This post is from 7/4/12, right after the pathology report came back from my first lumpectomy and I learned that the margins weren’t clear and I needed another surgery. Until the surgical part of treatment was done the rest of the treatment plan could not be solidified. So even though I’d been a cancer patient for over a month, I still didn’t know whether I would need to have chemotherapy or radiation treatment. As it turned out, I had two more surgeries to go and my treatment plan would not be formalized until August.

 

Yesterday, I saw a young woman waiting for the elevator at the Swedish Cancer Institute. She was probably in her late 30’s. She wore well-fitting jeans (not tight, just right), a top, and a cute little hat on top of her nearly bald head. I thought, “She’s rockin’ that look.”

I smiled at her, said “hi”, and we both got on the elevator. She saw my Swedish tote bag, which identified my membership in the cancer club. She remarked that she had carried hers around for months but it made her feel like a nerd.  I joked that I called it “my big ole’ bag o’ cancer.” It ended up that we were both headed to the surgery clinic. We chatted a bit more as we waited to check in. She seemed smart and friendly. After we checked in, I joined John who was already in the waiting room and she sat in a different section of the room.

After several minutes, she walked over and said, “I hate waiting. Would you like to chat?” We introduced ourselves and talked for a few minutes. Jen had also just gotten surgery but this was her second surgery. She had also just completed a round of chemotherapy and it was likely that she would complete another one. I wish I’d gotten a chance to talk with her more but I was called in for my appointment soon after she joined us.

Jen looks really young and she’s had a lot of treatment in the last 7 months (she was diagnosed in December). Despite these sobering facts, I was reassured by her. Two of my biggest concerns about cancer treatment are having energy and if I should ever need chemotherapy, changing the way I interact with the world because I would be an obviously ill person. But Jen had enough energy yesterday morning to take care in putting together an outfit, which she rocked. (I know that she had just finished chemotherapy so she probably felt worse earlier but still.) She also engaged with me, a stranger in an upbeat way. I’m sure she gets lots of looks and has the frequent dichotomy of experiences where people either avert their gaze and ignore you or approach you and talk about your illness even though they are a stranger. But still, her presence was reassuring.

If I don’t see you again, Jen keep rocking the hat and I wish you a speedy recovery from this point on.

I started walking daily last fall. I started tracking my walks on a phone application on December 2nd.

Since that time, I’ve walked over 200 miles and during the coldest and rainiest time of the year.

So that’s over 200 miles on my journey of health. Hooray!

In case you missed this picture of my glamorous walking outfit from an earlier post. Today I am wearing a light weight teal rain coat and striped socks!

In case you missed this picture of my glamorous walking outfit from an earlier post. Today I am wearing a light weight teal rain coat and striped socks!

Not surprisingly, breast cancer is not big sexy time.

When I learned that I had breast cancer and needed surgery, I expected the anti-sexy impact of stress and surgery. I did not, however, expect to have six surgeries and counting.

When I started taking hormone blocking medications, I expected to go into early menopause and to perhaps have hot flashes, not to mention the impact of having almost no female hormones on a woman’s sex drive. I didn’t expect that for a few months, every time my husband did as much as put his hand on my shoulder that I would immediately have a hot flash.

Last October, my medical oncologist asked me what I using for birth control in the couple of months before the Lupron injections had done their work in rendering me infertile.

I told her. Her response? “Wow, most women laugh in my face when I ask them about birth control use during breast cancer treatment.”

So maybe I’m “big sexy time” for a breast cancer patient.

Okay, people think about cancer and an immediate thought is often hair loss. Fortunately, I did not have to endure chemo and all of its yucky side effects.

This does not, however, mean that I was spared from my cancer treatment having any impact on my hair. As I have over-shared so frequently in the past, I take hormone blocking medication because my breast cancer grew in response to lady chemicals, estrogen and progesterone.

I take Lupron, which “shut down my ovaries” by disrupting the signal between my pituitary gland and my ovaries. So my ovaries do not make progesterone and estrogen.

Other parts of the body make estrogen, though, for example, adipose tissue (fat and other stuff). This is one of the reasons that being overweight is a risk factor for breast cancer. This is why I walk three miles a day and eat the way I do. I was overweight and want to stay a healthy weight.  I take another medication, Tamoxifen, that works by preventing estrogen from binding to cells in the body.

I have surmised that I have less estrogen in my body than a menopausal woman because my estrogen is getting knocked out two ways. I may be wrong about that but lets just say that my level of female hormones is well below average for a woman, even a woman of my age.

The first change I noticed was the introduction of hot flashes. Another change was that I’ve been getting hairier. At first I noticed more hair above my lip. Last week, I noticed a downy fuzz of barely visible hair on my cheeks and jaw. The last time I checked, I was not a 13 year-old boy.

Aaaaaaaaah! I’m the bearded lady!

But the silver lining is that just as I am a good looking breast cancer patient (with so many of us ladies having to get chemo, it’s an easy bar to clear), I’m pretty good-looking for a bearded lady.

And maybe I can make a little extra circus moolah on the side to help pay the medical bills.

Another, good-looking bearded lady, Annie Jones toured with Barnum and Baily Circus. From Wikipedia http://en.wikipedia.org/wiki/Bearded_lady

Another, good-looking bearded lady, Annie Jones toured with Barnum and Baily Circus. From Wikipedia http://en.wikipedia.org/wiki/Bearded_lady

 

This post is from 6/28/12, one day after my first surgery, which was a lumpectomy. I’ve had five additional surgeries since this time and John and I are still trying to work out the rhythm of the caretaker/patient dance. We are getting there and planning for my reconstructive surgery in March.

 

So, I am doing pretty well today, one day after surgery. My pain rating (on a scale of 0-10) is about about 1-2. John says he is running out of things to do around the house and noted that I don’t seem to need much besides a steady supply of decaf coffee. He asked my plans for the day. Plans? Sitting on my butt is my plan. Perhaps I confused him when I unloaded the dishwasher this morning with my left hand. (The surgery was on the right side.) Yes, I know you are all yelling at me in your heads as you read this. I am following the directions given to me by my nurse! I am taking it easy.

Anyway, John asked me “Do you want to go to a movie today. If not, I can go without you.”

“And leave me home alone?”

“Well, you haven’t really needed me much.”

“What if I get an infection? I’m not cool with you leaving today and I don’t want to go to a movie. I think it would be uncomfortable to sit in a theater.”

John did not need much convincing to stay home. I just think he needs to be needed. People just being around is a lot of help. A hard part of this process is that I don’t know how much help I will need and what kind I will need. I know that’s hard for John, too.

I promise to stay away from the dishwasher for the rest of the day.

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Earlier today, I referenced the Journal of Polymorphous Perversity. It was a real psychology journal. Actually, it was a real fake journal. It was kind of like The Onion for psych nerds. I’ve read a couple of the articles over the years and they were pretty funny. The Etiology and Treatment of Childhood is particularly funny.

If you know some psych and research lingo, you might want to check it out!

We can all use a little polymorphous perversity from time to time.

Yesterday, my hubby complained of being hot and not feeling well. I thought that perhaps he had caught menopause from me and was having hot flashes. Given that I caught menopause from a hypodermic needle (full of Lupron), it makes sense if you think about it. Today, he feels much better.

As a former university researcher, I conclude that menopause in males is a 24 hour condition. I think I will write a paper on this and submit it to the Journal of Polymorphous Perversity. (See an example of one of their premier articles, Oral Sadism and the Vegetarian Personality.)

My husband asked me to take over dinner preparation because he was feeling hot and his stomach hurt.

Maybe he caught my hot flashes. “Menopause” does start with “men”.

Alas, it sounds like he has come down with something. I hate to put him in quarantine but I just got over being sick and I don’t want to be a member of that club again for a long while.

I am sending him healing thoughts from the other room, between applications of hand sanitizer.

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Lindbergh High School Reunion '82, '83, '84, '85

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George Lakoff

George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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