The latest:

I had been wanting to know if you ever considered changing the page layout of your blog? It is very well written; I enjoy what you have got to say. But maybe you can include a little more in the way of content so people could connect to it better. You have got a great deal of wording for only having one or two photos. Maybe you can space it out better?

Reading these spam comments is more fun than reading a badly translated video game manual. This one kind of reads like a horoscope because it says everything and nothing at the same time: Your blog is very well written but needs to be better written. I, a stranger enjoyed reading it but you need to write it better so people will connect with it.

Well my post on kindness has attracted more spam. Perhaps this post is the cyber world equivalent of a fried egg or something. Anyway, this time they are taking a more positive approach. For example,

Hmm it looks like your website ate my first comment (it was extremely long) so I guess I’ll just sum it up what I wrote and say, I’m thoroughly enjoying your blog. I too am an aspiring blog writer but I’m still new to everything. Do you have any points for beginner blog writers? I’d genuinely appreciate it.

Well, that sounds legit, right? And you know how I love to give people tips. Hmm. Maybe I’d better check to see where this comment came from. Ah yes, it’s my good friends at  seizedandrepocars.com.

 

 

I’m getting my ducks in a row. I have my special soap to use tonight to get myself super extra clean and MRSA free as requested by the hospital. I do a repeat shower tomorrow morning. I have clothes picked out for tomorrow following the tips given to me on the phone by the pre-admission nurse at Swedish. The main issues are to bring a few options in the bra department as well as a button down shirt, since putting on a t-shirt could be painful.

The nurse also reminded me that although surgery itself is not that long, there’s going to be a lot of waiting around. So, John downloaded a bunch of podcasts for me on my phone (thanks for the recommendations, Facebook Friends!) as well as an app on which I can play podcasts. Also, thanks to my Facebook Friends, I downloaded some light reading recommendations on my Kindle. I have even been able to start reading a book again. I’m perhaps not up to War and Peace but Alexander McColl Smith is reading nicely.

Care for Zoey is set up even after my messing up her class schedule. I thought I had signed her up for a glass blowing class this week but had accidentally signed her up for a session in late August. Unfortunately, I did not realize the error until I brought her to the class yesterday. So instead of having a class, she will be spending tonight at my parents and they will bring her back to Seattle for her All City Band practice tomorrow evening.

Tomorrow is going to be a long day. I need to check in at 5:30 am and remember they want me to be all clean and showered, too. It will be an even longer day for John since he has to stay awake the whole time. We will contact my parents for sure tomorrow and I will ask John to post to my blog. I think my typing hand will be out of commission tomorrow night.

I just proof read the title for my post today. It had read, “Quakers in a row.” Hah! That would have been confusing. They are peaceful folks, though so a row of Quakers would be helpful.

Every day now, I receive Spam comments to my blog. They are usually some thinly veiled advertisement, badly translated from another language–a word salad of barely intelligible meaning. Today, I received kind of a hostile comment on one of my posts. I didn’t save it so I am paraphrasing. “I am disappointed in your blog. I hope it will not be so disappointing next time. You keep crying about your situation just to get attention.” Then there was a link to some product. I imagine the tactic is to get people mad enough to click the link, in hopes of sending off an angry email. By that time, it is too late and they will have become the next set stars of the company’s Spam-a-lot production.

I did not click on the link. But I did think you’d appreciate seeing what post was criticized for being so whiny:

 

Lots of Kindness

Although my husband may disagree in matters related to my attitude toward his contributions to housekeeping, I am a pretty positive person. I believe in the inherent value of people even if they do “bad things” or worse, even if they annoy me. Even with my above average rosy view of humanity, I am absolutely blown away by the kindness I have received regarding my cancer. There is at least one person praying for me (a chaplain at St. James’ Cathedral) who has never met me. My friends and relatives have been beyond kind and helpful. The various technicians and nurses at Swedish and their partner health care offices tend to my comfort, ask me for the names of my doctors, and tell me that I have an “excellent team” caring for me.

I sure don’t like being seriously ill but this is pretty sweet. No wonder Huck Finn (or was it Tom Sawyer) faked his own death so he could hear all of the nice things that people said about them. No wonder people have trouble with malingering or Munchausen’s by proxy. All of this attention could be addictive to some people.

But no worries. As much as I am touched by the kindness around me I look forward to the day it will not have to be so obvious and necessary. I look forward to being taken for granted. (Okay, that last bit is dishonest. I hate being taken for granted! Ah, the song of a mom of a teenager.) Let’s just say, I look forward to the day when I am not taking up so much space in the worry parts of people’s brains.

In the meantime, keep the prayers and positive vibes coming. I’ll send mine your way, too.

As you know, Zoey finished middle school last Friday. This year has been a bumpy double marathon for her but she ended a year on a high note. She is feeling sad that she will not see some of her friends every day any more, since a number of kids are going to different high schools next year. I suspect she will actually see a couple of them at All City Band this summer, which starts rehearsal next week but she doesn’t really know who will be there. Zoey is a kid who needs major down time after a big event, a party, a martial arts best test, a week of standardized testing, etc. We’ve had a lot of events lately and she really hasn’t had a chance to vegetate, which can make her pretty anxious.

She has also gotten quite worried about me. We went out to dinner with grandparents last Friday and when someone mentioned my going to the hospital later this week, she said, “Mom, you’re going to the hospital?” It had apparently not registered with her when I told her about my cancer and she has not really wanted to talk about it since that time so I’ve kept her exposure to “cancer talk” to a minimum. So, I re-explained that I was going to the hospital for surgery but that I would be home the same day. I told her what she would be doing that day (glass blowing class followed by All City Band rehearsal) as well as who would be driving her to the different events. She kept excusing herself from the table “to get some air” and she paced up and down the street. Eventually, I walked with her to the bakery down the street from the restaurant so we could buy desserts to take home. She let me put my arm around her as we walked (in public, in our own neighborhood, no less). I told her that I knew it was a really hard time but that I really thought everything is going to be okay. I also told Zoey that I thought she’d feel better once she started going to the All City Band rehearsals and saw some familiar faces. She didn’t say much, but she listened and it was a nice mother-daughter moment. Plus, she got cake out of the deal.

Later that night she came into my room to make sure I was okay and not upset. (I had gone to bed particularly early because I was particularly tired.) I told her that I was just tired and gave her a hug good night. I asked her if she wanted to crawl into bed and read with me until John came to bed but she said that she was really tired, too so she went to bed.

I know she will be fine but I hate to see those wild big eyes she gives when she is scared. I can only tell myself that in all likelihood, this will end up being a good learning experience for her, especially if John and I can keep modeling good coping for her. That’s not the most poetic way to put it, but it’s true. And truth is nothing to sneeze at.

I forgot to post about Zoey’s fabulosity at my Aunt Gloria’s wake last Saturday. It took place at my cousin, Catherine’s house in Seattle. There are a lot of musicians in the family so Catherine set up a stage area in her back yard and hired our cousin Adam Hunter and his great band, Trip the Light (jazz, Latin, rock combination http://www.tripthelightmusic.com/) to play. Family members were also invited to sing with the band. Zoey, who has a nice untrained singing voice, loves to perform so she asked if she could sing. She explained to the audience that she wanted to sing Amazing Grace because it is traditional for funerals and that she wanted to sing to honor Aunt Gloria, who was a singer. It was really sweet. The second song was one she sings all of the time, That was then-This is, too, which is a parody of 60’s lounge singing from the animated show, Futurama. Zoey sang it as a duet, alternating between her best Robert Goulet voice (which is pretty good) with a higher woman’s voice (let’s say, Edie Gorme with apologies to Steve Lawrence). She has really good stage presence and style.

To get an idea, here are the lyrics

You and I will be reborn
In a future place and time
If everything our Hindu brethren say is true
In an age of things that hover
You and I will still be lovers
And we’ll say to ourselves
“That was then
This is too”

Cause we’ll still find
The happenin’ hot spots
We’ll still cruise
The cool casinos
You’ll still fly me to the moon
Although the moon to which you’ll fly me
Could be Phobos or Deimos
The psychic worms from Rigel 9
Who control everything we do
Will make us think that was then
And three thousand and ten
Is exactly the same as nineteen sixty two
Don’t expect any changes my friend
That was then
And this is too–!
(Lyrics by Seth McFarland)

I carried out my coping plan yesterday and I feel a lot better today. I have reread a number of posts and I see that I need a copy editor! Oh well, I guess I can’t expect perfection, but clarity of communication might be nice. Thanks for your continued readership!

Next Wednesday I graduate from one stage, the diagnostic stage to the next stage, the treatment stage of my breast cancer.  This stage starts with surgery, unless you count the needle biopsy I had since technically, they removed cancer cells to do it. (See, I’m healthier already.) Other than knowing that I have three appointments with three different physicians the following week, I don’t know what the steps will be after surgery. That’s because the surgery is part treatment and part assessment. And I suspect that a lot of medical treatment is like this, that in treatment more information is gathered and this informs successive treatment decisions. That’s what my job is like as well.

I cope best when I have concrete and active things to do and when I am able to rest and take care of myself. I am running out of these steps before I hit another misty patch of ambiguity. I’ve also finished the big pile of work that I needed to get completed during my last two weeks’ work marathon. Now I’m tired and my to-do list is not entirely clear. I find myself starting to get into “what if?” territory. “What if” I get radiation and I’m one of those people who gets fatigued for years afterwards. I wonder if my hair is long enough to give to Locks of Love if I end up having to get chemotherapy? If it were, then some good could come of cutting it rather than just waiting to lose it all. I think you get the picture.

So this started a couple of days ago and here is my plan to nip it in the bud:

1) I’m going to meditate for 10 minutes today after I finish this blog entry.

2) I’m going to stay off of the computer tonight to help me get a good night’s rest.

3) I am going to list all of the steps of cancer diagnosis and treatment that I have already completed so far. Even though I didn’t start out with a full check list, these are still steps I have gotten through and represent forward progress:

I have completed:three mammograms, 2 ultrasounds, 1 needle biopsy, 1 MRI, 2 blood draws, testing for the BRCA genetic mutations, and two results phone calls. All of this has entailed 6 trips to Swedish in the span of less than 5 weeks. Not too shabby. Lots, lots, more items will be coming to my to do list, but I’ve definitely made progress past square 1.

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I’m just about to dash off to an appointment and I had an impulse to work on a bumper sticker slogan for parenting a teen. Okay, so this could be rough. You are seeing the early workings of my mind on trying to generate some thing funny and yet pithy. Pith does not come easily. Can you tell from this long preamble.

 

Drum roll please….

Parenting–like a long marathon through a magnificent forest, with wild animals and dirty laundry along the way.

There you go, hot off of the brainstorming mind of sleep deprived me. I will post edits as they arise.

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George Lakoff has retired as Distinguished Professor of Cognitive Science and Linguistics at the University of California at Berkeley. His newest book "The Neural Mind" is now available.

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