was treated like I was incompetent. Down deep I knew that I wasn’t incompetent but to be treated this way for nearly three years in my first “real job” and right after becoming a mom was a major blow. The lay off itself was done in a fairly nasty and unfair fashion. It was toward the end of that job that I had my first of two incidences of Major Depression. (The second incidence occurred a couple of years later but only lasted 2 weeks because I got back into treatment immediately after recognizing that I was not myself). It was BAD. It wasn’t just sadness, which is what a lot of people mean when they say, “I’m depressed.” I had no appetite. Food was flavorless. I lost 10 pounds in a week. My sleep was messed up and I had to will myself through each day to have enough energy to parent Zoey who was a toddler at the time. She has always been an empathetic girl and at the time, was learning to read facial expressions. I remember feeling heartbreaking guilt and sadness one day. She was sitting in my lap, looked up at my face, used her fingers to push my mouth into a smile while anxiously asking, “Mama happy?”

Being laid off and depressed was a major wake up call for taking care of myself. And since I was laid off and able to collect unemployment for a few months, I was able to make use of the time to figure out what to do with my life professionally. At that point, I decided that I would never rely on one source of salary again if I could help it. So in 2002, I applied and tested for my psychology license in Washington state and in 2003, started my private practice. Meanwhile, I was writing research grants and ended up being employed through two of them, the longer one landing me on the research staff of the Social Development Research Group at the University of Washington. I worked there until 2007 until the research money ran out. I was unable to secure funding for more grants. As the money ran out, I expanded my practice and then by the time I left U.W. in April of 2007, I was able to build up my practice to full time. Although being in private practice had not previously been an aspiration of mine, it ended up being the perfect job for me.

So although I would not have taken that job had I known what it was going to be like, I got some very positive life lessons out of it. Also, I made a number of friends at that crazy job including my dear friends, Jennie and Lisa, whom I’ve mentioned in my blog. Hmm, taking the opportunities afforded by crappy life circumstances to glean important life lessons? Gee, that kind of sounds like my breast cancer experience thus far.

Fortunately, I was able to use some of those life lessons from my crappy job experience to cope with my breast cancer better and to avoid getting depressed again. Sorry, I hate being depressed. And yes I have grief, but healthy grief and clinical depression are not the same thing.

So having breast cancer and especially the time off after my major surgeries, has given me some time to revise my life plan so that I am a happier and healthier person. As I mentioned previously, taking care of myself takes time and emotional space. I will not always need this much time and this much emotional space but right now I do. At first, this was a hard adjustment for my husband because healing has meant my being more emotionally distant than usual. (And no, I don’t just mean less sex.) We had to develop different ways of spending time together, for example, John started accompanying me on my walks on the weekends. He also eats all of the healthy dinners I make ahead of time in reasonable dinner-sized portions and freeze. The walking and the diet change have been part of the reason that John has lost 22 pounds. My taking care of myself has also meant that John had to take on more responsibility and learn how to take care of me after surgeries. It has also meant John taking care of some of his own health issues better.

For Zoey, my cancer has meant worrying about a parent’s mortality at an earlier age than average. It has meant seeing me less energetic and weaker at times. But overall, I am very happy to report that Zoey has more than risen to the challenge. She fairly quickly snapped out of the angry, eye rolling teen stuff that she was directing toward me and started treating me much more respectfully and affectionately. She is often there with a glass of ice water when she sees me fanning myself during a hot flash and she secretly changed my screen saver to a banner that reads, “I love you, Mom,” just because. Sure we have our moments and she is still able to be disrespectful and her eye rolling muscles aren’t totally lax. And having a mom who is a breast cancer patient when she is a 14 year-old girl makes her life harder. I wish she didn’t have to go through this. But she has grown enormously.

Finally, by taking care of myself, ultimately, I will take better care of my patients. Some of them are feeling a little anxious and impatient because I am off work again for an extended time. But if I don’t take care of myself, I will not have enough energy to do a good job. And as my dear friend, Nancy points out, by taking care of myself and coping positively with a major life stressor, I am modeling valuable skills for the families I see.

So even though the villagers were not initially happy with my changing my life to have a stronger focus on self-care, ultimately, my self-care is reaping benefits for the villagers.

I do believe that there is more than one good solution to every problem but perhaps this lesson could be helpful to some of you readers out there.

 

Let’s say you signed up for a health activist writers’ blogging challenge to write 30 posts in 30 days.

Let’s also say that you had major surgery 3 1/2 weeks ago.

And to earn extra points, you walked three miles and had three healthcare appointments, two of your own and one of your daughters.

You have not driven much lately but today you drove to downtown and back twice. The final trip home was at 5pm on a Friday, the usual bad traffic, and a teen in the car who is playing along with her tunes using drumsticks on the dashboard.

You get home and your husband tries to engage you in conversation. You find that you are unable to communicate coherent thoughts. He understands and gives you space.

Then you have dinner and watch a video because it is family night. It is your husband’s turn to choose the movie and thankfully he picks something light. He has a rep for choosing the cod liver oil type films meant to impart a meaningful lesson to your daughter. He is annoying that way. When she was 8, he chose ‘Chariots of Fire’ and then kept getting annoyed with her for repeatedly raising her hand to ask questions. For some strange reason, she did not understand the subplot involving anti-semitism. Also, the frenetic pacing of the movie, especially the slow-motion running scenes was too much for her. She did however, like Vangelis’ score and downloaded it to her iPod. 

Supposing you did all of these things, you perhaps would not hesitate in your bedtime routine even when your husband notes, ‘But it’s only eight-thirty’.

You will finger type a post on your Smartphone, secure in the knowledge that you are taking care of yourself.

As a healthcare activist, my sign reads, ‘Women of the world, rest when you are tired.’

April is the Health Activist Writers’ Month Challenge to write 30 health related posts in 30 days. Today’s post reflects my taking on this challenge of not only posting 30 health-related items in 30 days but to incorporate some activism into my blog.

Last spring, like many younger than average breast cancer patients, I had my blood drawn and sent to Myriad Laboratories for genetic testing. The purpose of the test was to determine whether my BRCA 1 or BRCA 2 genes were mutated. As most of you know, BRCA 1 and 2 protect against breast and ovarian cancer, so if one or more of them are mutated, you lose some of that protection. One of them protects men against prostate cancer. My understanding is that although most breast cancer is not due to BRCA mutations and that only an estimated 5% of breast cancers are believed to be genetic, the risk of breast cancer for women with 1 or more of the mutations is 90% and the risk of ovarian cancer is 40%. Furthermore, BRCA 1 and 2 mutations are highly heritable.

Fortunately, I did not have either genetic mutation and further, there is a relatively low incidence of breast cancer in my extended family history. But the stakes for individuals with these mutations is high. Women who test positively for the mutation/s are often advised to 1) get a bilateral mastectomy or get annual MRI’s and diagnostic mammograms and 2) have their ovaries removed. (The reasoning being that ovarian cancer is difficult to detect until it is advanced.) These recommendations are also often given to women who test positive for the genes but who do not have breast cancer.

BRCA testing is very expensive and is not covered by all insurance companies. Further, many people in this country do not have adequate health insurance. My wonderful genetics counselor told me that there is only one lab in the country, Myriad Labs, that does this testing. I thought this was curious but didn’t give it much thought at the time because I was busy freaking out about having just been told that I had breast cancer.

The reason that Myriad is the only laboratory that performs the tests is because the U.S. Patent Office granted them a patent on the BRCA 1 and BRCA 2 genes! So a company has patented human genes! They are the only lab that is allowed to do the test. I’m no patent attorney, but this is more than a little alarming to me. What does it mean to patent a gene? A gene is an actual physical thing. If old college and grad school memories are correct, genes are just particular sequences of amino acids that have a particular location on a chromosome. (Okay, I just looked it up and it is the sequence of nucleotides, not amino acids, and I’m not going to start over because my brain just exploded.) I thought patents deal with intellectual property. What is the intellectual property at stake here? Do they own the right to examine and glean information from these particular genes? I’m confused.

So whose DNA is it, anyway? This question, in respect to the BRCA 1 and 2 tests, is being examined by the U.S. Supreme Court starting on April 15th. I for one, will be following this decision closely.

I first learned about this issue through my involvement with the Empowered Doctor website. Their article can be found here. Another good article can be found on the New York Times Book Review website.

Hey Myriad, if Watson and Crick could share credit for their independent discoveries of DNA, why can't you share with other labs? (Image from Wikipedia)

Hey Myriad, if Watson and Crick could share credit for their independent discoveries of DNA, why can’t you share with other labs? (Image from Wikipedia)

Lindbergh High School Reunion '82, '83, '84, '85

Join us this summer for our reunion in Renton, WA!

George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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